Disappointed: After reviewing all of the replies to... - PMRGCAuk

PMRGCAuk

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Disappointed

Manchild profile image
3 Replies

After reviewing all of the replies to my original post, I must say I am very disappointed. I think I should be entitled to ask a simple question to my fellow male suffers without being lectured to. The question did not require nor did it diserve multiple opinion posts that were mostly not relevant to my initial inquiry.

Really, people, we all suffer together. I think it would help greatly if we all “lightened up” a little and did not over react or take things that may have been said personally.

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Manchild profile image
Manchild
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3 Replies
miss-philosopher profile image
miss-philosopher

I can understand your disappointment. The written words often sound more harsh than the spoken. But that goes both ways. As you say we all suffer together. For some you probably came across as a bit chauvinistic. You may have been misunderstood. We must forgive each other, especially because we are all sick.

ATB.

Stella

Manchild, in my mind there is no problem with the general idea behind the original post. However, the first response from a man was not within the spirit and guidelines of HU and PMRGCAUK. It is not appropriate for you to tell us to lighten up when faced with such insulting gender stereotypes. That is not acceptable and in terms of "jokes"- context has to be taken into account. Replies to the thread were turned off to stop further deterioration. It is not helpful to restart the animosity, so can we please put it to bed. Hopefully by moving on a less divisive atmosphere might prevail and I hope that more men respond by posting about problems or strategies for dealing with PMR GCA. You don't have to say "for men only" ... That phrase is rich with negative cultural, historical and social meaning.

We welcome all contributions from Members..women or men and EVERYONE has a right to post on a thread IF those comments are within guidelines, threads are not gender exclusive. Pmrgca UK is a charity and not a blog where anything goes. An ambassador or moderator will generally answer a post first as we made a commitment to ensuring everyone gets a response if we are around. Without the "joke" I doubt many, if any of would have turned a hair about your post or answered if it didn't interest us as a topic.

Everyone with pmr and/or gca is struggling with their own journey through a chronic illness; an illness impacted by stress.

SheffieldJane profile image
SheffieldJane

I think it is useful for men to welcome other men when they first post. This has been an effective strategy in the past. Perhaps women can be more mindful of the gender make-up of our forum when we post?

I certainly hope that the previous thread has not discouraged anyone, irrespective of gender.

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