Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,572 members • 38,645 posts

All posts for January 2020

OH KNOWLEDGABLE ONES

As I’m sure you are all sick of hearing about my studies I’ve had a question about a statement I made. I missed it. I have stated that some people have...

As I’m sure you are all sick of hearing about my studies I’ve had a question abo...

Singr

•4 years ago

5 Replies

Avascular Necrosis of femoral head (AVN)

Dx with GCA in March/19, never had a single symptom of arthritis/pmr/or any joint problem of any sort in my life. Have now tapered to 13mg prednisone, now...

Dx with GCA in March/19, never had a single symptom of arthritis/pmr/or any join...

pugrescue

•4 years ago

23 Replies

Good Prednisone Sparers (and Bad)?

I must not be in proper remission - docs recently encouraged tapering, and I got down to 9 mg which caused a flare that I don't seem to be able to get out of....

I must not be in proper remission - docs recently encouraged tapering, and I got...

schmuppy

•4 years ago

30 Replies

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Sagging skin face & chin ... (sigh)

Hi All Not sure if I expect any responses which will 'miraculously' resolve my whingeing about this - maybe just some commiseration will do .... and it doesn't...

Hi All Not sure if I expect any responses which will 'miraculously' resolve my w...

Rimmy

•4 years ago

62 Replies

Concerns on taking multiple medicines at the same time

Could I ask for some advice please... I take 6mg pred together Omperzolone and 200 mg of Allupurinol. The omperzolone is for hiatus hernia and the allupurinol...

Could I ask for some advice please... I take 6mg pred together Omperzolone and ...

Bobbury

•4 years ago

6 Replies

Tapering from 1.25 to 0 ?

I am about to taper from 1.25 to 0 as there is no good way to cut our 2.5 mg pills in 4 Pieces. They just break. I am feeling just fine on 1.25 but I feel a...

I am about to taper from 1.25 to 0 as there is no good way to cut our 2.5 mg pil...

Pirnilla

•4 years ago

12 Replies

Thigh pull?

Hi good peops of poly, I just had a relapse , got down to 10mg, back up to 20mf, my question is my daughters dog was choking, so I got down on the floor and...

Hi good peops of poly, I just had a relapse , got down to 10mg, back up to 20mf,...

Shandkydd

•4 years ago

11 Replies

Taking Pills

Quick question, I find eating early morning very difficult. What is the least I could eat to take Pred ? Could I eat one dry biscuit ( like a rich tea biscuit...

Quick question, I find eating early morning very difficult. What is the least I ...

jules1955

•4 years ago

54 Replies

Rising numbers

Needy here again. My primary doc just ran some blood work yesterday while still on 50 mg prednisone. My esr went from 10 to 16 and crp from.9 to 2.6. It had...

Needy here again. My primary doc just ran some blood work yesterday while still ...

Libertylane

•4 years ago

3 Replies

Travelling to India

Hi there I’m travelling to India for a 2 week tour around the Golden Triangle this weekend. I’m wondering how I’m going to take my prednisolone. I usually...

Hi there I’m travelling to India for a 2 week tour around the Golden Triangle t...

Jcarling

•4 years ago

24 Replies

How do I know if I have PMR , I was diagnoised with GCA , in sept 2019 , I've experienced joint pain on and off for years ! Thankyou

How do I know if I have PMR I was diagnosed with GCAin around sept 2019 I've suffered with painful joints on and off for years , but untill recently I've been...

How do I know if I have PMR I was diagnosed with GCAin around sept 2019 I've suf...

Jude85

•4 years ago

13 Replies

Support Groups

I’m very fortunate that a lovely lady has set up a PMR GCA support group in our little town . I went along to my first meeting yesterday and , as a newbie ,...

I’m very fortunate that a lovely lady has set up a PMR GCA support group in our ...

SurreyFlower

•4 years ago

3 Replies

Gall stones

Thanks all for comments on gallstones question

Daffodilia

•4 years ago

Be the first to reply

Off pred

It has been decided I don’t have GAC. Was on 50 mg for 13 days. Of course biopsy neg after 6 days on pred. Ophthalmologist couldn’t find anything yesterday....

It has been decided I don’t have GAC. Was on 50 mg for 13 days. Of course biops...

Libertylane

•4 years ago

2 Replies

Muscles

Hi All ! Does anyone else seem to injure themselves easily since having PMR ? Are our muscles easier to damage ? My Husband sometimes pulls the hand break of...

Hi All ! Does anyone else seem to injure themselves easily since having PMR ? Ar...

jules1955

•4 years ago

23 Replies

TUESDAYS😂

I have decided that Tuesdays are going to be "spoiling me" days.😂 It is the only day in the week that there isn't anything going on. My husband brings me in...

I have decided that Tuesdays are going to be "spoiling me" days.😂 It is the o...

Constance13

•4 years ago

32 Replies

Gallstones

Does PMR or pred cause gallstones?

Daffodilia

•4 years ago

9 Replies

Night sweats typical?

I was first diagnosed with PMR 3 1/2 years ago. I was down to 1 mg prednisone when my inflammatory markers went sky high. My rheumatologist wants me to start...

I was first diagnosed with PMR 3 1/2 years ago. I was down to 1 mg prednisone wh...

Readingaddict48306

•4 years ago

21 Replies

Here is a virtual hug & lots of gratitude

You all took so much time and wrote such thoughtful responses, thank you~! Your comments and your sharing of how you deal with things...what really helps/hurts...

You all took so much time and wrote such thoughtful responses, thank you~! Your ...

Grammy80

•4 years ago

23 Replies

ET natural remedies

I'm just wondering if anybody with Essential thrombocythemia has any experience of reducing platelet count with food or natural remedies (I mean along with...

I'm just wondering if anybody with Essential thrombocythemia has any experience ...

Joeybettany

•4 years ago

1 Reply

Blood test readings now normal.

Hi everybody. I've been registered for a while but have not yet posted anything so here goes. Following a period of lower back problems in May 2019, I had...

Hi everybody. I've been registered for a while but have not yet posted anything ...

redlab

•4 years ago

19 Replies

Ophthalmology

Will my appt with ophthalmologist show GAC signs.? Need more good evidence

Libertylane

•4 years ago

4 Replies

Feeling unwell for 3 weeks

Thank you for all the helpful replies very much appreciated

Angelabur

•4 years ago

Be the first to reply

Have it or not

Still can’t personally talk with rheum. On basis of her opinions and neg biopsy (after being on pred 6 days) she has decided I don’t have GAC even though I...

Still can’t personally talk with rheum. On basis of her opinions and neg biopsy...

Libertylane

•4 years ago

Be the first to reply

Yoga & PMR

I have heard that yoga benefits PMR but as I am waiting for 2 hip replacements I can’t get down on the floor. However last week I went to chair yoga which I...

I have heard that yoga benefits PMR but as I am waiting for 2 hip replacements I...

Snibby

•4 years ago

7 Replies

Struggling to Get Diagnosed - GCA

Hi all, newbie here. First off, I'm so incredibly grateful to have stumbled across this forum last night. My journey these past three months has been extremely...

Hi all, newbie here. First off, I'm so incredibly grateful to have stumbled acro...

Alihughes25

•4 years ago

19 Replies

PMR .. It’s about gone.. Now what?

PMR is almost gone. Almost 2 years. I can’t believe it.. First I would like to thank all of my mentors on this site. You have given me vital info during these...

PMR is almost gone. Almost 2 years. I can’t believe it.. First I would like to t...

Leilagirl

•4 years ago

3 Replies

Bursitis and Groin Pain

Hello I’m back on line again. I don’t know why I’ve been absent for so long as this forum not only improves my outlook on PMR but gives me something...

Hello I’m back on line again. I don’t know why I’ve been absent for so long as t...

Estellemac

•4 years ago

34 Replies

Unwell for 3 weeks

Hi All Haven't posted for a long while but read all the messages daily and find them very helpful. I have been unwell for nearly 3 weeks guess it's probably...

Hi All Haven't posted for a long while but read all the messages daily and find ...

Angelabur

•4 years ago

4 Replies

neuropathy in feet?

anyone dealing with neuropathy in the feet? On Prednisone and Leflunomide for a year, tapering Presnisone because of stress fractures [now on...

anyone dealing with neuropathy in the feet? On Prednisone and Leflunomide for ...

composition

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

OH KNOWLEDGABLE ONES

Avascular Necrosis of femoral head (AVN)

Good Prednisone Sparers (and Bad)?

Sagging skin face & chin ... (sigh)

Concerns on taking multiple medicines at the same time

Tapering from 1.25 to 0 ?

Thigh pull?

Taking Pills

Rising numbers

Travelling to India

How do I know if I have PMR , I was diagnoised with GCA , in sept 2019 , I've experienced joint pain on and off for years ! Thankyou

Support Groups

Gall stones

Off pred

Muscles

TUESDAYS😂

Gallstones

Night sweats typical?

Here is a virtual hug & lots of gratitude

ET natural remedies

Blood test readings now normal.

Ophthalmology

Feeling unwell for 3 weeks

Have it or not

Yoga & PMR

Struggling to Get Diagnosed - GCA

PMR .. It’s about gone.. Now what?

Bursitis and Groin Pain

Unwell for 3 weeks

neuropathy in feet?

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