I was diagnosed with GCA in May this year and started on 60mg (12 x 5mg) pink dispersable tablets that I call my 'pink gin'. I have been reducing as advised by one 5mg tablet every 2 weeks and now on 5 a day - 25mg. I will soon change to needing 2.5mg tablets as I reduce further and by smaller amounts and my GP has made ordinary pred tablets available to me as dispersable tablets only come in 5mg size. So I will be taking 3 x 5mg dissolvable and 1 x 2.5m ordinary tablet when I get down to 17.5mg and just wondered if mixing tablets could cause me any problems as presumably the dissolvable tablets start to work more quickly. Just to add I have these even though they are super expensive due to swallowing problems.
I also have concerns that I am reducing too quickly as I do get to feel generally unwell, and very tired for several days during the week I reduce. Initially I was asked to reduce by 10mg every 2 weeks but this was changed to 5mg after the first time. The change from 35 to 30mg was the worst but so far I am coping with the reduction from 30 to 25 quite well (day 6). Fingers crossed I haven't jinxed myself!
This is my first question and any advice is very welcome please. I'm so glad I joined this forum which was recommended to me by the Hospital and read the posts every day. The wealth of knowledge and experience has proved invaluable. Thank you.