Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for September 2019

Intermittent use of Prednisone

Has anybody had any experience of taking 10days of Pred then a rest for say 2 weeks? I took it for 2 weeks so as to go on holiday and stopped it immediately...

Has anybody had any experience of taking 10days of Pred then a rest for say 2 we...

Tpots

•5 years ago

9 Replies

Third time in seven years diagnosed with PMR

Really truly horribly let down and disappointed as I was about to enjoy exercise again but realise that prednisolone is again my fate for the next couple of...

Really truly horribly let down and disappointed as I was about to enjoy exercise...

janimaths

•5 years ago

21 Replies

49 and diagnosed with PMR. Cannot take Pred.

Hello everyone. I’m glad to have found you all! The rheumatologist and GP’s don’t know what to make of me as I tick all boxes for PMR except I am 49 years...

Hello everyone. I’m glad to have found you all! The rheumatologist and GP’s do...

Tpots

•5 years ago

11 Replies

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Sweating

Does Pred make you sweat? I also have hyperhidrosis, excessive sweating of the scalp, and have found since being diagnosed with PMR in February 19 and being on...

Does Pred make you sweat? I also have hyperhidrosis, excessive sweating of the s...

sweathead

•5 years ago

3 Replies

I've developed a huge double chin on Pred

Is this the normal place to gain weight? Anyone know how to get rid of it?

sweathead

•5 years ago

3 Replies

So my hip pain seems to be artheritis.🙁 Should I blame Pred?

I have had this hip pain since april and got an xray a couple of weeks ago. My GP phoned me to tell me that it looks like I've got artheritis. I am 49. My...

I have had this hip pain since april and got an xray a couple of weeks ago. My G...

Pirnilla

•5 years ago

21 Replies

Gifford43

Hey! Thanks for telling me to get a CRP-HS test, due to my regular CRP test always coming back "normal". Lucky I had a pre-GCA number to compare to! It's 1.2...

Hey! Thanks for telling me to get a CRP-HS test, due to my regular CRP test alwa...

Hidden

•5 years ago

1 Reply

Pain Killers Advice Needed

Have raging tooth ache. (Sods law it always happens on a weekend!) Paracetemol not touching it. Is it ok to take effervescent Co Codomol with pred?

Have raging tooth ache. (Sods law it always happens on a weekend!) Paracetemol n...

Marilyn1959

•5 years ago

14 Replies

Difficult Days

Just found this little gem on Facebook. I am having some pretty difficult days at present but I know that I am not alone. This really cheered me up. 💕 Today...

Just found this little gem on Facebook. I am having some pretty difficult days a...

KrisAnne51

•5 years ago

20 Replies

5:2 Fast Diet

Has anyone knowledge of using the Michael Mosley 5:2 fast diet while on Pred long term with PMR?

Has anyone knowledge of using the Michael Mosley 5:2 fast diet while on Pred lon...

rick518

•5 years ago

8 Replies

Prednisolone

Hi everyone am new to this too. I self diagnosed PMR and it was confirmed by my rheumatologist who put me on a high dose 30 mg Pred for 6 weeks, 15 mg fir 4...

Hi everyone am new to this too. I self diagnosed PMR and it was confirmed by my ...

Gumnut

•5 years ago

71 Replies

What do you think?

Hi everyone, I had a Bone scan yesterday and commented that my Dr put me on Alendronic tablets back in August and although I questioned her at the time she...

Hi everyone, I had a Bone scan yesterday and commented that my Dr put me on Ale...

Fredddie

•5 years ago

41 Replies

wonder if CRP 23 on prednisone 15 plus Leflumonide

So have appt. this week w rheumatologist. My CRP is back to 23 and I have the feeling PMR is lurking out there somewhere, can't put my finger on it. Should...

So have appt. this week w rheumatologist. My CRP is back to 23 and I have the ...

composition

•5 years ago

3 Replies

AF

Has anyone any experience of an AF episode perhaps being triggered by their steroid reduction? Just wondered ! Thank you, all you wise people!

Has anyone any experience of an AF episode perhaps being triggered by their ster...

Whatgrange

•5 years ago

24 Replies

Disoriented and Dizzy

Just been diagnosed with PMR/GCA. Initial high dose(60mg) of Pred has been great and alleviated pain and stiffness. However over the past week I have...

Just been diagnosed with PMR/GCA. Initial high dose(60mg) of Pred has been great...

clachaig

•5 years ago

13 Replies

GOOD NEWS🎉

Rheumatologist Appointment Had good news! I had my bi-monthly appointment at Marshfield Clinic yesterday. I started on 20 mags of Prednisone in January....

Rheumatologist Appointment Had good news! I had my bi-monthly appointment at Ma...

Gary1310

•5 years ago

4 Replies

Prednisonone for the rest of my life

Thank you all very much for your advice and information in answer to my question. It’s good to know you are out there.

Thank you all very much for your advice and information in answer to my question...

LindaKent

•5 years ago

1 Reply

Temporal Arteritis

I was diagnosed with Temporal Arteritis on 23rd August 2019 which was a shock as I had never heard of it before, I have been on Prednisolone since being...

I was diagnosed with Temporal Arteritis on 23rd August 2019 which was a shock as...

Phed

•5 years ago

45 Replies

Pharmacy unable to fulfil my Prednisolone prescription as unavailable....

Just a note to say that over the past month or so I've been unable to get some repeat medications for both myself and hubby. Those I can get have a different...

Just a note to say that over the past month or so I've been unable to get some r...

Telian

•5 years ago

17 Replies

Stuck at 10 mg

Hi and help! I have relapsed 4 times at 10mg and now my consultant want to put me on Methotraxate as well. Anybody else taking this?

Hi and help! I have relapsed 4 times at 10mg and now my consultant want to put m...

LittleFroggie

•5 years ago

3 Replies

Finally got rheumatologist appointment

Hi everyone, I have at last been given an appointment, it's still not until 2nd October which will be exactly a month since being diagnosed but at least I've...

Hi everyone, I have at last been given an appointment, it's still not until 2nd ...

Poppylop

•5 years ago

4 Replies

Getting too skinny

Is anyone else having trouble maintaining their weight? I know it’s usually the opposite with pred! I lost weight at the beginning of PMR/GCA, then...

Is anyone else having trouble maintaining their weight? I know it’s usually...

Mstiles

•5 years ago

48 Replies

Possible PMR diagnosis

Hi everyone, I’m new to this community and could really do with some help. Back in Feb 2019 my Mum developed a sore neck that has since moved to her shoulders,...

Hi everyone, I’m new to this community and could really do with some help. Back ...

SofiaAlf

•5 years ago

48 Replies

CRP creeping up

Just read my blood report from yesterday. Do not go to Rheumy till October. CRP has creeped up to 5.7 which is showing HI. It has gone up a bit each month as I...

Just read my blood report from yesterday. Do not go to Rheumy till October. CRP ...

Robinsnest72

•5 years ago

13 Replies

Spinning plates!

Waiting for the start of another day and I thought that managing PMR and the many other physical and mental conditions one may have is like keeping 12 spinning...

Waiting for the start of another day and I thought that managing PMR and the man...

Whatgrange

•5 years ago

9 Replies

Mother has Giant Cell Arteritis - what does the future hold?

Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who...

Having just been through a week of hospital after my mother has lost most her s...

TheSmartestGiant70

•5 years ago

44 Replies

Getting a blue badge for parking

Has anyone managed to get a blue badge, on the grounds of having PMR? Some days I can walk the 50 metres but on others I get exhausted.

Has anyone managed to get a blue badge, on the grounds of having PMR? Some days ...

Trulyscrumpious

•5 years ago

9 Replies

PMR patient leaflet

Something occurred to me today as I opened a box of Pred tablets and discarded the Patient Information Leaflet. I wondered how many of us check these leaflets...

Something occurred to me today as I opened a box of Pred tablets and discarded t...

teesher

•5 years ago

15 Replies

PMR vs. Rheumatoid or something else

Hi to my very smart PMR team here. It’s Been quite a while since I’ve posted as my PMR journey started 18 months ago, and I have tapered from 10 mg at start...

Hi to my very smart PMR team here. It’s Been quite a while since I’ve posted as...

Leilagirl

•5 years ago

8 Replies

Medrol

I saw my rheumy this week and she prescribed medrol (4mg strength) to replace the prednisone, the reason being that the medrol tablet has 2 crosses making it...

I saw my rheumy this week and she prescribed medrol (4mg strength) to replace th...

Nolsie

•5 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Intermittent use of Prednisone

Third time in seven years diagnosed with PMR

49 and diagnosed with PMR. Cannot take Pred.

Sweating

I've developed a huge double chin on Pred

So my hip pain seems to be artheritis.🙁 Should I blame Pred?

Gifford43

Pain Killers Advice Needed

Difficult Days

5:2 Fast Diet

Prednisolone

What do you think?

wonder if CRP 23 on prednisone 15 plus Leflumonide

AF

Disoriented and Dizzy

GOOD NEWS🎉

Prednisonone for the rest of my life

Temporal Arteritis

Pharmacy unable to fulfil my Prednisolone prescription as unavailable....

Stuck at 10 mg

Finally got rheumatologist appointment

Getting too skinny

Possible PMR diagnosis

CRP creeping up

Spinning plates!

Mother has Giant Cell Arteritis - what does the future hold?

Getting a blue badge for parking

PMR patient leaflet

PMR vs. Rheumatoid or something else

Medrol

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