Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for January 2020

Withdrawal symptoms / Flare.

From August / November I was reducing my Prednisilone by 1mg every two weeks with seemingly no problems, getting down to 13mgs, in January I started on 12mgs...

From August / November I was reducing my Prednisilone by 1mg every two weeks wit...

Whippetygirl

•4 years ago

25 Replies

Hydrotherapy.

Morning all, Last Thursday had my first Hyrdro session, it only lasted about 20 minutes, and I loved being in the water, however, PMR pains in arms shoulders...

Morning all, Last Thursday had my first Hyrdro session, it only lasted about 20 ...

Freshmimt

•4 years ago

37 Replies

Alendronic Acid

Good morning! I have been taking Alendronic Acid once a week for the past 8 weeks. Last night 1 side of a tooth crown broke off (it has been cracked for the...

Good morning! I have been taking Alendronic Acid once a week for the past 8 wee...

kalimche

•4 years ago

16 Replies

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Am I having a relapse?

Hi I was diagnosed in April 18 and put on 15mg of Pred which took effect within and hour I have been slowly tapering without problem except for mild stiffness...

Hi I was diagnosed in April 18 and put on 15mg of Pred which took effect within ...

JanetT58

•4 years ago

17 Replies

A Little help please

Hi, I was diagnosed with PMR four and a half years ago. Started on 15mg of pred. Have never seen a rheumatologist, as my surgery does not send anyone with PMR...

Hi, I was diagnosed with PMR four and a half years ago. Started on 15mg of pred....

Digon7215

•4 years ago

12 Replies

One week in

saw my Doc. today, my ESR is at 17 last week it was at 80 . Doc making an appoinment to go and see Rheumatologist. May take a few month to see one. Down to...

saw my Doc. today, my ESR is at 17 last week it was at 80 . Doc making an appoi...

Chevypickup

•4 years ago

2 Replies

Shingles it is.....

I'm on the anti-viral medication now, 1 gram 3x a day. The opthamologist said to keep an 'eye' on my eye....any sharp pain beyond what I have now....go to the...

I'm on the anti-viral medication now, 1 gram 3x a day. The opthamologist said t...

Grammy80

•4 years ago

32 Replies

Tiredness & Depression

I'm 82 years old, and new here. I experienced neck, jaw pain (I could only swallow liquids), thigh pain when walking, and double vision. At the beginning of...

I'm 82 years old, and new here. I experienced neck, jaw pain (I could only swall...

VicSat

•4 years ago

18 Replies

Rheumy's concern about infection?

GCA and PMR diagnosed three months ago. Now down to 25 mg pred. and the usual calcium and suppliments, plus a wide spectrum antibiotic since the start. At my...

GCA and PMR diagnosed three months ago. Now down to 25 mg pred. and the usual ca...

LIVEORDIEHEREIAM

•4 years ago

16 Replies

When does taper start

Hi all, first post here after diagnosis in early January at age 46. I have rheumatology appointment on Thursday so will be taking medical advice which is...

Hi all, first post here after diagnosis in early January at age 46. I have rheu...

Coffeebeans

•4 years ago

18 Replies

Wireless Headphones

Could anyone recommend a brand of wireless headphones that are lightweight and not tight to the ears/head? Do not wish to incur any head pain /headaches! 🌸

Could anyone recommend a brand of wireless headphones that are lightweight and n...

Cyclegirl54

•4 years ago

10 Replies

Hair issues

I've seen post about hair thinning and other hair problems which cause us all distress adding to our other problems related to Pred and PMR. I've been on pred...

I've seen post about hair thinning and other hair problems which cause us all di...

Blues1

•4 years ago

24 Replies

Belated Bonne année à tous !

Hello PMR peeps. Hope life is better for you than it has been in previous months and hello to all the new people who would rather not be members of this...

Hello PMR peeps. Hope life is better for you than it has been in previous mont...

IdasMum

•4 years ago

21 Replies

How long to stay on a double dose to control a PMR flare?

How long to stay on a double dose to control a flare? Flared around 10 days ago on arriving at 4.5mg on a DSNS taper - 6+1 days; 5+1 days; etc. Doubled dose...

How long to stay on a double dose to control a flare? Flared around 10 days ago ...

ignatz

•4 years ago

15 Replies

Oh, no! What’s next?

2 1/2 years into my PMR journey and I’m down to 6mg prednisone. I admit I’ve gained weight and I’m also going to admit for the first time, to anyone that doing...

2 1/2 years into my PMR journey and I’m down to 6mg prednisone. I admit I’ve gai...

Lanakay

•4 years ago

17 Replies

Shingles.....or not? On Watch~!

I had mentioned that since my last drop in my taper....I hadn't felt so great. Yesterday was better than Saturday but still facial and head pain on the right...

I had mentioned that since my last drop in my taper....I hadn't felt so great. ...

Grammy80

•4 years ago

27 Replies

To take Alendronic Acid or not

My GP has contacted me and wants me to commence Alendronic acid for steroid induced osteoporosis. I asked him about a bone scan but he said no need as I need...

My GP has contacted me and wants me to commence Alendronic acid for steroid indu...

Rebel21

•4 years ago

24 Replies

Desperate Sufferer

Hi lm a newbie as of this pm I’m hoping for advice with my PMR which l have had for about 10 years 8 year diagnosis. I’m 74 yrs so had this since I was 64 When...

Hi lm a newbie as of this pm I’m hoping for advice with my PMR which l have had ...

csargeant

•4 years ago

19 Replies

TO CHEER YOU UP

Several people have said how alone they feel with PMR/GCA. I thought this may help you to feel a little wanted.

Several people have said how alone they feel with PMR/GCA. I thought this may he...

piglette

•4 years ago

13 Replies

Need some hugs again, please

My PMR and my Polyarthritis have flared together - I am in SUCH pain!😫 I feel as though I'm at deaths door (not like me). Have upped the pred and taken more...

My PMR and my Polyarthritis have flared together - I am in SUCH pain!😫 I feel ...

Constance13

•4 years ago

58 Replies

No rheumatologist at Macclesfield hospital

Hello again I'm now overdue my annual checkup at hospital by 11 months. On enquiry I'm told the rheumatologist has been off sick for months, they are trying to...

Hello again I'm now overdue my annual checkup at hospital by 11 months. On enqui...

Jancorb

•4 years ago

18 Replies

High cholesterol , advice please

I have familial hypercholesterolemia, for years I've been able to control my reading at about 5.2, it's now gone to 7.3, too high. My doctor tells me my old...

I have familial hypercholesterolemia, for years I've been able to control my rea...

Jancorb

•4 years ago

13 Replies

Tapering question/ PMR

Well November 29, 2019 made it down to 4 mg of prednisone and all was okay from November 29 to January 15, 2020 at that point dropped down to 3 mg. (Rheumy had...

Well November 29, 2019 made it down to 4 mg of prednisone and all was okay from ...

Musiclady18

•4 years ago

25 Replies

Knee replacement surgery

Have finally gotten down to 2mg prednisone but need knee replacement. What are the odds I will flare?

Have finally gotten down to 2mg prednisone but need knee replacement. What are ...

CEAGLE

•4 years ago

13 Replies

Thanks for replies

Thanks to all for replies. I have an appointment on Friday week and will make notes of how I feel. Regarding today I have no energy and feel somewhat light...

Thanks to all for replies. I have an appointment on Friday week and will make n...

Mischevious

•4 years ago

Be the first to reply

Two things maybe three ....

First I have read a few places where back pain was really bad .. well I have a spot mid spine where it spasms and it so painful. I bought a big handheld...

First I have read a few places where back pain was really bad .. well I have a ...

Hidden

•4 years ago

20 Replies

PMR discussion

Recently diagnosed with PMR. Anyone have same condition if do how does it affect you.

Recently diagnosed with PMR. Anyone have same condition if do how does it affect...

Ladymax123

•4 years ago

24 Replies

Advice please

Further update on my situation, as spoken of previously plus a request for advice please if anyone has relevant experience. Had a biopsy on Monday, no result...

Further update on my situation, as spoken of previously plus a request for advic...

Mischevious

•4 years ago

5 Replies

New to PMR and all the attendant issues

I’ve just joined and having a look at lots of posts. Seems like an amazing group 😃👍. I did see a post about turmeric but didn’t read it and. Is I can t find...

I’ve just joined and having a look at lots of posts. Seems like an amazing grou...

Lookingforideas

•4 years ago

2 Replies

Understanding PMR

Hi All, new to this site but have had PMR for 2 years. My problem is that people don't understand because I look 'OKish' there is little understanding that I...

Hi All, new to this site but have had PMR for 2 years. My problem is that peopl...

JeanC3

•4 years ago

19 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2020

Withdrawal symptoms / Flare.

Hydrotherapy.

Alendronic Acid

Am I having a relapse?

A Little help please

One week in

Shingles it is.....

Tiredness & Depression

Rheumy's concern about infection?

When does taper start

Wireless Headphones

Hair issues

Belated Bonne année à tous !

How long to stay on a double dose to control a PMR flare?

Oh, no! What’s next?

Shingles.....or not? On Watch~!

To take Alendronic Acid or not

Desperate Sufferer

TO CHEER YOU UP

Need some hugs again, please

No rheumatologist at Macclesfield hospital

High cholesterol , advice please

Tapering question/ PMR

Knee replacement surgery

Thanks for replies

Two things maybe three ....

PMR discussion

Advice please

New to PMR and all the attendant issues

Understanding PMR

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