Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2020

What tapering feels like.........

I’ve had PMR for nearly 7 years. In that period, I’ve tapered prednisone many times, occasionally reaching dosage of 2 mg. Each time, circumstances and...

I’ve had PMR for nearly 7 years. In that period, I’ve tapered prednisone many t...

Purplecrow

•4 years ago

11 Replies

Shingles jab

Thank you all for your replies about the 2 types of shingles jabs and for PMRpro's site redirection... mmmm... all responses indicate missing this generous...

Thank you all for your replies about the 2 types of shingles jabs and for PMRpro...

tgca

•4 years ago

3 Replies

Tapering

Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoulder discomfort. Tried to go to 4 and couldn't move without pain and so stiff....

Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoul...

barbthy

•4 years ago

3 Replies

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Has anybody here ever suffered with steroid induced myopathy

Just wandering if anybody suffered our is suffering with steroid induced myopathy. Because right now that is what I am suffering with and I really needs some...

Just wandering if anybody suffered our is suffering with steroid induced myopath...

susieq051

•4 years ago

7 Replies

Thank you for yesterday.

Thank you for your encouragement and kind words yesterday. I felt really bad after some not too good test results and you advice and kindness really helped....

Thank you for your encouragement and kind words yesterday. I felt really bad af...

LemonZest11

•4 years ago

6 Replies

Pain in my feet! Tapering? Osteopenia?

I've been tapering prednisone. Down to 16-now, and have new sharp pain in the top of one foot. The pain radiates through the toes and worsens with weight...

I've been tapering prednisone. Down to 16-now, and have new sharp pain in the to...

Blurry62

•4 years ago

15 Replies

I cured myself of PMR without Steriods.

THIS IS NOT A TREATMENT THAT PMR/GCAUk RECOMMENDS. Yellowbluebell, moderator I was diagnosed with PMR last Jan. 2019. I did not take any steroids but I did...

THIS IS NOT A TREATMENT THAT PMR/GCAUk RECOMMENDS. Yellowbluebell, moderator ...

Ibis10

•4 years ago

5 Replies

What are the expected effects of tapering?

I'm going at about half-speed today~~better than yesterday. After almost five months on high methylpred in December started tapering. I also do weekly...

I'm going at about half-speed today~~better than yesterday. After almost five m...

Grammy80

•4 years ago

19 Replies

Coated pred and shingles jab

Currently down my way in East Sussex, there seems to be a problem for the pharmacies to get hold of 1mg coated pred... is this happening countrywide? Also, my...

Currently down my way in East Sussex, there seems to be a problem for the pharma...

tgca

•4 years ago

11 Replies

I am new here, Jan. 22 2020 , diagnosed as having polymyaia rheumatica , called PMR

In Dec. it started in my shoulders, hippes and knees. pain all the time, night and day. On Jan 20th I could not walk. My wife helped me to see my P.D. Blood...

In Dec. it started in my shoulders, hippes and knees. pain all the time, night a...

Chevypickup

•4 years ago

33 Replies

Hi everyone

I used to be on the other pmr/gca site but it suddenly stopped coming through. Shame as I had been on it for 4 years! Down to 5.5mg..a struggle but don't like...

I used to be on the other pmr/gca site but it suddenly stopped coming through. S...

diana1998

•4 years ago

18 Replies

Has anyone had a tooth implant while on prednisone for PMR?

I have been on steroids for 3+ years and currently on 12mg. I am worried the pred. may interfere with the healing process. I have osteopenia and have...

I have been on steroids for 3+ years and currently on 12mg. I am worried the pre...

Linny3

•4 years ago

14 Replies

Is it PMR, ? level of GP follow up

Hello all. I am need of some more advice please. I was started on 15mg pred just over 2 weeks ago for probable pmr. My symptoms all fitted, but ESR & CRP were...

Hello all. I am need of some more advice please. I was started on 15mg pred just...

Lorraine786

•4 years ago

5 Replies

ZERO. with a million thanks

after 7.5 years i have at last arrived at zero, my first mention is to all the people who have given me help and advise..i cannot thank you enough, yor...

after 7.5 years i have at last arrived at zero, my first mention is to all t...

pollyg263

•4 years ago

53 Replies

Elevated CRP

Hi Everyone, I had a huge disappointment yesterday when I went to see my GP for blood test results. I was shocked to learn that my CRP has continued to rise...

Hi Everyone, I had a huge disappointment yesterday when I went to see my GP for ...

LemonZest11

•4 years ago

27 Replies

Broke my Hip almost 3 weeks ago

I broke my hip nearly 3 weeks ago but didn’t need a replacement hip I had metal and screws to repair it. I was already disabled with limited mobility before my...

I broke my hip nearly 3 weeks ago but didn’t need a replacement hip I had metal ...

Mandie4711

•4 years ago

9 Replies

Do I go up again?

Hi all been on 20mg pred for 5 days and thought I was doing well, but my headache and tenderness has come back so I have gone back up to 25mg with no relief, I...

Hi all been on 20mg pred for 5 days and thought I was doing well, but my headach...

Willow33

•4 years ago

15 Replies

Wish me luck everyone!!!

Hi I have had PMR for nearly six years and after a rocky road am down to 1/2mg successfully. I have been on that dose for a week now. I will stay on for...

Hi I have had PMR for nearly six years and after a rocky road am down to 1/2mg s...

Attic

•4 years ago

21 Replies

Prednisone, Post prandial hyperglycaemia and GCA

Hello, I have GCA and have been tapering the pred dose using DSNS methods as recommended by most on this group.I am at the moment alternating 7/8 mg of Pred....

Hello, I have GCA and have been tapering the pred dose using DSNS methods as rec...

Iwillwin123

•4 years ago

9 Replies

GCA symptoms back at two weeks on 60mg. Anyone else?

Wondering if anyone else has had to go above 60 mg to get their symptoms back under control. I was feeling great on 60 for about 8 days, but over the past few...

Wondering if anyone else has had to go above 60 mg to get their symptoms back un...

Alihughes25

•4 years ago

16 Replies

PMR

PMR is changing my life.... each day I wake up wondering when I’m going to feel like myself again. I’ve been struggling since September 1, 2019, which, I have...

PMR is changing my life.... each day I wake up wondering when I’m going to feel...

Hidden

•4 years ago

99 Replies

Will My GCA Come Back?

Hello I used to read a lot and write a bit on this site. It started in lte 2017 after I contracted GCA and lost the sight in my right eye - my favourite eye....

Hello I used to read a lot and write a bit on this site. It started in lte 2017...

arthur463

•4 years ago

28 Replies

Pain behind eye

Sharp shooting pain behind eye, no headache or other symptoms. Any ideas?

Constance13

•4 years ago

17 Replies

NEW GCA GUIDELINES 2020

Dear all, As you have already seen in a previous post, New GCA Guidelines were released this week. We are working hard to get the message out to all Health...

Dear all, As you have already seen in a previous post, New GCA Guidelines were ...

Hidden

•4 years ago

Be the first to reply

Unreasonable response to a reasonable adjustment

I'm experiencing issues with my employer in actioning a reasonable adjustment suggested by the DWP into place. OH, and management agree it is a reasonable...

I'm experiencing issues with my employer in actioning a reasonable adjustment su...

Daisy-daisy

•4 years ago

38 Replies

I'm new to this group, I have PMR/GCA, and I'm looking forward to learning from each other

Hello all, this is my 1st post and I just wanted to introduce myself. I was diagnosed with Polymyalgia and GCA in January 2019 after 2 months of 'flu-like'...

Hello all, this is my 1st post and I just wanted to introduce myself. I was diag...

Artnmusiclover

•4 years ago

9 Replies

Blood results

So I have now been on treatment for 2 weeks at 60mg of Prednisolone and my rheumatologist called to say that Im not responding to treatment as expected. The...

So I have now been on treatment for 2 weeks at 60mg of Prednisolone and my rheum...

Poppy1647

•4 years ago

5 Replies

Surgery successfully next step actemra

BCC surgery successfully completed. Dr says if no sign of infection in incision, in 1 more week I should start Actemra. There's alot of negative things about...

BCC surgery successfully completed. Dr says if no sign of infection in incision,...

Spanky2019

•4 years ago

13 Replies

Temporal arteritis

Could you tell me what signs and symptoms you had with Temporal arteritis? What is all the testing?

Could you tell me what signs and symptoms you had with Temporal arteritis? What ...

Purefaith

•4 years ago

45 Replies

PMR - yes or no

Hi everyone. This is my first post. I am 63 and live in west Midlands. I have had hip and lower back pain for some years. In June last year I started to...

Hi everyone. This is my first post. I am 63 and live in west Midlands. I have h...

Hidden

•4 years ago

25 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

What tapering feels like.........

Shingles jab

Tapering

Has anybody here ever suffered with steroid induced myopathy

Thank you for yesterday.

Pain in my feet! Tapering? Osteopenia?

I cured myself of PMR without Steriods.

What are the expected effects of tapering?

Coated pred and shingles jab

I am new here, Jan. 22 2020 , diagnosed as having polymyaia rheumatica , called PMR

Hi everyone

Has anyone had a tooth implant while on prednisone for PMR?

Is it PMR, ? level of GP follow up

ZERO. with a million thanks

Elevated CRP

Broke my Hip almost 3 weeks ago

Do I go up again?

Wish me luck everyone!!!

Prednisone, Post prandial hyperglycaemia and GCA

GCA symptoms back at two weeks on 60mg. Anyone else?

PMR

Will My GCA Come Back?

Pain behind eye

NEW GCA GUIDELINES 2020

Unreasonable response to a reasonable adjustment

I'm new to this group, I have PMR/GCA, and I'm looking forward to learning from each other

Blood results

Surgery successfully next step actemra

Temporal arteritis

PMR - yes or no

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