Oxy pro

[Uglow]

My Gp has given oxy pro that’s slow realise oxycodone for my back. Unfortunately it hadn’t helped yet. I have Sweats like menopause but I’m over that long time ago. I don’t know whether I’m coming or going. I’m dropped down to 12.5 again tomorrow as I’m not sure it’s pmr I could just stay in bed 😢

[SheffieldJane]

I honestly wouldn’t take oxycodone if it doesn’t help. It is apparently very addictive. It may well be contributing to your wanting to stay in bed. Sweats seem to be part of this condition or Pred. I used to wear a cotton scarf that was filled with Crystals that could be chilled in the freezer. It helped. I got it on Amazon. I’m not sure I would drop down again if I was feeling bad.

[PMRpro Ambassador]

If your back pain is due to the PMR or the associated myofascial pain syndrome - even opiod painkillers will do nothing for the pain and you just run the risk of the opiod side effects.

[Uglow in reply to PMRpro]

I shall try oxy for one week if no change then I’ll stop. It does seem to take edge off. Gp/ pharmacist says try it. Iv taken before so I am aware of addiction but Iv got to try just to see. I wanted to stay in bed before I tried it. But I DONT I’m up everyday washed and dressed😂ready for day in pain doing it slowly but even if it takes me ages I still do. My hubby does most of cleaning we only have a little one bed. I make breakfast, dinner. If I’m up to it we go to local cafe for brunch. I’m struggling but not giving up. I like a nice little rest in between everything and only do at snail pace. I’m trying to listen to my body I just get overwhelmed some days. I think sit I don’t of tv or sit in cafe in pain what wins everyday depends on not only pain scale but mental strength. I am knew you all this so I love and learn with you great advice. Tbh I depend on you more than Gp. I think things would be different without you all. You are my pmr saviours. Than you so much. X

[Uglow in reply to Uglow]

Me and I imagine many of you.

Me

[Pixix]

I’m not on oxycodone and get dreadful sweats, pouring off me...I’ve just ordered some cooling wipes to see if they help! I don’t go out without a tea towel to wrap round my neck if it starts! I think there may be a pinned post or an FAQ as lots of us suffer, suggest you search on the subject, you will find a lot! I have a lot of back pain due to a benign tumour on my spine, but it’s not connected with my PMR at all, and I haven’t heard people on this forum talking about back pain. Perhaps you need a referral to a back specialist from your gp to find out what it is? Just a suggestion...not all our pains are caused by PMR! I know it’s hard to distinguish as I also have fibromyalgia and residual car crash injuries and inflammatory arthritis!! Take care, you sound very down (just read your other post today!) S x

[PMRpro Ambassador in reply to Pixix]

Lots of people discuss back pain - often due to myofascial pain syndrome which is more common alongside PMR though it can exist in its own right.

[Pixix in reply to PMRpro]

I agree, but I thought back pain was due to myofascial pain syndrome (which I know you have) rather than ‘just’ PMR and that back pain is not a known symptom of PMR (PMR without myofascial syndrome)? I’m interested as if back pain is a symptom of pmr (with myofascial) some of my back trouble could just be ‘good old’ PMR! S x

[Uglow in reply to Pixix]

Me too but o suspect crostochronditis I had few years back but they were never sure. So I’m just diagnosing myself. Gp says it could be but nothing in stone. I’m not sure if it’s pmr

[Pixix in reply to Uglow]

That’s tricky...the doctor should be able to tell, really, I would have thought! S x

[PMRpro Ambassador in reply to Pixix]

My MPS is definitely influenced by the PMR - and since it is the same inflammatory substances, I tend to get a brief PMR-flare when manual techniques are used on it as they release the cytokines into the system. The trigger points also coincide with the affected soft tissues around joints so it is so intertwined it is difficult to say they aren't part and parcel of the pathology - and this seems to me to agree:

jrheum.org/content/jrheum/4...

[Pixix in reply to PMRpro]

Interesting...how do they diagnose MPS, please...does it have its own symptoms, or is there a test or see it in a blood test? Thanks, S x

[PMRpro Ambassador in reply to Pixix]

Symptoms - the ESR and CRP are possibly gong to be raised, not that mine was. But it is a clinical opinion I imagine

my.clevelandclinic.org/heal....

seems quite good. The original lecture I heard about it in was never published that I know of

[Pixix in reply to PMRpro]

Thanks very much. My levels were only slightly elevated at the start of PMR, but every symptom was there & about 48-72 hrs after first steroids the pain in shoulders & hips had gone. Will look up the link, thanks for your help! S x

[Uglow in reply to Pixix]

As we are all unique it’s hard to work out but I did have fractured vertebrae 2918 I think it might have the hump😂 but tbh honest I’m alway looking for answers and hope that one I try will work for me. Thank you for your advice

[USAGCA]

Consider shingles or post hermetic neuralgia.

[Uglow in reply to USAGCA]

I haven’t had shingles to my knowledge