Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2019

Hunter34

I went to my reumy this weak and he didn t like how slow my crp rate was coming down.My relaose came in Mar.and started on 15 mg of prednisone in May.My cpr...

I went to my reumy this weak and he didn t like how slow my crp rate was coming ...

Hunter134

•5 years ago

6 Replies

Silly question about steroid use.

I am down to 7mg per day for GCA in all my major arteries. Feeling OK and crp is pretty constant at 2 or 3. What isn't so good are my knees. I was wondering...

I am down to 7mg per day for GCA in all my major arteries. Feeling OK and crp is...

granny-b

•5 years ago

25 Replies

Pericarditis and PMR

Is anyone aware of a link between pericarditis and PMR? I developed PMR quite suddenly last February. However, in September last year I had an attack of...

Is anyone aware of a link between pericarditis and PMR? I developed PMR quite su...

Hidden

•5 years ago

5 Replies

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Alendronic Acid

Hi all I was diagnosed with PMR 6 years ago GP put me on 15 mg of Pred and reduced down to 3 when I had a flare, I have been on Alendronic Acid for the first 5...

Hi all I was diagnosed with PMR 6 years ago GP put me on 15 mg of Pred and reduc...

kate1978

•5 years ago

13 Replies

Newcomer: advice needed on Pred

This is my first post, having followed the group since end of May when I was diagnosed with PMR by GP. Really need some advice please. In brief my story is...

This is my first post, having followed the group since end of May when I was dia...

Andypan

•5 years ago

14 Replies

APOLOGY TO HEINRICH!

When you wrote you had a TAB, my mind went immediately to therapeutic abortion. And I realized what a silly mistake; of course you meant temporal artery...

When you wrote you had a TAB, my mind went immediately to therapeutic abortion. ...

Christophene

•5 years ago

7 Replies

YES to Pneumonia vaccines Pneumovax 23 and Prevnar13

I just corrected the title of this post. Please pardon my mistake, and experts, please weigh in on the subject of two injections. 🙏🏽 Two years ago I...

I just corrected the title of this post. Please pardon my mistake, and experts...

Purplecrow

•5 years ago

21 Replies

INFLAMMATION

Saw the Rheumy nurse yesterday who said I had no inflammation and that my CRP was 5. I said I had hoped it would be lower and then she replied that for my...

Saw the Rheumy nurse yesterday who said I had no inflammation and that my CRP ...

joat

•5 years ago

14 Replies

Actemra experience

Actemra worked wonders on My GCA PMR, But did damage to My poor body. I was sick the entire winter with lung infections all brought on by the infusion , Then...

Actemra worked wonders on My GCA PMR, But did damage to My poor body. I was sick...

beringer

•5 years ago

13 Replies

Collagen

Has anyone ever heard of taking a collagen supplement to help PMR. Talking to someone today who has an autoimmune disorder but they have not figured out...

Has anyone ever heard of taking a collagen supplement to help PMR. Talking to so...

Robinsnest72

•5 years ago

27 Replies

Can I go from 50mg Prednisone to 5mg after being on 50 for 2 weeks?

Had headaches. Did blood work when I was on 5mg prednisone for possible GCA. Results 0 inflammation. Rheumatologist said he never saw one like that. Had TAB....

Had headaches. Did blood work when I was on 5mg prednisone for possible GCA. Res...

Heinrich7

•5 years ago

15 Replies

Bloated

Hello All, I came off Pred at the beginning of the year after weaning my self off gradually. however, after 4 months my symptoms started to re-appear. so I'm...

Hello All, I came off Pred at the beginning of the year after weaning my self of...

rose1962

•5 years ago

12 Replies

Pneumonia jab?

Are we safe to have Pneumonia jab whilst taking steroids? 😊

Cinka

•5 years ago

6 Replies

Different Prednisolone Manufacturers

Hello all, Does anyone else feel that the prednisolone tablets made by different manufacturers can vary in their after effects? Or is just me being...

Hello all, Does anyone else feel that the prednisolone tablets made by different...

Marotic

•5 years ago

12 Replies

Temporal biobsy

Hi all, my rheumatologist appointment is next Wednesday as I have mentioned previously but ive also had another appointment come through for the following day,...

Hi all, my rheumatologist appointment is next Wednesday as I have mentioned prev...

Poppylop

•5 years ago

7 Replies

My Husband has just been diagnosed with a Frozen Shoulder , is it wrong that I am a little bit happy? How experience affects sympathy.

So , long suffering Mr. Bee has just returned home from the GP with a diagnosis of a Frozen Shoulder , flimsy one page printout of exercises in hand , a...

So , long suffering Mr. Bee has just returned home from the GP with a diagnosis ...

Blearyeyed

•5 years ago

106 Replies

Carpel Tunnel syndrome

Does anyone know if PMR can make you prone to getting carpel tunnel syndrome? I'm reducing from 1.0 mg to .5 mg Pred. after 3 years of PMR and have developed...

Does anyone know if PMR can make you prone to getting carpel tunnel syndrome? I'...

Joan-E-D

•5 years ago

11 Replies

Now on 5mg. Advice on introducing more carbs?

Hi Managed to get down to 5mg of pred and so far doing ok. I’ve been strict with my carbs but was wondering now my dose is lower if there was any harm of...

Hi Managed to get down to 5mg of pred and so far doing ok. I’ve been strict with...

Rosina1871

•5 years ago

16 Replies

Problems with Prescriptions for 1mg gastro resistent Pred

Is anyone else struggling to get 1mg gastro resistant pred prescriptions fulfilled? I put in a prescription two weeks ago and my chemist is still struggling to...

Is anyone else struggling to get 1mg gastro resistant pred prescriptions fulfill...

Marilyn1959

•5 years ago

24 Replies

Sick !

Hi I have nasty cold. Had been in the edge but ok at 3mg can I up Prednisone during this nasty bout... achy arms and neck now along with my cold and entire...

Hi I have nasty cold. Had been in the edge but ok at 3mg can I up Prednisone dur...

yogabonnie

•5 years ago

17 Replies

More the Fool Me

It was a rookie mistake, but one I foolishly made... again. I deceived myself into believing that "less is better," but alas it was not! The concept, is...

It was a rookie mistake, but one I foolishly made... again. I deceived myself i...

Hidden

•5 years ago

15 Replies

Advice for son GCA testing.

I would love some help from you good people and its a bit complicated. Son is late 40s paralysed from the waist since he was 19. Further injury to his neck...

I would love some help from you good people and its a bit complicated. Son is l...

Pippah45

•5 years ago

8 Replies

Sitting here feeling nervous

I'm sitting in hospital, third in the queue for surgery, temporal arterial biopsy. I know it's nothing major, but I'm really nervous as previous surgery I had...

I'm sitting in hospital, third in the queue for surgery, temporal arterial biops...

JanetRosslyn

•5 years ago

46 Replies

Flu Jab results!!!

Had my annual flu jab (shot😁) last week... and I am delighted to report I have zero (0) reaction, consequence, negative results, etc...!!! Just......

Had my annual flu jab (shot😁) last week... and I am delighted to report I have...

Purplecrow

•5 years ago

10 Replies

Get ready to laugh with sympathy.

I beat my own move from hell last year..... I had an entire month to pack and it was going so smooth. I would pack a few boxes or throw clothes and bedding...

I beat my own move from hell last year..... I had an entire month to pack and it...

Hidden

•5 years ago

37 Replies

Occipital neuralgia

Has anyone who has been struggling through PMR for many years ever had significantly annoying pain in the neck and lower area of the skull ? I'm trying to find...

Has anyone who has been struggling through PMR for many years ever had significa...

Dave7707

•5 years ago

14 Replies

In good company

Well after my flare I am back down to 5mg and doing well! I have had to have another tooth out as the root broke but don’t think that was the steriods! So...

Well after my flare I am back down to 5mg and doing well! I have had to have ano...

JulieR2

•5 years ago

24 Replies

Alendronic Acid quandary?

I was prescribed Alendronic Acid a year ago along with the vitamin D supplement. i have been taking the Vit D but could not bring myself to take the Acid. I...

I was prescribed Alendronic Acid a year ago along with the vitamin D supplement....

Pentrellwyn39gorrig

•5 years ago

9 Replies

Diabetes

Hi I am on 5 mg just starred down to 4 first week monday 4 rest of the week 5 2nd week monday 4 tuesday 4 rest of the week 5. I hope this is going to be slow...

Hi I am on 5 mg just starred down to 4 first week monday 4 rest of the week 5 2n...

sailorman

•5 years ago

9 Replies

Prednisolone 1 mg dose - which countries is it available ?

Hello all, I need your help to know Whether 1mg gastric resistant prednisolone tablets available in Hong Kong or Singapore or the UK or then anywhere else in...

Hello all, I need your help to know Whether 1mg gastric resistant prednisolone ...

Iwillwin123

•5 years ago

55 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Hunter34

Silly question about steroid use.

Pericarditis and PMR

Alendronic Acid

Newcomer: advice needed on Pred

APOLOGY TO HEINRICH!

YES to Pneumonia vaccines Pneumovax 23 and Prevnar13

INFLAMMATION

Actemra experience

Collagen

Can I go from 50mg Prednisone to 5mg after being on 50 for 2 weeks?

Bloated

Pneumonia jab?

Different Prednisolone Manufacturers

Temporal biobsy

My Husband has just been diagnosed with a Frozen Shoulder , is it wrong that I am a little bit happy? How experience affects sympathy.

Carpel Tunnel syndrome

Now on 5mg. Advice on introducing more carbs?

Problems with Prescriptions for 1mg gastro resistent Pred

Sick !

More the Fool Me

Advice for son GCA testing.

Sitting here feeling nervous

Flu Jab results!!!

Get ready to laugh with sympathy.

Occipital neuralgia

In good company

Alendronic Acid quandary?

Diabetes

Prednisolone 1 mg dose - which countries is it available ?

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