Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,289 members • 38,013 posts

All posts for January 2020

Why had I never heard of PMR before my diagnosis?

I am finding it really interesting that having told my friends of my recent PMR diagnosis I’m being told “oh yes, I have a friend(s) who have the same...

I am finding it really interesting that having told my friends of my recent PMR ...

SurreyFlower

•4 years ago

33 Replies

Help!

Further to my recent posts. After having suffered increasingly over several weeks trying to reduce my steroids I made a decision over the Xmas period to go...

Further to my recent posts. After having suffered increasingly over several week...

maxgarry

•4 years ago

12 Replies

Has anyone experienced alot of gas pains with pmr and the prednisone.Maybe overindulgance at xmas

Never had this problem it its concerning me

Hunter134

•4 years ago

10 Replies

Want to take advantage of all our features? Just log in!

Soft lump is lipoma

Soft lump on arm turned out to be a lipoma. Nothing to worry about and so lovely too!

Soft lump on arm turned out to be a lipoma. Nothing to worry about and so lovely...

Whitner

•4 years ago

21 Replies

Sore right hand

This is my second week of 12mg (40 mg a year ago)and I’ve noticed my right hand thumb joint, back of hand and wrist have acquired a dull ache. Gripping,...

This is my second week of 12mg (40 mg a year ago)and I’ve noticed my right hand ...

Cyclegirl54

•4 years ago

11 Replies

CT Scan coming up!

Hi I’m due a CT scan and wondered if other people have had one, and whether the steroids affect our kidneys’ ability to get rid of the dye. Any tips gratefully...

Hi I’m due a CT scan and wondered if other people have had one, and whether the ...

Thelmarina

•4 years ago

21 Replies

Past, Present, Future

When you have a debilitating autoimmune illness (or two!) like PMR/GCA, you have a lot of time to think, to ponder... contemplate and consider. Maybe it's...

When you have a debilitating autoimmune illness (or two!) like PMR/GCA, you have...

Hidden

•4 years ago

3 Replies

Silnadafil

Hi i am taking 9ml prendisolone i used in the past Silnadafil but i have stop taking it ,i don't know the any side effects ,can anyone know more .thanks

Hi i am taking 9ml prendisolone i used in the past Silnadafil but i have stop ta...

vv1956

•4 years ago

9 Replies

Reducing prednisolone and flu vaccine

I have just seen my rheumatologist (we will know the blood results in a couple of days), and she suggested I start alternating between 15mg and 10mg for the...

I have just seen my rheumatologist (we will know the blood results in a couple o...

TheMoaningViolet

•4 years ago

24 Replies

Flair of underlying disease or adrenal problems?

Dear all. I am back for a quick question. I still have no diagnosis yet, but are trying to taper off pred., How do I know if symptoms, like fatigue and...

Dear all. I am back for a quick question. I still have no diagnosis yet, but are...

krillemy

•4 years ago

9 Replies

Dear Moderator (whichever is on duty)😂😂

I do wish those silly little hearts on each of the avatars could be removed. We all know how precious we are to each other😍 but they are soooo annoying. You...

I do wish those silly little hearts on each of the avatars could be removed. We...

Constance13

•4 years ago

40 Replies

Is it significant if the PMR tiredness stops?? Pl feedback

2.75 yrs PMR now on 4/ 3.5 mg, the tiredness has mostly gone..suddenly. NoI don t miss it!!!!!

2.75 yrs PMR now on 4/ 3.5 mg, the tiredness has mostly gone..suddenly. NoI don ...

Kaaswinkel

•4 years ago

5 Replies

Finally! Some great news to share in regard to Nutcracker Spasms. Simple inexpensive remedy.

I was diagnosed with gca January 2018 and have therefore been on prednisone, aspirin, and various other meds that tend to irritate my esophagus for awhile now....

I was diagnosed with gca January 2018 and have therefore been on prednisone, asp...

Blurry62

•4 years ago

7 Replies

What kind of medicine do people take to protect stomach while on prednisone? I’ve just been using. Probiotic yogurt

Stomach meds for prednisone

Libertylane

•4 years ago

17 Replies

Please offer me seat....

Any other Londoners sporting these badges as they travel on London Transport? I’m wondering how effective they are, and whether it’s worth applying.... not so...

Any other Londoners sporting these badges as they travel on London Transport? I’...

braininjurythepits

•4 years ago

12 Replies

The dangers and surprises of fuzzy thinking

I'm going to put all the blame on prednisolone and not on senile behaviour. Have you ever purchased something at the end of a season sale and then forgotten...

I'm going to put all the blame on prednisolone and not on senile behaviour. Have...

43tripandskip

•4 years ago

55 Replies

Mistakes in Pred, reduction.

Hi all. Diag. 7 yrs ago. Symptoms - continual dull headache, which moved across scalp, non-debilitating, tingling scalp when touched. Took 10 weeks for a Dr to...

Hi all. Diag. 7 yrs ago. Symptoms - continual dull headache, which moved across ...

tomh

•4 years ago

2 Replies

Dairy

Happy new year to you all. I have a question about Dairy. I have been without dairy for 4 months which helps my PMR however I miss my cup of tea in the...

Happy new year to you all. I have a question about Dairy. I have been without ...

carolBF

•4 years ago

34 Replies

Blood test.

Hi, Ive just received notification of a new Appt at another Hospital, in April. ( Hoorah). At my last appointment , at the previous hospital, the Rheumy, asked...

Hi, Ive just received notification of a new Appt at another Hospital, in April. ...

Stifffingers

•4 years ago

15 Replies

Giant cell arteritis: Always keep it in your head

I enjoyed this article, however, I generally like re-reading (and having) such reference material available... you may find it rudimentary....

I enjoyed this article, however, I generally like re-reading (and having) such r...

Hidden

•4 years ago

4 Replies

Strange sensation in neck

I was diagnosed in Aug 2019 and started on 15mg. Been tapering slowly and now at 6mgs My question is this, for the last couple of weeks I've woken up with an...

I was diagnosed in Aug 2019 and started on 15mg. Been tapering slowly and now at...

Galloping

•4 years ago

14 Replies

Definitely NOT off piste! Things you can do with PMR:

This Santa makes me ashamed! At Easter nearly 3 years ago he was in a wheelchair being pushed to doctor's appointments by his wife, on 30mg pred and he was in...

This Santa makes me ashamed! At Easter nearly 3 years ago he was in a wheelchai...

PMRpro

Ambassador•4 years ago

19 Replies

HAPPY NEW YEAR TO ALL~~~🤞😊🖤👍

Just a quick note to wish all improvement and acceptance in the coming year. May we all be vigilant and great advocates for what we need. One of toughest...

Just a quick note to wish all improvement and acceptance in the coming year. May...

Grammy80

•4 years ago

3 Replies

PMR Symptoms back with a vengeance

I am battling PMR since 2017 and have tried internist, rheumatologist and now orthopedic. So one seems to know about PMR except rheumy...I started this journey...

I am battling PMR since 2017 and have tried internist, rheumatologist and now or...

julesster22

•4 years ago

8 Replies

Tapering

Hi I'm tapering off prednisolone , wondered if anyone else gets a prickly numb feeling in their face ,its really awful & lasts hours ,Tia Tracey

Hi I'm tapering off prednisolone , wondered if anyone else gets a prickly numb f...

Stradbroke13

•4 years ago

4 Replies

PMR flare

I have been on 10mg of Prednisone for 4 weeks, and I am suppose to be tapering to 91/2 this week, but with the way I am feeling, there is no way! I overdid...

I have been on 10mg of Prednisone for 4 weeks, and I am suppose to be tapering t...

Joy713

•4 years ago

24 Replies

Cataracts

Anyone while on high dose prednisone had cataract surgery? I’m on 50 and cataracts are bad. Growing fast Still waiting for official diagnosis. Cataracts...

Anyone while on high dose prednisone had cataract surgery? I’m on 50 and catara...

Libertylane

•4 years ago

39 Replies

Want to see an all round answer of how Aunty Bee copes with Chronic Illness Self Care , read Ansteynomads post on The AI Protocol ,Q+A here!

Good Sunday All, I just wanted to let people know whom might be interested that I had written a reply to Ansteynomad on their post of yesterday with a...

Good Sunday All, I just wanted to let people know whom might be interested that...

Blearyeyed

•4 years ago

13 Replies

Shingles jab and PMR

A lady I know believes her PMR was caused by the shingles jab she was recently offered at the age of 70. I’d never heard this before and I wondered if it’s a...

A lady I know believes her PMR was caused by the shingles jab she was recently o...

Casia

•4 years ago

9 Replies

HCQ versus Cs for PMR

I came across this interesting article on the pros & cons of Hydroxychloroquine (HCQ) v Steroids (Cs) for the treatment of PMR & would welcome PMRPro's...

I came across this interesting article on the pros & cons of Hydroxychloroquine ...

podo

•4 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Why had I never heard of PMR before my diagnosis?

Help!

Has anyone experienced alot of gas pains with pmr and the prednisone.Maybe overindulgance at xmas

Soft lump is lipoma

Sore right hand

CT Scan coming up!

Past, Present, Future

Silnadafil

Reducing prednisolone and flu vaccine

Flair of underlying disease or adrenal problems?

Dear Moderator (whichever is on duty)😂😂

Is it significant if the PMR tiredness stops?? Pl feedback

Finally! Some great news to share in regard to Nutcracker Spasms. Simple inexpensive remedy.

What kind of medicine do people take to protect stomach while on prednisone? I’ve just been using. Probiotic yogurt

Please offer me seat....

The dangers and surprises of fuzzy thinking

Mistakes in Pred, reduction.

Dairy

Blood test.

Giant cell arteritis: Always keep it in your head

Strange sensation in neck

Definitely NOT off piste! Things you can do with PMR:

HAPPY NEW YEAR TO ALL~~~🤞😊🖤👍

PMR Symptoms back with a vengeance

Tapering

PMR flare

Cataracts

Want to see an all round answer of how Aunty Bee copes with Chronic Illness Self Care , read Ansteynomads post on The AI Protocol ,Q+A here!

Shingles jab and PMR

HCQ versus Cs for PMR

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive