Risedronate : Hi all, anyone take risedronate 5mg... - PMRGCAuk

PMRGCAuk

13,835 members25,135 posts

Risedronate

Karenwelsh profile image
Karenwelsh

Hi all, anyone take risedronate 5mg daily instead of alendronic acid? How do u get on with it? Side effects etc

29 Replies

Karen

Do you have Osteoporosis?

If not ask for a Dexa Scan, this tells you your bone density and whether you need any medication.

Take a look at the Royal National Osteoporosis site.

With a bit of luck you may not need anything and Heron might come along as she has been dealing with Osteo and is my 'go to'.

Karenwelsh profile image
Karenwelsh in reply to jinasc

I'm being prescribed this as a precaution while waiting for dexa scan, which is taking longer due to covid

PMRpro profile image
PMRproAmbassador in reply to Karenwelsh

That's fine as long as you aren't having problems due to the bisphosphonate - but in my book, no dexascan result showing I need it, no bisphosphonate.

Hi Karen, my doc suggested it, but I wasn't keen and suggested a DEXA scan first, she was happy with that. The scan came back with excellent results so she was happy to drop the idea.

I take risedronate because my scan showed osteopenia. I take it once a week and stay upright for a half hour and have no side effects

Pinklady45 profile image
Pinklady45 in reply to Manihiki

Can I ask please do you get any headaches, sore blurry eyes, tiredness or brain fade with Risedronate? My doctor wants me to try it as AA is really giving me a bad time.

Manihiki profile image
Manihiki in reply to Pinklady45

None of those thank goodness

Yes, with AA I was having problems with joint pains, predominantly in my hands. Dr switched me to Risedronate 35mg and hand problems improved, and after 2 or so months gone. Miracle? I don’t know, but if you compare the patient info of AA cf Risedronate there’s something like a 10:1 reduction in reported joint issues. (I’m on 8mg of Pred due to PMR.)

Pinklady45 profile image
Pinklady45 in reply to Exflex

Can I ask please the same questions I asked Manihiki, do you get sore eyes, headaches or brain fog and fatigue with this treatment?

Exflex profile image
Exflex in reply to Pinklady45

None of those fortunately.

Yes, I'm taking that. I had to have a break from Alendronic Acid because it was giving me tummy pain, as though I were cooking up an ulcer. No problems yet with Risendronate. I have bi-annual dexascans. I have lost a bit of bone density during the last 4 years of pred treatment, but still acceptable, so I think it's wise for me to persist with the Risendronate.

Pinklady45 profile image
Pinklady45 in reply to AliDeJ

Can I also ask if you have experienced any sore eyes, headaches, brain fog and extreme tiredness on this treatment?

AliDeJ profile image
AliDeJ in reply to Pinklady45

My eyes and much are very dry. I have special eyedrops, hyloforte, to help with this. Not sure is Risendronate is to blame. I am very tired sometimes, but that's due to low ferritin. I have a pain at the back of my head, on the right. It's difficult to work out cause and effect sometimes, isn't it!

PMRpro profile image
PMRproAmbassador in reply to AliDeJ

Sicca syndrome (the dryness) is a common effect in many autoimmune disorders and can be Sjoegrens syndrome if the body produces antibodies.

AliDeJ profile image
AliDeJ in reply to PMRpro

Indeed. I've had two tests for sjrogens, both negative. It's a mystery.

PMRpro profile image
PMRproAmbassador in reply to AliDeJ

Mmmm - but there is also sicca syndrome - sero-negative Sjoegrens I suppose in a way. And this dryness really is very common alongside autoimmune disorders

AliDeJ profile image
AliDeJ in reply to PMRpro

Oh. Thank you. I'll look into that. I thought they were one and the same.

Pinklady45 profile image
Pinklady45 in reply to AliDeJ

Thanks for your reply, guess we all are taking so many pills it is difficult to work out what is causing anything! Take care stay safe.❤🌞❤

AliDeJ profile image
AliDeJ in reply to Pinklady45

Eyes and mouth

I've been on Risedronate 35mg once a week for the past 4 years and am not aware of any side effects. I do have proven osteoporosis and have DEXA scans every 2 years.

Pinklady45 profile image
Pinklady45 in reply to Rugger

Please may I also ask you if this treatment gives you sore eyes, headaches, brain fog or tiredness?

Rugger profile image
Rugger in reply to Pinklady45

I don't know if these are side-effects of Risedronate - I must check the leaflet in the packet. I don't get headaches, but that can be a sign of GCA. I sometimes get dry eyes, so use drops for that. Brain fog and tiredness are features of our autoimmune conditions and the prednisolone that we take for them.

You could start a new post and ask the questions, or look in the FAQ in the Pinned Posts on the right of this page.

Pinklady45 profile image
Pinklady45 in reply to Rugger

Thank you so much for replying to me, at least I do not feel so alone now!

Rugger profile image
Rugger in reply to Pinklady45

We're never alone on this Forum!

I've just noticed that you did put up a new post. I hope you get some useful replies.

I'm suppose to take risedronate 5mg daily starting today. I have taken 1 this morning, I'm really not sure what to think k about taking it before I have dexa scan, but after scan if I do need to take it I already got it in my system and if I don't need it I can always stop. Not sure if that the right way to think about thou

Not sure if it down to risedronate or not but for the last 4 days cant stay off the toilet so didn't take 1 yesterday or today and a lot better, my weekly appointment got cancelled today due to dr on training course didn't want to speak to another 1 si appointment Monday now instead so will see what she says then

I only take risedronate once a week

Karenwelsh profile image
Karenwelsh in reply to Manihiki

I was taking 5mg daily so my body could get used to new meds slowly, dr thought daily would be better than a weekly dose as I didn't get on with aa weekly, how much do u take weekly? If u dont mind me asking?

I take 35mg once a week. The only annoying thing is that it has to be taken on an empty stomach and you have to be upright for an hour after