Night sweats typical?: I was first diagnosed with... - PMRGCAuk


17,968 members33,289 posts

Night sweats typical?

Readingaddict48306 profile image

I was first diagnosed with PMR 3 1/2 years ago. I was down to 1 mg prednisone when my inflammatory markers went sky high. My rheumatologist wants me to start back at 5 mg. My question; is night sweats a symptom of PMR? I don’t remember that happening before.

21 Replies
SheffieldJane profile image

There are all sorts of illnesses that can cause raised CRP results - colds, coughs etc. The key is how you are feeling, do you have a return of PMR pain and stiffness. Or more seriously any GCA symptoms like an unusual headache or pain in the jaw when chewing or speaking?

I think that sweating can be caused by PMR - we often run a slightly raised temperature. It is also a side effect of Prednisalone or even a result of tapering. The back of my head has started sweating for no reason that is apparent to me. I would only raise my dose if I felt that I needed to but I have had PMR for nearly 4 years. It is relatively early days for you and 5 mgs might be a stitch in time.

Readingaddict48306 profile image
Readingaddict48306 in reply to SheffieldJane

Oh yes, I gradually felt the pain and stiffness just like back in 2017, but didn’t remember the sweats. Thank you for your reply.

Sweats were pmr for me but pred does make you sweat too. Its a night isn't it. I wake just before 2am everyday kicking my quilt off.

Mary63 profile image

Night sweats are very much a part of PMR for me. Both before diagnosis and as one of the first signs of a flare.

Readingaddict48306 profile image
Readingaddict48306 in reply to Mary63

Mary, your analysis fits my experience. Thanks!

Kymandbob profile image
Kymandbob in reply to Mary63

So so agree with this...exactly the same for me. I am better in cooler weather, really struggled last summer during the day as well. Had these unexplained sweats up to 6 months prior to getting the full- blown symptoms of PMR. Diagnosed in Dec 2018, put on 15mg Predisolone. Now down to 8.5mg on the dead slow tapering method. Cannot get below this. Tried twice since Sept2019, each time ending up with a major flare...Guess PMR has too much of a hold at present..😥☹

enan-illuc profile image


I had very bad night sweats just before I was diagnosed with PMR/GCA. I had never had them before to this extent. They went away when I was put on Prednisone.

PMRCanada profile image

I continue to have night sweats and frequent urination since I started taking a split dose of pred. I take 2/3 of my dose (6mg), in a coated capsule around 11am, and its on board by 2-3am (which is when I start taking trips to the bathroom and sweating behind my neck and in cleavage). No sweating during the daytime when I take 1/3 of my dose (3.5 mg).

Sorry to hear of your reoccurrence of symptoms. Even if you start at 5mg again, my GP said it’s a “safe” dose, so maybe you’ll find that perfect dose that keeps the inflammation at bay, and thus a reduction in pain and stiffness. Disheartening all of our trials with these conditions.

powerwalk profile image

Big yes!! Very severe before diagnosis and if I reduce pred I get them back! It's never a good sign for me. Sorry to hear you need to go back up.

PMRpro profile image

Night sweats can be part of PMR - they were for me and are a sure sign that I have gone to slightly too low a dose of pred. Mine tend to be around 4am which is when the inflammatory substances are released on the body. They are more common in GCA so it is possible that PMR patients who have them maybe are in the large vessel vasculitis realm.

Chrisellie profile image
Chrisellie in reply to PMRpro

Agree. I have been off pred for over 3 months but still on Tocilizumab . I have PMR GCA and LVV and are still getting sweats morning, evening and a little through night.

Singr profile image
Singr in reply to PMRpro

I’m going to pay attention to this as I think Rheumy has been trying to rush me off pred too quickly.

arvine profile image
arvine in reply to PMRpro

well I have had night sweats on and off, for some time now, and have mentioned to both GP and rheumy, they don,t have any comment? I am down to 5mg now for over 3 mos, and just had bloodwork done last week, waiting to here from rheumy iff I can start tapering to 4 mg, hearing these stories, is rather confusing, some people had before pmr, some from tapering, not sure what is going on, and it hasnt been every night, but more often these last couple weeks, don,t have this problem through the day time however

TheMoaningViolet profile image

I get them but not every night, usually around 4 or 5 am. They don't last very long and are not severe. I noticed I ocasionally get them if I have a hot drink, but I have not worked out what the pattern is so far. They don't seem to be in any way connected to how my PMR is that day, so perhaps it's just menopause in my case.

Daffodilia profile image

I think my PMR started with severe night sweats

Captainjonny profile image

I have had PMR for just over 18 months and had frequent night sweats in the first 6/9 months, pre/post beginning on pred. And I'm a man so no other experiences of this phenomenon! I'm down to 2mg and I had almost forgotten about the sweats until seeing your post ... so hope they also pass for you. Also, I saw my GP yesterday who urged me to keep tapering very slowly and, if need be, to increase if the aches returned. His advice was "don't feel guilty" about needing to increase again ... even up to 5mg ... if the aches did happen to return. I think that echoes the advice I was given by the moderators on this valuable forum. Good luck.

FRnina profile image

I had drenching night sweats before PMR/GCA diagnosis- so much so I kept a stack of clean dry t-shirts next to the bed to change into. After taking prednisone no more night sweats.

davidcantswim profile image

I get night sweats just before a bout of aches and pains. I always have Marks and Spencer lowest cost T Shirts to hand as they are really comfortable and just £6 each

Choco-Holic profile image

Definitely a major symptom for me. I have PMR/GCA. They continued for a good while after I started prednisolone also but are gone now thankfully

Dorey profile image

Excess sweating is a side effect of the Prednisone

Broseley profile image

I am 3 days into my first go at tapering. 40mg to 30. last night I had terrible night sweats, for the first time in my PMR journey. The PMR usually made me feel cold all the time! I was using a hot water bottle in August! So I guess with me it's the steroid withdrawal.

You may also like...