Could this be GCA?: Someone has written in a... - PMRGCAuk

PMRGCAuk

20,919 members39,404 posts

Could this be GCA?

Pippah45 profile image
8 Replies

Someone has written in a Thyroid forum and I am wondering if I should suggest she considers GCA although I hesitate to worry her unnecessarily - what do you lovely people think?

"I am really suffering with nerve pain in my left jaw, top and bottom. It is intermittent, when I get up in the morning I'm fine, when I sit down after lunch it starts up and then comes and goes throughout the rest of the day and is usually aching when I go to bed, although it eases off overnight."

Written by
Pippah45 profile image
Pippah45
To view profiles and participate in discussions please or .
8 Replies
SheffieldJane profile image
SheffieldJane

The typical jaw pain of GCA is claudication - only painful when chewing - as I understood it. You could send her a link of symptoms though. Not many people know about it and she can make her own mind up. It is tempting for us to see PMR and GCA everywhere. I find myself doing it. X

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Sounds more like TMJ /TMD - maybe forward her this link - healthline.com/health/tmj-d...

SnazzyD profile image
SnazzyD

My GCA jaw pain was a problem with the muscle when chewing only. It didn’t come and go without the chewing first. This could be a nerve problem, temporomandibular joint issue amongst other things. A long shot but does she have angina or other heart issue? Sounds like a chat to a doc is an idea.

PMRpro profile image
PMRproAmbassador

That isn't typical of GCA - the jaw pain in GCA is mostly (not always) while using the jaw, chewing is typical, 2 to 3 minutes of chewing gum at once chew per second is suggested as a screening test for GCA that is easy to do anywhere. Even talking or singing for a while can result in the pain - but in all cases it goes away as soon as the action is stopped but returns when you start again.

As suggested - possibly a TMJ problem.

Pippah45 profile image
Pippah45

Yes thank you everyone I had forgotten about the Claudication aspect of jaw pain - it does sound more like tmj. I thought it better to check with you all. I did suggest PMR/GCA to someone a while back and she got really sick and was eventually diagnosed with both! It was quite painful watching her go through it and ignoring the links I gave her to this forum! You definitely can't win them all!

PMRpro profile image
PMRproAmbassador in reply to Pippah45

You'll meet that a lot - until they get it themselves and suddenly this bizarre forum isn't so daft ;)

RoadTrip profile image
RoadTrip

I was obviously atypical, as had extreme jaw, teeth and ear pain before headaches set in, not relate to eating. This was before GCA diagnosis. Private Rheumatologist called it ‘significant jaw claudication’.

Pippah45 profile image
Pippah45

That's very interesting RoadTrip thanks for the input.

Not what you're looking for?

You may also like...

Could this be GCA?

Down to 3 mg pred after 15 months of PMR. Doc sent me to neurology as having blurred vision....

Could this be GCA?

I have just the one symptom: intermittent pain on chewing, especially tougher foods like meat: no...

Could this be PMR???

Hi. I am just enquiring to see if I am barking up the right tree. I am 52, female and for the last...

Could this be GCA even though bloods are normal?

Hello, I have read so many interesting stories on this website since seeing a neurologist two weeks...

Could this be PMR?

Hi everyone. Since February this year I’ve started to develop pain in various parts of my body....