Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,294 members • 38,018 posts

All posts for September 2019

First dose taken

Firstly can I say Thank you so much for everyone's comments and support, it really means a lot to be able to speak to people that know what I'm going through....

Firstly can I say Thank you so much for everyone's comments and support, it real...

•5 years ago

Swollen prickling numb legs and feet

I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 2018. Had a couple of flares and was put on Met and then Lev December 2018. Since...

I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 20...

•5 years ago

Just been diagnosed

Hi everyone, I have just had my results of my blood tests, I definitely have pmr, but the doctor also thinks I have gca too as I have been having headaches...

Hi everyone, I have just had my results of my blood tests, I definitely have pmr...

•5 years ago

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PMR rheumatologist

Hi Been quiet lately but will be going to Lincoln hospital soon and I remember somebody once recommended two or three specialist there. Can anyone help...

Hi Been quiet lately but will be going to Lincoln hospital soon and I remember s...

•5 years ago

Nasty Headache for nearly a month

Been doing fairly well on 5mg Pred. A bit of shoulder pain but nothing to warrant increasing dose. Since August 9 have pressure headache constantly and bone...

Been doing fairly well on 5mg Pred. A bit of shoulder pain but nothing to warran...

•5 years ago

Ongoing knee pain

I feel like I’m banging an old drum going on about my knee pain but I know many of you will understand. A lot of us seem to have one bit that niggles more than...

I feel like I’m banging an old drum going on about my knee pain but I know many ...

•5 years ago

I'm new here and just off Prednisolone

I am just celebrating my first month completely off prednisolone (and the supporting drugs). It's weird as they had become such an integral part of my life....

I am just celebrating my first month completely off prednisolone (and the suppor...

•5 years ago

Seropositive RA

Hi, not sure about all the different abbreviations and terminology on this site, so am I in the right place for Seropositive RA please?

Hi, not sure about all the different abbreviations and terminology on this site,...

•5 years ago

First Post

Hello. I don't have an actual question. I only found this site very recently and the timing has been perfect. I felt it was right to share not just keep...

Hello. I don't have an actual question. I only found this site very recently a...

BethandHoney2017

•5 years ago

PMR? or not PMR? - that is the question.

Does anyone have any knowledge or experience of alternative conditions that might be / have been misdiagnosed as PMR?. e.g there appears to be some evidence...

Does anyone have any knowledge or experience of alternative conditions that migh...

•5 years ago

Ibandronic Acid

I tried to tolerate Alendronic Acid, but was quite poorly with taking it, However my doctor prescribed Ibandronic Acid taken monthly; this is the 3rd monthly...

I tried to tolerate Alendronic Acid, but was quite poorly with taking it, Howev...

•5 years ago

Possible PMR for dad?

Hello fellow PMR sojourners, I live in California and have had PMR for about a year. On 9 mg of Pred right now and slowly tapering. My question is actually...

Hello fellow PMR sojourners, I live in California and have had PMR for about a ...

•5 years ago

GCA? PMR? Symptoms

Hi, firstly, I am so glad to have this forum, and so grateful for all the support reassurance, guidance and sharing. I have posted before, but I wanted to...

Hi, firstly, I am so glad to have this forum, and so grateful for all the suppor...

•5 years ago

Colonoscopy Whilst on Steroids

Hello Again! I am wondering if you could let me have your opinions before I speak to the endoscopy unit. I am having a colonoscopy later this month. I know...

Hello Again! I am wondering if you could let me have your opinions before I spe...

•5 years ago

Ferritin

On my recent blood test the doc told me my Ferritin was low (never heard of this!). He told me to have a retest to check levels again. I have checked online...

On my recent blood test the doc told me my Ferritin was low (never heard of this...

•5 years ago

Low Carb eating or anti-inflammatory?

With the situation of whether I have PMR or just bouts of Osteo-Arthritis - I want to do everything I can to eat the right diet. I sent off for a low carb...

With the situation of whether I have PMR or just bouts of Osteo-Arthritis - I wa...

•5 years ago

Fatigue while tapering

I'm currently at 6.5 with 4 days in a week on 6. I know I am in the midst of adrenal land, so what do I do about fatigue? I seem to bounce back after a few...

I'm currently at 6.5 with 4 days in a week on 6. I know I am in the midst of adr...

•5 years ago

Swollen inflamed ankle

Woke up this morning with swollen inflamed ankle on the inside of foot. I am presently tapering and at 6mg. Could this be arthritis inflammation and would...

Woke up this morning with swollen inflamed ankle on the inside of foot. I am pre...

•5 years ago

Caring for wife with GCA

I am caring for my wife with GCA she is not computer literate so I am trying to understand what our problems are Diagnosed 19 July about 6 weeks ago by...

I am caring for my wife with GCA she is not computer literate so I am trying to...

•5 years ago

Thankyou

Hi all, just a big thank you for taking the time to reply Feeling better today..

Hi all, just a big thank you for taking the time to reply Feeling better toda...

Lancashirelass07

•5 years ago

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