Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for January 2020

Hair loss and Viviscal

Hi, just wondering if anyone on here has tried any of the Viviscal range for their hairloss, my hair is falling out really badly on the pred, it's really...

Hi, just wondering if anyone on here has tried any of the Viviscal range for the...

Poppylop

•5 years ago

17 Replies

Methylprednisolone vs prednisone

Does anyone have experience with the IM methylprednisolone vs the daily prednisone in managing symptoms. My doctor had suggested considering this but I really...

Does anyone have experience with the IM methylprednisolone vs the daily predniso...

Isabel2

•5 years ago

6 Replies

Veins

Hi all , not a bad thing , but I’ve noticed the veins in the back of my hand appear more pronounced, was on 15 pred had a flare went up to 20, back down to 18...

Hi all , not a bad thing , but I’ve noticed the veins in the back of my hand app...

Shandkydd

•5 years ago

8 Replies

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GCA Guidelines January 2020: https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kez672/5714024

I'm adding this as a new post to make it easier to find. Just click on the blue text to get to the paper with all the details. About time too: three and half...

I'm adding this as a new post to make it easier to find. Just click on the blue ...

PMRpro

Ambassador•5 years ago

31 Replies

New GCA guidelines announced today

We're really pleased to let you all know that the new GCA guidelines were published today by the British Society for Rheumatology. As some of you may know we...

We're really pleased to let you all know that the new GCA guidelines were publis...

Fran_Benson

Partner•5 years ago

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What is CRP?

hello, I`m knew to the forum. I was diagnosed with GCA 18 months ago starting on 60mg prednisolone. Recently I got down to 3mg but after a blood test was...

hello, I`m knew to the forum. I was diagnosed with GCA 18 months ago starting o...

knitmaster

•5 years ago

8 Replies

New GCA guidelines U.K.

Updated GCA guidelines for U.K. - biologic drug there

Relative

•5 years ago

11 Replies

Diverticular Disease

I’m at a bit of a loss and having a chuckle at the same time. I had a couple of dramatic gastric episodes winding up in hospital. I recently had a CT scan to...

I’m at a bit of a loss and having a chuckle at the same time. I had a couple of ...

Thelmarina

•5 years ago

23 Replies

Prednisolone increase

return of symptoms not as severe as before, I am on 15mg Prednisolone daily do I need to increase my dose please. Your excellent advice is appreciated.

return of symptoms not as severe as before, I am on 15mg Prednisolone daily do I...

Hidden

•5 years ago

13 Replies

Pain free when tapering?

Hi, I'm hoping some of you can help me with an ongoing issue. I was diagnosed in September, and after two months of agony ended up in the ER. I was diagnosed...

Hi, I'm hoping some of you can help me with an ongoing issue. I was diagnosed i...

OpieD

•5 years ago

8 Replies

Having a tough time at present.

Hi all, really struggling at the moment, pains are back in legs and shoulders despite still being on 15mgs Pred. I had a virus a couple of weeks back and it...

Hi all, really struggling at the moment, pains are back in legs and shoulders de...

Rebel21

•5 years ago

18 Replies

Any Experience with Tocilizumab and GCA?

I am reading that it may reduce the likelihood of relapse and can reduce the long term dosage of Prednisone. Has anyone had experience with it, good or bad?

I am reading that it may reduce the likelihood of relapse and can reduce the lon...

Brofort

•5 years ago

16 Replies

IS GRIEF HEALING IN MOTION?

I found this short article/essay intriguing. It associates "grief,"with much more than the loss of a loved one. The author hypotheses that we can (and often...

I found this short article/essay intriguing. It associates "grief,"with much mor...

Hidden

•5 years ago

19 Replies

D3 3000-7000 IU???

Every research paper I’ve read to date indicate under most circumstances not exceeding 4000 IU Vitamin D per day and 6000 IU upper limit. [not posting...

Every research paper I’ve read to date indicate under most circumstances not exc...

Boss302Fan

•5 years ago

3 Replies

Can inflammation cause other problems later on?

This article posted on a Facebook group has scared the bejasus out of me. If PMR is a form of vascultis is it more likely for example I will get vascular...

This article posted on a Facebook group has scared the bejasus out of me. If PM...

tangocharlie

•5 years ago

53 Replies

Taper 0.5 mg by alternating dose

I feel a bit cheeky asking this when I know the DSNS taper is such a favourite on here. However, if I can manage without it, it will definitely save me getting...

I feel a bit cheeky asking this when I know the DSNS taper is such a favourite o...

Lovebikes

•5 years ago

10 Replies

Could reduction of pred cause this pain?

Have been on 4.5 mg from 5 mg for 6 weeks. Bad pain in upper back of left leg when walking last 2 weeks and pain in back when getting up or in and out of car....

Have been on 4.5 mg from 5 mg for 6 weeks. Bad pain in upper back of left leg wh...

skipspmr

•5 years ago

5 Replies

Exercise

Hi everyone, I find this site so useful. I was wondering what impact you think exercise has on PMR. I exercise every morning for about 40 minutes, gentle...

Hi everyone, I find this site so useful. I was wondering what impact you think e...

Elor

•5 years ago

18 Replies

Body and mind

An interesting article about Inflammatory illness, the brain and depression and potential for new approaches....

An interesting article about Inflammatory illness, the brain and depression and ...

Thelmarina

•5 years ago

8 Replies

What food to eat or avoid

Been recently diagnosed with pmr and on 20mg Pred which thankfully has kicked in.. My question is is there a dietary fact sheet not sure if I am eating the...

Been recently diagnosed with pmr and on 20mg Pred which thankfully has kicked in...

Hidden

•5 years ago

16 Replies

Methotrexate

My consultant wants me to try this to help with PMR. Has anyone out there taken this,what do you think. My sister in law is taking it for a different illness...

My consultant wants me to try this to help with PMR. Has anyone out there taken ...

Scotty7

•5 years ago

13 Replies

New aid ....to me!

Well, with your help, courageous Forum, I will start my 'scary' (to me) taper tomorrow. I'm on 24 methylpred and Actemra...and will drop off 8 mg for three...

Well, with your help, courageous Forum, I will start my 'scary' (to me) taper to...

Grammy80

•5 years ago

7 Replies

Encouragement

Hope this is alright to post this pic. Thought it applies to all of us. Old, Young, PMR, GCA etc.

Hope this is alright to post this pic. Thought it applies to all of us. Old,...

pugrescue

•5 years ago

28 Replies

New member saying hello

Hello, I’ve just joined the forum having been recently diagnosed with PR. I’m looking forward to finding out more about this strange illness that I’d never...

Hello, I’ve just joined the forum having been recently diagnosed with PR. I’m lo...

Dxn12

•5 years ago

12 Replies

What do you think?

I've had PMR for since March 2016. I've reduced my Pred gradually but I've never been pain free until October 2019. The whole month I felt great and was on 4...

I've had PMR for since March 2016. I've reduced my Pred gradually but I've never...

kulina

•5 years ago

10 Replies

Synacthen test

Hi all. It's been some time since I last posted but I have a question. I've had pmr & ? gca for nearly 7 years now, with fluctuating pred doses depending on...

Hi all. It's been some time since I last posted but I have a question. I've had...

annie_marie

•5 years ago

11 Replies

Lumber Decompression and PMR

Hi everyone. I'm looking for help connected to yesterday's post by Enfin headed PMR/PRED and in particular PMRpro's reply. In mid November I had a follow up...

Hi everyone. I'm looking for help connected to yesterday's post by Enfin headed ...

Johnday

•5 years ago

8 Replies

Missed Pred dose two days, ouch

I accidentally missed taking my 25mg of pred for about two days (forgot to put new bottle into my to take bag) and found the second day was horrible in pain in...

I accidentally missed taking my 25mg of pred for about two days (forgot to put n...

Trevgrrl

•5 years ago

5 Replies

Is PMR possible with low markers?

Today I got a call from the rhuematologist's office telling me that my bloodwork came back and inflammatory markers are down to normal....NOW~~~~ I will learn...

Today I got a call from the rhuematologist's office telling me that my bloodwork...

Grammy80

•5 years ago

8 Replies

No stamina when walking.

Since being diagnosed with PMR 11 weeks ago, (I’m taking 25 mg of prednisone) I find that walking just a short distance is so debilitating. My legs move as if...

Since being diagnosed with PMR 11 weeks ago, (I’m taking 25 mg of prednisone) I ...

Denis61

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Hair loss and Viviscal

Methylprednisolone vs prednisone

Veins

GCA Guidelines January 2020: https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kez672/5714024

New GCA guidelines announced today

What is CRP?

New GCA guidelines U.K.

Diverticular Disease

Prednisolone increase

Pain free when tapering?

Having a tough time at present.

Any Experience with Tocilizumab and GCA?

IS GRIEF HEALING IN MOTION?

D3 3000-7000 IU???

Can inflammation cause other problems later on?

Taper 0.5 mg by alternating dose

Could reduction of pred cause this pain?

Exercise

Body and mind

What food to eat or avoid

Methotrexate

New aid ....to me!

Encouragement

New member saying hello

What do you think?

Synacthen test

Lumber Decompression and PMR

Missed Pred dose two days, ouch

Is PMR possible with low markers?

No stamina when walking.

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