Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,612 members • 38,758 posts

All posts for January 2020

Dietary advice while on Predisnolene

Can anyone help with dietary advice to avoid weight gain, and hopefully lose weight. I was diagnosed with pmr in July, started on 15 mg now down to 10 & trying...

Can anyone help with dietary advice to avoid weight gain, and hopefully lose wei...

Ndnd

•4 years ago

8 Replies

Okay given 3 mg of Prednisone a chance for 2 1/2 weeks and now I have pain

I have been holding off increasing my Prednisone once again, as I made it down to 3 mgs (January 2020) from 20 mgs (started in November of 2018) but today I...

I have been holding off increasing my Prednisone once again, as I made it down t...

Musiclady18

•4 years ago

33 Replies

What to do for added pain

I am now back to 6mg of Predy but wondering if I’m still experiencing pain in shoulder, should I increase predy to 7mg or try Tylenol or something for the...

I am now back to 6mg of Predy but wondering if I’m still experiencing pain in sh...

julesster22

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Prednisone and hair loss

has anyone found anything that will prevent the hair loss, as in, would taking Rogaine or some other hair product work to counter the effects of the...

has anyone found anything that will prevent the hair loss, as in, would taking R...

remission

•4 years ago

22 Replies

Change in the PMR journey

I have had PMR Dor a year now and have followed the prednisone regimen and had monthly blood work to check on CRP and ESR. Everything as been going so well and...

I have had PMR Dor a year now and have followed the prednisone regimen and had m...

Darcy2000

•4 years ago

4 Replies

Advanced turmeric

Is this turmeric safe for us GCA/PMR folk to take with prednisone. I have osteoarthritis in few places and saw an ad claiming it’s helps??

Is this turmeric safe for us GCA/PMR folk to take with prednisone. I have osteoa...

SuziCutie

•4 years ago

9 Replies

Thin skin

Can anyone help with a recommendation for skin like tissue paper on front of both legs .I cream legs daily ,but wonder if there is more I could be doing .I get...

Can anyone help with a recommendation for skin like tissue paper on front of bot...

denny-g

•4 years ago

3 Replies

Need a virtual hug

I think 25 mg prednisone is my sweet spot. Sure beats 80, 60, 40 mg. I'm walking better, back is a little better, no headaches, no arm pain and no tongue...

I think 25 mg prednisone is my sweet spot. Sure beats 80, 60, 40 mg. I'm walkin...

Spanky2019

•4 years ago

21 Replies

Taper Every Other Day?

Hello PMR - Chat group, I just had an interesting conversation with a friend, who is also an Internal Medicine - Specialist. Her suggested, (with out any...

Hello PMR - Chat group, I just had an interesting conversation with a friend, wh...

Jgyles

•4 years ago

10 Replies

Lower back pain

Yes i did take a cocodamol and it did ease the pain,i also rested for a while

Scotty7

•4 years ago

1 Reply

There is hope!

So....results of my recent Synacthen test came back the next day and were entirely normal so adrenals are back in action. What was even more exciting was that...

So....results of my recent Synacthen test came back the next day and were entire...

Orpheus82

•4 years ago

19 Replies

Excellent appointment with the rheumatologist.

I saw the consultant rheumatologist today and she couldn`t have been nicer or more helpful. She said I`m doing very well and to keep doing exactly what I`m...

I saw the consultant rheumatologist today and she couldn`t have been nicer or mo...

Jampad

•4 years ago

15 Replies

Lower back pain. Tapering & Methotrexate

I am currently tapering 7mg 1 day 6.5mg next. I am on the 2nd week if 4,as per the consultant. When I walk more than 15min I get terrible lower back pain I...

I am currently tapering 7mg 1 day 6.5mg next. I am on the 2nd week if 4,as per ...

Scotty7

•4 years ago

12 Replies

Flare after 5 years?

I wonder if nyone can advise me please. I’ve had PMR since October 2014. Over 5 years I’ve tapered down to 4.5mg pred daily but never been able to get below...

I wonder if nyone can advise me please. I’ve had PMR since October 2014. Over 5 ...

Zhenya

•4 years ago

12 Replies

Slow taper

I tried their quicker solution to taper and it nearly killed me!😱 I’m following the “dead slow and nearly stop” tapering advice given here and although I’m...

I tried their quicker solution to taper and it nearly killed me!😱 I’m following...

Bubble56

•4 years ago

1 Reply

Calcium supplement and rheumatologist?

Your advice and experience would be welcome please. I have been taking Vitamin D during the past two winters as advised by my GP. Looking at the BSR guidelines...

Your advice and experience would be welcome please. I have been taking Vitamin D...

SurreyFlower

•4 years ago

40 Replies

Thanks for advice

Thank you for your replies, it is so helpful having someone to give me advice, I will keep you up to date.

Thank you for your replies, it is so helpful having someone to give me advice, I...

Mischevious

•4 years ago

Be the first to reply

Tapering - how long on 10mg?

I'm sure this has been covered before so apologies if so but i am after some more advice please! I have been on pred since the beginning of June 2019, starting...

I'm sure this has been covered before so apologies if so but i am after some mor...

Booboos171

•4 years ago

7 Replies

I refused prednisone and cured my PMR with Chinese supplements, using food as medicine, practicing Tai Chi and meditation and for pain Mobic

My Ced rate and other markers were gone within 6 months.

Ibis10

•4 years ago

13 Replies

Is it beneficial to split daily dose if pred

For the last few months I have been reducing by 0.5 mg on the 1st of every month. My new gp prescribed 2.5 coated pred which I understand is absorbed more...

For the last few months I have been reducing by 0.5 mg on the 1st of every month...

Suet3942

•4 years ago

7 Replies

Update and a few questions

Thanks to people who replied to my previous post. Here is an update, as suggested by them and a bit of a moan. First the good news. 60mg prednisolone for...

Thanks to people who replied to my previous post. Here is an update, as sugges...

Mischevious

•4 years ago

4 Replies

How...??

Every so often I see where someone has 'saved' a post. I would love to save some of these 'pearls' since I cannot always find them...or remember who spoke...

Every so often I see where someone has 'saved' a post. I would love to save som...

Grammy80

•4 years ago

21 Replies

Update from 2 weeks ago

Not sure if this is the place to update after a gap. Speaking to rheumy later as down from 20mg to 15mg over past week and def not working. Symptoms back plus...

Not sure if this is the place to update after a gap. Speaking to rheumy later as...

Swiftandbold1

•4 years ago

5 Replies

Back pain

Thanks to everyone for your suggestions about my sore back. its now much better but no more ten pin bowling for me! Spectating in the future!

Thanks to everyone for your suggestions about my sore back. its now much better ...

Pinkpepper

•4 years ago

Be the first to reply

Starting Methotrexate

Hi My history is -I was diagnosed with PMR in June. Started on high dose of Prednisolone and then gradually down to 15mg which made symptoms bearable. Reduced...

Hi My history is -I was diagnosed with PMR in June. Started on high dose of Pred...

JsyAnne

•4 years ago

10 Replies

When to start tapering?

Your advice and experience would be appreciated please I started on 15mg Pred Xmas eve . (for PMR) That didn’t “cut the mustard “so Dr increased to 17.5 last...

Your advice and experience would be appreciated please I started on 15mg Pred X...

SurreyFlower

•4 years ago

5 Replies

Trajectory....upwards~!

So many of you wrote such encouraging and wise words....the last few days have been appointments to get to and people coming in. Everything seems to be such a...

So many of you wrote such encouraging and wise words....the last few days have b...

Grammy80

•4 years ago

12 Replies

Methotrexare

Hi all, went to see the rheumatologist today, I've been reducing from 40mg, I'm currently at 12.5mg, I'm still getting a few headaches but not as bad as they...

Hi all, went to see the rheumatologist today, I've been reducing from 40mg, I'm ...

Poppylop

•4 years ago

33 Replies

5 weeks since fall

Well I decided I will need to get my knee checked. It has not healed on its own. So figured I better get my crutches painted. If I get ready it might not...

Well I decided I will need to get my knee checked. It has not healed on its ow...

Hidden

•4 years ago

11 Replies

CAN PMR be reason for a resistant HBP.

I am struggling with high blood pressure, after taking my 3 tablets in a morning for hi BP im ok for approx 6 to 8 hours with BP around 135/85, it then starts...

I am struggling with high blood pressure, after taking my 3 tablets in a morning...

SRIXON

•4 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Dietary advice while on Predisnolene

Okay given 3 mg of Prednisone a chance for 2 1/2 weeks and now I have pain

What to do for added pain

Prednisone and hair loss

Change in the PMR journey

Advanced turmeric

Thin skin

Need a virtual hug

Taper Every Other Day?

Lower back pain

There is hope!

Excellent appointment with the rheumatologist.

Lower back pain. Tapering & Methotrexate

Flare after 5 years?

Slow taper

Calcium supplement and rheumatologist?

Thanks for advice

Tapering - how long on 10mg?

I refused prednisone and cured my PMR with Chinese supplements, using food as medicine, practicing Tai Chi and meditation and for pain Mobic

Is it beneficial to split daily dose if pred

Update and a few questions

How...??

Update from 2 weeks ago

Back pain

Starting Methotrexate

When to start tapering?

Trajectory....upwards~!

Methotrexare

5 weeks since fall

CAN PMR be reason for a resistant HBP.

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive