Numb toes

[Stifffingers]

Sorry if I have asked this previously . 2 years is a long time!

My toes are constantly numb . Only started with the PMR . Is this a common condition ?

Not painful just numb.

Am I alone with this one?

Regards

[SnazzyD]

Hello, have you ever sought medical opinion on this? If so, what did they say?

What is the colour of your feet like?

[Stifffingers in reply to SnazzyD]

Hi there.

Nope , I just assumed this is / was one of the side affects of the PMR.

Feet same colour as pre PMR.

[SnazzyD in reply to Stifffingers]

Well, it might well be, but I’d want to rule out other things first.

[SheffieldJane]

I have heard people complain of this symptom before and would seek a diagnosis and treatment in your place.

[fmkkm]

I get this frequently in the evening. Mine does not feel like circulatory, more like a nerve connection. It’s been happening since the beginning of GCA. I shamefully use it as an excuse for a foot massage from my excellent hubby😘.

[Pmrmolly2018 in reply to fmkkm]

Me to...numb feet and ‘uncomfortable’ at night. Have recently had a ‘Dopla’. Test at my surgery and my circulation was fine. It would seem that it is ‘neuropathy’ probably due to back injury some 30 years ago. I am now 73.

I have recently started having my legs/feet professionally massaged....this has helped..keeps the blood moving.

[Longtimer]

Yes, I get that, have it now....mine is because of Myopathy, weakness etc because of long term steroids.....but it may not be the case with you, just get it checked out.....

[Hidden]

Morning, you may have read my post several months ago that suddenly one evening with my feet elevated the toes on my left foot were numb. I immediately thought it was vasculitis. Now my right foot is the same. I'm seeing my rheumy beginning of Oct so will discuss this with him. Seems that a few of us have the same so must be something to do with either PMR or GCA, both of which I have, or at least did have....hoping they don't return as I taper.

Anne

[Heron82]

I have had numb toes since I was diagnosed to, tends to be the middle 2 toes on each foot. It goes and then comes back when I taper too quickly and symptoms return. I discussed with my rheumatologist. It may be the inflammation pressing on a nerve. Hopefully nothing to be concerned about.

Heron

[Aleahsha]

Hi I have GCA and fibromyalgia my GCA was diagnosed in February of this year I started on 80 mls of prednisolone and gradually went down as soon as I reached 35 mls my symptoms came back so back up high on steroids I have cut down again and fingers crossed 🤞 I will not have to go back up , I also have numbness of whole foot and part leg my doctor as sent me for a back x Ray to see if this is the cause I had my x Ray yesterday

[Raven1955]

I've dealt with the same issue for years now. Some times during the day I notice it more than other times but it's never painful. For me it's a byproduct of long term use of steroids. I truthfully don't think of it much as I'm used to it.