Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2019

Hope

I have just got back from a two night three day trip to Madrid with my girlfriends. On one day alone I walked five miles and our apartment had five flights of...

I have just got back from a two night three day trip to Madrid with my girlfrien...

GlynisE

•4 years ago

15 Replies

HELP

I need some advice. I have tapered to 4mg of prednisone for almost 3 weeks. In a day or two I am going to the gulf coast for a week. My problem is that for...

I need some advice. I have tapered to 4mg of prednisone for almost 3 weeks. In...

Noosat

•4 years ago

8 Replies

Concerned about pred level

Had PMR 4 1/2 years, got down to 1mg every other day. Approx 11 weeks ago woke in the night with really sore base of skull, in the morning very painful to turn...

Had PMR 4 1/2 years, got down to 1mg every other day. Approx 11 weeks ago woke i...

Fimckenz

•4 years ago

11 Replies

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Reducing

Looking for help reduced from2.5 to 2mg started to get slight rear rib cage and thigh pain stayed on 2mg for 4 weeks then reduced...

Looking for help reduced from2.5 to 2mg started to ge...

Jizer

•4 years ago

16 Replies

Why????

I see that replies to my recent post “disappointed” have been turned off. Why?? there was nothing wrong with it and I would like to hear from other members...

I see that replies to my recent post “disappointed” have been turned off. Why?? ...

Manchild

•4 years ago

27 Replies

Eye Trouble

I have a chalazion or inflammatory bump on the inside of my bottom right eyelid, you can see it and it makes my vision blurry in that eye only. My prednisone...

I have a chalazion or inflammatory bump on the inside of my bottom right eyelid,...

Boozsa

•4 years ago

25 Replies

PMR??

Any advice please? I have gone from having right shoulder and arm pain and being told by my GP (after CRP and ESR blood tests that were “satisfactory” ) that...

Any advice please? I have gone from having right shoulder and arm pain and bei...

HJC321

•4 years ago

17 Replies

Why language matters

This, I believe is a relevant post to us all. I’m aware of the threads in response to Manchilds post. I took it in the spirit I believed it to be given that...

This, I believe is a relevant post to us all. I’m aware of the threads in respo...

Daisyfield

•4 years ago

11 Replies

Vitamins /Supplements & PMR

Sorry this is verbose... My head is spinning reading the research and contradictory findings it’s enough to drive one mad. However below is what I take now to...

Sorry this is verbose... My head is spinning reading the research and contradict...

Boss302Fan

•4 years ago

18 Replies

Vit D dosage

Hi - I react badly to Adcal so I’m self dosing with vitamin D. I take 1000 iu plus 200 iu in my daily vitamin pill. Is that ok or too much? Advice is so...

Hi - I react badly to Adcal so I’m self dosing with vitamin D. I take 1000 iu pl...

Thelmarina

•4 years ago

5 Replies

Sexism

Quite a strong reaction to the MCP comment, which was possibly careless rather than deliberate. Nevertheless I am gonna make the deliberate sexist remark that...

Quite a strong reaction to the MCP comment, which was possibly careless rather t...

Mogberi

•4 years ago

22 Replies

Ever go away

Hi I have had PMR 13 months, does all the pain ever go away? I have not had one day without pain yet, I am just 50 but feel a lot older most of the time. I...

Hi I have had PMR 13 months, does all the pain ever go away? I have not had one ...

carolBF

•4 years ago

24 Replies

Disappointed

After reviewing all of the replies to my original post, I must say I am very disappointed. I think I should be entitled to ask a simple question to my fellow...

After reviewing all of the replies to my original post, I must say I am very dis...

Manchild

•4 years ago

3 Replies

For men only, again

So, I appreciate all of you ladies on this forum, but would like to hear more from men afflicted with this disease. I would like to know how long your...

So, I appreciate all of you ladies on this forum, but would like to hear more fr...

Manchild

•4 years ago

41 Replies

Is everyone worse in the morning as compared to evening

In reading about PMR I read that others are worse in the morning, I am the opposite and am at my worst when I first go to bed, usually takes me an hour or two...

In reading about PMR I read that others are worse in the morning, I am the oppos...

Susquin

•4 years ago

14 Replies

New moderator

We are very pleased to announce that poopadoops who you all know as an ambassador has now become a moderator. She has been invaluable as an ambassador and we...

We are very pleased to announce that poopadoops who you all know as an ambassado...

Yellowbluebell

•4 years ago

168 Replies

Just diagnosed

Hello world . Just been told I have PMR . The pain on a night is horrific I use to think I had a high pain threshold un till last two months . Just started...

Hello world . Just been told I have PMR . The pain on a night is horrific I use...

Hageman

•4 years ago

55 Replies

Foot massager

Someone on this site mentioned getting a Shiatsu foot massager. My feet have been a major problem with PMR. I decided that a massager might help. Well I...

Someone on this site mentioned getting a Shiatsu foot massager. My feet have be...

Gary1310

•4 years ago

2 Replies

Latest Methotrexate Research

https://www.medpagetoday.com/meetingcoverage/acrvideopearls/83412

JanetGarrettN

•4 years ago

23 Replies

Disappointed...

Had hoped my GP would be okay with me increasing my prednisolone from 15mg to 17.5mg - was started on 10mg in June after diagnosis. GP increased to 15mg to...

Had hoped my GP would be okay with me increasing my prednisolone from 15mg to 17...

Spittal9

•4 years ago

38 Replies

Head pain

Hi all For past 4 weeks I have had niggly head pain from back of neck radiating up into my head on one side,not frontal headache-paracetamol relieves it v...

Hi all For past 4 weeks I have had niggly head pain from back of neck radiating ...

bakingD

•4 years ago

9 Replies

Problems began after an implant..any similar experiences.

I am digging deep for a reason for inflammation in my body...it has to have a causation..I am researching EVERYTHING..this seemed to begin after dental...

I am digging deep for a reason for inflammation in my body...it has to have a c...

georgedog

•4 years ago

25 Replies

Not really PMR - although it hasn't done my PMR a lot of good!

I know a lot of you envy my living in Italy. Last week we had some very un-Italian weather, we had no electric for 30 hours - others in our village were cut...

I know a lot of you envy my living in Italy. Last week we had some very un-Itali...

PMRpro

Ambassador•4 years ago

45 Replies

On going investigation

Hi there I wrote a post a week ago or so my husband has suspected PMR and has had his prednisone increased to 30mg a day which is doing the trick he has no...

Hi there I wrote a post a week ago or so my husband has suspected PMR and has h...

alysonkerry-

•4 years ago

12 Replies

Australian Class Action against Johnson & Johnson re Vaginal mesh has been 'successful'

Because I know this will be of some interest to a few members of this forum I am posting this link here about the SUCCESSFUL class action of some Australian...

Because I know this will be of some interest to a few members of this forum I am...

Rimmy

•4 years ago

15 Replies

What do we believe is due to PMR that doctors tell us "isn't PMR"?

This is in response to a question from a rheumy. Off the top of my head I can think of: Hand and foot pain of various sorts and swollen hands or feet PMR only...

This is in response to a question from a rheumy. Off the top of my head I can th...

PMRpro

Ambassador•4 years ago

125 Replies

Perspectives and unmet needs in polymyalgia rheumatica - a basic framework for new approaches

https://www.reumatismo.org/index.php/reuma/article/view/1070/777 Prof Sarah Mackie sent me this link a few days ago - I thought others might like to read it...

https://www.reumatismo.org/index.php/reuma/article/view/1070/777 Prof Sarah Mack...

PMRpro

Ambassador•4 years ago

13 Replies

HELP!!!

Moderators, anyone - is there any way I can remove the photo I sent to Scats a few days ago? I am so sorry to have forced this photo on so many on the forum....

Moderators, anyone - is there any way I can remove the photo I sent to Scats a f...

Constance13

•4 years ago

47 Replies

Sorry did not get back sooner

To all of you who responded to my actemera inquiry I Thank you for telling me what to expect. But to my surprise Rheumatologist did not put me on actemera....

To all of you who responded to my actemera inquiry I Thank you for telling me wh...

susieq051

•4 years ago

6 Replies

Spoke too soon!

After the family wedding - and being enthusiastic about how I had managed the festivities - something has hit me and I would welcome advice! Am at the end of a...

After the family wedding - and being enthusiastic about how I had managed the fe...

Whatgrange

•4 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Hope

HELP

Concerned about pred level

Reducing

Why????

Eye Trouble

PMR??

Why language matters

Vitamins /Supplements & PMR

Vit D dosage

Sexism

Ever go away

Disappointed

For men only, again

Is everyone worse in the morning as compared to evening

New moderator

Just diagnosed

Foot massager

Latest Methotrexate Research

Disappointed...

Head pain

Problems began after an implant..any similar experiences.

Not really PMR - although it hasn't done my PMR a lot of good!

On going investigation

Australian Class Action against Johnson & Johnson re Vaginal mesh has been 'successful'

What do we believe is due to PMR that doctors tell us "isn't PMR"?

Perspectives and unmet needs in polymyalgia rheumatica - a basic framework for new approaches

HELP!!!

Sorry did not get back sooner

Spoke too soon!

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