Thought I would update you lovely people . . . I had an urgent referral to rheumatology today after being put on 40 mgs of Pred ... going through my notes, experiences etc the doctor has come to the conclusion that I have Osteoarthritis of the spine rather than PMR - I think he's probably right given that even 40 mg of Prednisolone isn't having any effect other than making me feel really ill. The pain is contained in my back, not radiating down my arms or thighs, and is solely in the back of my body, not the front and I do have metal work in my back following a riding accident some 30 years ago and also have two knee replacements down to osteoarthritis.
He will continue to see me over the coming months, once I can get off the steroids which he wants to happen as quickly as possible - from 40 to 20 then 2 mg per month until I get to 5 mg at which point we will have to see if I still have any functioning adrenal glands! He's going to work out a way forward to keep my pain under control, and hopefully the osteoporosis too.
He's also said that my dexa scan levels are good and there is absolutely no need to take Alendronic Acid, he's happy with the supplement I've been taking and to continue to do so. I hope it's ok to stay here for the time being - until I get through some of the tapering thing!
Sue AKA Fiddlers mum