Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for June 2022

Ooooops it’s the Heat!

Of course I meant OA not OS

Stifffingers

•2 years ago

9 Replies

Help & advice please.

I was interested to read Kulinas post the other day, re the painful knuckles & fingers.,and subsequent replies. I first came onto this site Sept 2018, having...

I was interested to read Kulinas post the other day, re the painful knuckles & f...

Stifffingers

•2 years ago

21 Replies

Vitamins K2 and D 3

Where do folks buy their vitamins and get the best value please

Suffererc

•2 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Should I up my dose ?

Hi all, I have recently returned from an extended holiday in Rhodes, which was very relaxing and I was feeling really good and stable on 5mg of Pred. However...

Hi all, I have recently returned from an extended holiday in Rhodes, which was v...

jules1955

•2 years ago

8 Replies

TCZ 7 months in, and tapering Pred,- update.

Hello friends ! Long post, hope it’s of use to someone…! Since early April I’d been intending to write an update on my progress at my 6-months-on -TCZ- point...

Hello friends ! Long post, hope it’s of use to someone…! Since early April I’d ...

Jonimoroni

•2 years ago

34 Replies

Sunshine

I am so grateful for this website when I eventually got diagnosed with PMR I didn’t even now what it meant I was worried not knowing being on website give me...

I am so grateful for this website when I eventually got diagnosed with PMR I did...

Bowred

•2 years ago

5 Replies

Confused

My doctor is now convinced I don’t have PMR, mainly due to my last blood tests being normal. He has put me on ibuprofen, and wants me to reduce my steroids,...

My doctor is now convinced I don’t have PMR, mainly due to my last blood tests b...

Carathedog

•2 years ago

34 Replies

Webinars Fri 10th June

Has anyone received email with links to tomorrow's webinars ?

choirsinger1986

•2 years ago

4 Replies

Statins

I was advised to start on medication to lower my blood as apparently the guidelines for an acceptable level are now lower than previously. I have also been...

I was advised to start on medication to lower my blood as apparently the guideli...

Booge_15

•2 years ago

18 Replies

How do you manage your own Pred regime if different to GP’s?

I notice that many of you seem to self-managing your Pred reduction. How does that work with your GPs? Have you come to some sort of agreement with them that...

I notice that many of you seem to self-managing your Pred reduction. How does th...

Lyra42

•2 years ago

37 Replies

Sunshine

Hi can anyone give me sum Advice both my arms feel weak is this all part of PMR

Hi can anyone give me sum Advice both my arms feel weak is this all part of PMR ...

Bowred

•2 years ago

1 Reply

Cardiff meeting

Cardiff group meeting on Thursday 16th June at 11.30 in the Central Library, room 4. This is our first meeting since the lockdowns so please try to come.

Cardiff group meeting on Thursday 16th June at 11.30 in the Central Library, roo...

Susanlew

•2 years ago

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GCA Worry's

Now I am 🫤 ,double vision in my best eye when I check on Macular chart, my best eye showing extra horizontal lines 😵‍💫 This morning I woke up felt as though...

Now I am 🫤 ,double vision in my best eye when I check on Macular chart, my best...

Ronzy

•2 years ago

44 Replies

ESR gone high again?

I've had PMR since January 2021 and have been taking a slow and steady taper every six weeks. From 15mg, I'm now down to 3mg, though this week I'm tapering...

I've had PMR since January 2021 and have been taking a slow and steady taper eve...

Silver-Babe

•2 years ago

5 Replies

Another disappointment

Was told by my Dr.to go as soon as possible to get a urine test and more bloodwork.Can you believe I got there and he didn't call in the requisitions?He's off...

Was told by my Dr.to go as soon as possible to get a urine test and more bloodwo...

Hunter134

•2 years ago

23 Replies

To taper or not...

Help please? My PMR seems better. I am @ 1mg and was considering starting a slow taper to 0.5mg. BUT my Lichen Schlerosus is flaring and very uncomfortable...

Help please? My PMR seems better. I am @ 1mg and was considering starting a slo...

Portobello

•2 years ago

12 Replies

Swollen Leg Solved

Hi - I posted a query about swollen legs last week to see whether this symptom was part of our PMR ‘journey’. Things have moved on dramatically since then so...

Hi - I posted a query about swollen legs last week to see whether this symptom w...

Thelmarina

•2 years ago

50 Replies

A bad flare

My hubby has PMR, had it since 2019. Last night he had the worst flare ever. He was on 5mg of Prednisolone, and since 2am this morning he has had to take 18mg...

My hubby has PMR, had it since 2019. Last night he had the worst flare ever. He ...

Hollieby

•2 years ago

22 Replies

Summer

Hi all I have been told by doctor I got PMR it all new to me Doctor put me on steroids any information I appreciate it I love my sports but that on hold at...

Hi all I have been told by doctor I got PMR it all new to me Doctor put me on st...

Bowred

•2 years ago

9 Replies

What happens when you end tocilizumab

I have GCA and PMR , plus a few other conditions.. I am on Prednisolone, Azothioprine and tocilizumab . I am getting towards the end of the tocilizumab...

I have GCA and PMR , plus a few other conditions.. I am on Prednisolone, Azothio...

Caroline2079

•2 years ago

19 Replies

PMR, GCA/LVV and fast reduction with TCZ

Hello. I started on TCZ last December, reducing pred from 15mg by 1mg per month. In February, the consultant told me to speed up the reduction - probably with...

Hello. I started on TCZ last December, reducing pred from 15mg by 1mg per month...

Sharitone

•2 years ago

13 Replies

Mindfulness

I have not written for here some time but I have had PMR for about 12 years. When I retired 10 years ago I was under a lot of stress and attended a...

I have not written for here some time but I have had PMR for about 12 years. Wh...

Mike364

•2 years ago

12 Replies

Flying

Am new on here. Am 2 years GCA this September & due off steroids mid-August with the help of Methotrexate, currently on 3mg. I've retired because of it, &...

Am new on here. Am 2 years GCA this September & due off steroids mid-August wit...

kiteekat

•2 years ago

2 Replies

GCA

Is the jaw pain in GCA like cramp

Ronzy

•2 years ago

7 Replies

Low Carb really works for me

May 3 rd this year was my moment of truth when I knew I had to do something about two years of pred use weight gain. After two weeks of thinking I was low...

May 3 rd this year was my moment of truth when I knew I had to do something abou...

Janetknit

•2 years ago

42 Replies

Sore ribs

Hi, Anyone else suffer from sore rib cage? Seems to start from the big muscle under the arms and go down the ribs on both sides. On 7mg pred at the moment....

Hi, Anyone else suffer from sore rib cage? Seems to start from the big muscle u...

Bleakley1

•2 years ago

15 Replies

Bloodwork not good.

My CRP is over 100.White cells up high.Sed count 38.Now iam really scared.

Hunter134

•2 years ago

24 Replies

Registration for webinair

I am not sure if I am registered on the webinair on GCA tomorrow . I am pretty sure I filled in the registration form.Sorry to be a pain

I am not sure if I am registered on the webinair on GCA tomorrow . I am pretty s...

Caroline2079

•2 years ago

2 Replies

Sciatica

Worst pain have ever had - because I have high blood pressure am not meant to take ibuprofen and was prescribed cocodamol which has done nothing for pain. Any...

Worst pain have ever had - because I have high blood pressure am not meant to ta...

Ancientrimer

•2 years ago

31 Replies

Cardiff meeting

Cardiff meeting on Thursday 16th June at 11.30 in the Central Library, room 4. New members are especially welcome.

Cardiff meeting on Thursday 16th June at 11.30 in the Central Library, room 4. N...

Susanlew

•2 years ago

Be the first to reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Ooooops it’s the Heat!

Help & advice please.

Vitamins K2 and D 3

Should I up my dose ?

TCZ 7 months in, and tapering Pred,- update.

Sunshine

Confused

Webinars Fri 10th June

Statins

How do you manage your own Pred regime if different to GP’s?

Sunshine

Cardiff meeting

GCA Worry's

ESR gone high again?

Another disappointment

To taper or not...

Swollen Leg Solved

A bad flare

Summer

What happens when you end tocilizumab

PMR, GCA/LVV and fast reduction with TCZ

Mindfulness

Flying

GCA

Low Carb really works for me

Sore ribs

Bloodwork not good.

Registration for webinair

Sciatica

Cardiff meeting

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