Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,427 members • 38,312 posts

All posts for April 2021

Think I might have overdone things!

On Friday I went for a short walk as it was such a nice day, only half a mile round the block. Felt a bit tired when I got back but a sit down and a coffee...

On Friday I went for a short walk as it was such a nice day, only half a mile ro...

Decsgran

•3 years ago

20 Replies

Happy Easter ❤️

3rd day on Pred and feeling pretty good ..hope you all feel the same! Happy Easter! Xx

3rd day on Pred and feeling pretty good ..hope you all feel the same! Happy East...

Toobusyforthis

•3 years ago

3 Replies

Feeling MUCH better today. A big uptick in mood and symptoms. I’ve been trying to work out why.

Yesterday after a glass of rosé at lunchtime I fell asleep in the sun for 2 hours .. jumper on but warm enough for bare legs. Fortunately made no impact at all...

Yesterday after a glass of rosé at lunchtime I fell asleep in the sun for 2 hour...

Seekingasolution

•3 years ago

3 Replies

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Reducing steroids

Anyone suffering with groin pain and sore thighs after reducing predisolone

Dotty4u

•3 years ago

23 Replies

PMR question

seems I am in a flare, was on 2mg.....my neck became more and more sore/ achy...so went increased to four and now in 5 for two days, only mild relief......do I...

seems I am in a flare, was on 2mg.....my neck became more and more sore/ achy......

remission

•3 years ago

3 Replies

Lions Mane mushroom supplement

My nephew brought this to my attention stating it claims to be good for inflammation. Has anyone else heard of it? Not sure how it would interact with...

My nephew brought this to my attention stating it claims to be good for inflamma...

Rosina1871

•3 years ago

12 Replies

Vaccine safety

This article was in the Canadian National Post. Dr. Harry Rakowski is an academic Toronto cardiologist....

This article was in the Canadian National Post. Dr. Harry Rakowski is an academ...

Jane424

•3 years ago

7 Replies

PMR and Depression

I have been diagnosed with PMR end of last September, and a month ago I am struggling with depression and getting out of bed, is this normal, and how can I...

I have been diagnosed with PMR end of last September, and a month ago I am strug...

Littlejan22

•3 years ago

22 Replies

Systemic Lupus

As many of you know l have had an up and down journey with lots of shingles and classic pmr but my GP always maintained l was too young. More unusual symptoms...

As many of you know l have had an up and down journey with lots of shingles and ...

cmj33g

•3 years ago

6 Replies

DSNS

Could someone please explain what is meant by DSNS method for tapering meds? My partner was finally diagnosed a couple of weeks ago (although he’s suspected it...

Could someone please explain what is meant by DSNS method for tapering meds? My ...

PMRZ

•3 years ago

4 Replies

Inflammation

So following a consultation and MRI there shows no sign of inflammation even though my stiffness/pain in getting up out of a chair, trying to get up stairs etc...

So following a consultation and MRI there shows no sign of inflammation even tho...

Hidden

•3 years ago

15 Replies

Is there a connection with PMR and Blepharitis?

Blepharitis: is it part of the PMR 'journey'? Or is it unrelated? As if PMR isn't enough....

Blepharitis: is it part of the PMR 'journey'? Or is it unrelated? As if PMR isn'...

HelenDaisy

•3 years ago

39 Replies

Alendontrate

Have been on Alendontrate sp for about a yr. Rheumatologist put me o it because of Prednisone and Osteoporosis. Last week I started with Fermur and leg...

Have been on Alendontrate sp for about a yr. Rheumatologist put me o it becaus...

Gary1310

•3 years ago

17 Replies

Struggling

I am new to this post ;I have a auto amune

Patjay

•3 years ago

4 Replies

More pain

Hi all Need some advice! I have been on 5.5 mg of pred for four weeks down from 6mg. Have had some pain but it has been something I could live with. This...

Hi all Need some advice! I have been on 5.5 mg of pred for four weeks down fr...

TINYdes

•3 years ago

10 Replies

Tapering

Hi All, I have been slowing tapering my prednisone and, after 4 years, I'm finally down to 9mg. Is it advisable to stay on a reduced dose for a period of time...

Hi All, I have been slowing tapering my prednisone and, after 4 years, I'm final...

rocketman42

•3 years ago

15 Replies

Snoo

I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I...

I have had PMR for many years and am in fact now labelled inflammatory arthritis...

Snoopy7

•3 years ago

1 Reply

Just another quick covid story.

I had my second Pfizer injection on Wednesday and felt absolutely fine. Now - 4 days later - I feel pretty ill (no energy, unusual aches, etc). I upped my...

I had my second Pfizer injection on Wednesday and felt absolutely fine. Now - 4...

Constance13

•3 years ago

52 Replies

Fingers crossed further update

So after developing opthalmic shingles and spending 6 nights in hospital I am now at home with a cart load of drugs and eye drops. My vision in my right eye is...

So after developing opthalmic shingles and spending 6 nights in hospital I am no...

Griggser

•3 years ago

15 Replies

Stay at 2mg or reduce further?

I was diagnosed with PMR in April 2019, with all the characteristic pains and high blood readings. 15mg Pred gave me almost immediate and miraculous relief....

I was diagnosed with PMR in April 2019, with all the characteristic pains and hi...

Cross-stitcher

•3 years ago

18 Replies

A Happy Easter!

I would like to say to anyone who reads this - have a happy and blessed Easter, and may your pains, discomfort, anxiety - or whatever is troubling you - be...

I would like to say to anyone who reads this - have a happy and blessed Easter, ...

humlies

•3 years ago

11 Replies

PMR Newbie

Hi All. Am brand new to the forum.Saw a Rheumatologist Consultant on Tuesday whose initial diagnosis of my symptoms was PMR.Had blood tests the following day...

Hi All. Am brand new to the forum.Saw a Rheumatologist Consultant on Tuesday who...

Countybowler

•3 years ago

49 Replies

Scared don’t know what’s wrong with me.

So I have been having a full ache on my lower abdomen. I haven’t been able to pass gas or a stool. So I took a laxative. To hopefully alleviate it and it...

So I have been having a full ache on my lower abdomen. I haven’t been able to pa...

Dontknowimscared

•3 years ago

3 Replies

Rash on forearms from pred tapering

Hi everyone, I'm after advice plz I've got a rash of tiny red spots on both forearms and quite itchy, I'm tapering pred from 40mg to 18mg at mo. I have Gca but...

Hi everyone, I'm after advice plz I've got a rash of tiny red spots on both fore...

Ambientman

•3 years ago

15 Replies

Follow up to PMR query

Hi again all, An early happy Easter to everyone and an initial thank you for the heartfelt responses to my 1st post 10 days ago. I wanted to follow up with...

Hi again all, An early happy Easter to everyone and an initial thank you for th...

RayDog

•3 years ago

4 Replies

Rheumatologist

My granddaughter has been suffering pain which appears to be a form of rheumatism, but her GP is mystified as it seems to be atypical. Can anyone suggest a...

My granddaughter has been suffering pain which appears to be a form of rheumati...

dolphin39

•3 years ago

5 Replies

please can anyone advise about Rheumatolgist

My granddaughter has been suffering from pain which seems to be rheumatic in origin, but her GP is mystified as it is atypical. When younger she was diagnosed...

My granddaughter has been suffering from pain which seems to be rheumatic in ori...

dolphin39

•3 years ago

9 Replies

Ankle and lower leg pain?

Hi all, I am trying to determine whether the pain I am experiencing is likely to be related to PMR or something totally different. I have had PMR for almost 2...

Hi all, I am trying to determine whether the pain I am experiencing is likely to...

Booboos171

•3 years ago

11 Replies

Urine infection

Hi everyone, Can anyone help, I keep getting urine infections, doc phoned yesterday to say it was bacteria infection and I also had high white cell count. I...

Hi everyone, Can anyone help, I keep getting urine infections, doc phoned yest...

2013mayo

•3 years ago

39 Replies

Fed up.com

Hi been on 15mg of Pred since beginning of Feb. Thought I should start to taper and see what happens. Doc said reduce to 12.5. that didnt work out at all,...

Hi been on 15mg of Pred since beginning of Feb. Thought I should start to taper...

Hidden

•3 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Think I might have overdone things!

Happy Easter ❤️

Feeling MUCH better today. A big uptick in mood and symptoms. I’ve been trying to work out why.

Reducing steroids

PMR question

Lions Mane mushroom supplement

Vaccine safety

PMR and Depression

Systemic Lupus

DSNS

Inflammation

Is there a connection with PMR and Blepharitis?

Alendontrate

Struggling

More pain

Tapering

Snoo

Just another quick covid story.

Fingers crossed further update

Stay at 2mg or reduce further?

A Happy Easter!

PMR Newbie

Scared don’t know what’s wrong with me.

Rash on forearms from pred tapering

Follow up to PMR query

Rheumatologist

please can anyone advise about Rheumatolgist

Ankle and lower leg pain?

Urine infection

Fed up.com

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