Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,293 members • 38,017 posts

All posts for November 2019

Thanks for now

I have been referred to the neurologist at the hospital as there seems to be consensus among doctors (third opinion) and my physiotherapist that it must be...

I have been referred to the neurologist at the hospital as there seems to be con...

krillemy

•4 years ago

13 Replies

WOW!!

Just realised, after dropping from 15mg to 14.5mg two days ago, that my pulsile tinnitus has gone. My eyelashes are going straight again and my eyebrows...

Just realised, after dropping from 15mg to 14.5mg two days ago, that my pulsile ...

JanboC

•4 years ago

46 Replies

New to Gca

Hi I was diagnosed 4 weeks ago and have been on 60mg of prednisolone since, but the last couple of days my tongue has been painful. Any tips on what to do...

Hi I was diagnosed 4 weeks ago and have been on 60mg of prednisolone since, but ...

Hidden

•4 years ago

15 Replies

Want to take advantage of all our features? Just log in!

Strange things happen! Calling on those with knowledge of heart issues.

Well, well, well. Had racing heart rate, palpitations resulting in visit to Resus early October to stabilise. Diagnosed with Atrial flutter (different to...

Well, well, well. Had racing heart rate, palpitations resulting in visit to Resu...

Marilyn1959

•4 years ago

8 Replies

Relapse

I have suffered a relapse of PMR, I could hardly move, difficulty getting out the car, getting off the sofa, dressing even eating. After months of worsening...

I have suffered a relapse of PMR, I could hardly move, difficulty getting out th...

Travs

•4 years ago

35 Replies

PCP Pneumonia Prophylaxis

I went to my first rheumatologist visit on November 21. Had been on 60 mg prednisone since October 15. She told me I now have essentially no working immune...

I went to my first rheumatologist visit on November 21. Had been on 60 mg predni...

cmgarner

•4 years ago

10 Replies

How to be Sick: An Inspired Guide for the Chronically Ill and Their Caregivers –Toni Bernhard

Just received this book today.... "Toni Bernhard got sick and, to her and her partner's bewilderment, stayed that way. As they faced the confusion,...

Just received this book today.... "Toni Bernhard got sick and, to her and her p...

Hidden

•4 years ago

9 Replies

PMR 3.5 years & holding

Again, I value this site soooo much!! I don't post much-it's been a year! But I read every single day & it helps me to have your support/advice. Last November...

Again, I value this site soooo much!! I don't post much-it's been a year! But I ...

mo3go7

•4 years ago

14 Replies

muscle weakness

As a sufferer from GCA/PMR for nearly 4years currently on 5mgs pred, I have had severe muscle weakness for a long time, Is it due to the illness or the years...

As a sufferer from GCA/PMR for nearly 4years currently on 5mgs pred, I have had ...

astley123

•4 years ago

16 Replies

GCA concern

Was diagnosed with PMR in April - started on 15 mg Prednisolone and slowly tapered till I got to 11mg and PMR symptoms started to creep back in so back to 12...

Was diagnosed with PMR in April - started on 15 mg Prednisolone and slowly taper...

jaycee444

•4 years ago

10 Replies

Here We Are Again!

Hello Forum members, I’m new to this Forum, but not new to PMR. My state-of-play is that I was diagnosed with PMR back in Feb 2015, when I started with Pred....

Hello Forum members, I’m new to this Forum, but not new to PMR. My state-of-play...

PredAgainJersey

•4 years ago

33 Replies

Steroids and bipolar disease

Hi, does anyone have bipolar 2 and pmr and on steroids??? I have been on 15 mg prednisolone for 1month and esr and crp are now normal. I’m hoping my gp will...

Hi, does anyone have bipolar 2 and pmr and on steroids??? I have been on 15 mg p...

Bubble56

•4 years ago

23 Replies

Blue badge success!

Thanks to the encouragement i got from this forum, i applied for a blue badge and today heard that i had got one! It may have been because I also have a hip...

Thanks to the encouragement i got from this forum, i applied for a blue badge an...

Trulyscrumpious

•4 years ago

16 Replies

Actemra Trial Update

This is an interesting article regarding the 2 year follow up of the original Actemra trial. https://apple.news/APxvd6gUCSmeN97URVzEqVg

This is an interesting article regarding the 2 year follow up of the original Ac...

cmgarner

•4 years ago

21 Replies

Vit K2 - mk7

Hi all Just reading an interesting post from Nanedake in Bone Health re a study about Vit K2 - km 7...

Hi all Just reading an interesting post from Nanedake in Bone Health re a study ...

Chespoll

•4 years ago

31 Replies

Does Anyone use CBD/THC for PMR

Wondering if anyone else has gone along this journey, diagnosed with PMR August 2019 and put on prednsione, I have since, with great pain, got off of...

Wondering if anyone else has gone along this journey, diagnosed with PMR August ...

remission

•4 years ago

2 Replies

7.5mg might not be enough

It's almost 4 weeks since I dropped to 7.5 x 7 from 7.5 x 4. I posted a few weeks back about aches and pains and can't find the post. I am more and more...

It's almost 4 weeks since I dropped to 7.5 x 7 from 7.5 x 4. I posted a few week...

IdasMum

•4 years ago

19 Replies

Is Diarrhea related to, ie triggered by PMR?

I am 80 and have PMR for the 2nd time. I am down to 7 mg of Pred deceasing 1 ever 4 weeks from 15. I am fortunate that I have not had any pain since going...

I am 80 and have PMR for the 2nd time. I am down to 7 mg of Pred deceasing 1 ev...

Dawnint

•4 years ago

8 Replies

When to call Dr??

With gca & other health issues it seems there is always a new pain or symptom. My previous pp couldn't have been better getting me into office same day usually...

With gca & other health issues it seems there is always a new pain or symptom. M...

Spanky2019

•4 years ago

9 Replies

A Book Review - "Brave New Medicine: A Doctor’s Unconventional Path to Healing Her Autoimmune Illness"

The views and opinions expressed below belong solely to me; and do not represent any other people, institutions or organisations that I may or may not be...

The views and opinions expressed below belong solely to me; and do not represent...

Hidden

•4 years ago

33 Replies

GCA tapering

I have been nicely tapering my ored down to 4mg keeping to my rheumatologist schedule . Have been until now feeling much better as a result. However, my...

I have been nicely tapering my ored down to 4mg keeping to my rheumatologist sch...

GracieSimp

•4 years ago

6 Replies

Two weeks in

Hi All I’ve been on 50mg Pred for 13 days now after a week of pain in temples. The pain wasn’t really bad more of a dull ache. I have my biopsy on 4th Dec...

Hi All I’ve been on 50mg Pred for 13 days now after a week of pain in temples. ...

Jc554

•4 years ago

25 Replies

Depo-Medrone injections

Does anyone have advice on the best way to taper down Depo-Medrone injections. Since last February I have been on 120mg starting on once a month, then every...

Does anyone have advice on the best way to taper down Depo-Medrone injections. ...

Granny72

•4 years ago

63 Replies

Getting off of Prednisone. Anyone else out there trying THC/CBD

Wondering if anyone else has gone along this journey, diagnosed with PMR August 2019 and put on prednsione, I have since, with great pain, got off of...

Wondering if anyone else has gone along this journey, diagnosed with PMR August ...

remission

•4 years ago

13 Replies

Thank you PMR forum!

Just wanted to say after a year of battle with my Rheumatologist who kept wanting to put me on Methotrexate he is now so v happy am on 4.5 mg Pred, to stay on...

Just wanted to say after a year of battle with my Rheumatologist who kept wantin...

bakingD

•4 years ago

17 Replies

Tapering

When do you feel any side effects from a lower dose ?? Day 3 following a 1.5 drop to 16 mg , have been okay days 1and2 but today legs wobbly, heavier feeling...

When do you feel any side effects from a lower dose ?? Day 3 following a 1.5 dro...

Devoid

•4 years ago

7 Replies

Chronic painful armpit pain and tenderness along with PMR shoulder and upper arm pain

Good morning, I’m wondering if anyone here has had chronic arm pit pain as well as the lymph nodes under the ears? I also have Fibro/ Chronic Fatigue Syndrome,...

Good morning, I’m wondering if anyone here has had chronic arm pit pain as well ...

bunch1974

•4 years ago

9 Replies

Thin skin ... literally, haha.

I have noticed recently (after 12 months of pred), that my arms are soooo wrinkled. I am not a big woman so not a lot of muscle/fat to fill the skin out. Is...

I have noticed recently (after 12 months of pred), that my arms are soooo wrinkl...

LemonZest11

•4 years ago

65 Replies

Energy - Not!

Can someone lend me some energy (and give me a couple of days pain free) please. It's beautiful Autumn weather here and I can't budge. Dizzy too! The joys of...

Can someone lend me some energy (and give me a couple of days pain free) please....

Constance13

•4 years ago

32 Replies

Saying "No - I can't do that" when you feel exhausted

There is lots of info around the subject of chronic forms of fatigue which unfortunately accompany many illnesses - especially AI ones like PMR/GCA - as you...

There is lots of info around the subject of chronic forms of fatigue which unfor...

Rimmy

•4 years ago

46 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2019

Thanks for now

WOW!!

New to Gca

Strange things happen! Calling on those with knowledge of heart issues.

Relapse

PCP Pneumonia Prophylaxis

How to be Sick: An Inspired Guide for the Chronically Ill and Their Caregivers –Toni Bernhard

PMR 3.5 years & holding

muscle weakness

GCA concern

Here We Are Again!

Steroids and bipolar disease

Blue badge success!

Actemra Trial Update

Vit K2 - mk7

Does Anyone use CBD/THC for PMR

7.5mg might not be enough

Is Diarrhea related to, ie triggered by PMR?

When to call Dr??

A Book Review - "Brave New Medicine: A Doctor’s Unconventional Path to Healing Her Autoimmune Illness"

GCA tapering

Two weeks in

Depo-Medrone injections

Getting off of Prednisone. Anyone else out there trying THC/CBD

Thank you PMR forum!

Tapering

Chronic painful armpit pain and tenderness along with PMR shoulder and upper arm pain

Thin skin ... literally, haha.

Energy - Not!

Saying "No - I can't do that" when you feel exhausted

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive