Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,273 members • 37,962 posts

All posts for September 2019

Clinical trial to test potential new therapy for giant cell arteritis

Well... at least they're looking for options! https://medicalxpress.com/news/2019-09-clinical-trial-potential-therapy-giant.html

Well... at least they're looking for options! https://medicalxpress.com/news/2...

Hidden

•5 years ago

5 Replies

Introduction

I have TAK and am waiting to start on Tocilizumab. I've been taking prednisolone 55mg for 2 months. I was also on methotrexate but since a chest infection...

I have TAK and am waiting to start on Tocilizumab. I've been taking prednisolon...

MrsChips

•5 years ago

21 Replies

Indigestion

Hi I’m two and a half years into PMR and now tapered to 9.5 mg Pred. Quite suddenly I am getting attacks of quite fierce indigestion which seem to come after...

Hi I’m two and a half years into PMR and now tapered to 9.5 mg Pred. Quite sudde...

Thelmarina

•5 years ago

10 Replies

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Hair loss on pred

Hi all, Is anyone else having hair loss on pred ?, Mine was thinning anyway due to the menopause but every time I went to the hairdressers she said it wasn't...

Hi all, Is anyone else having hair loss on pred ?, Mine was thinning anyway due ...

Poppylop

•5 years ago

10 Replies

GCA Flare - how much to increase Prednisone?

I have been living with GCA, PMR and fibromyalgia for 2 years now. Started with the high dose of Prednisone. My blood work and pain levels did not react, so in...

I have been living with GCA, PMR and fibromyalgia for 2 years now. Started with ...

Michgardner

•5 years ago

10 Replies

PMG/Thyroid - Steroids

Two years ago I decided to have the shingles injection as having my twin grandchildren I didn't want to worry if they ever got chicken pox, etc. It wasn't...

Two years ago I decided to have the shingles injection as having my twin grandch...

Ricketts40

•5 years ago

9 Replies

Mountains - living with and climbing them! And PMR ...

https://rockandice.com/videos/climbing/dani-arnold-free-solos-cima-grande-and-sets-new-speed-record/ I thought I'd post this link - it is actually just up the...

https://rockandice.com/videos/climbing/dani-arnold-free-solos-cima-grande-and-se...

PMRpro

Ambassador•5 years ago

22 Replies

Fibro and toothache

Hi everyone, just wondering if anyone has had toothache, earache and pain in side of head due to fibromyalgia,if so what painkillers are you using? I've only...

Hi everyone, just wondering if anyone has had toothache, earache and pain in sid...

JKlady

•5 years ago

38 Replies

Cortisone injection for PMR

Hello! I've had PMR and been on Prednisolone for about 5 years. My brother rang me today saying that his GP thinks he may have PMR and has given him a...

Hello! I've had PMR and been on Prednisolone for about 5 years. My brother rang...

Sheilamac

•5 years ago

32 Replies

Crumbly Pred & reducing

Just to ask if anyone has had any 1mg Pred from Co-phama, my latest batch with an exp 2023 are 50% crumbly when pressed out of the pack. I’ve not had any...

Just to ask if anyone has had any 1mg Pred from Co-phama, my latest batch with a...

SusanJF

•5 years ago

7 Replies

Is it PMR or something else?

I was diagnosed with PMR in May 2013 and have had numerous ups and downs with Prednisolone. My rheumatologist prescribed methotrexate two years ago to help...

I was diagnosed with PMR in May 2013 and have had numerous ups and downs with P...

Londonblue

•5 years ago

9 Replies

Silent reflux

Hi I have just been diagnosed with silent reflux and prescribed 49mg of omperzole I have been taking this for a week and a half but no improvement- how long...

Hi I have just been diagnosed with silent reflux and prescribed 49mg of omperzol...

budley19

•5 years ago

6 Replies

Disappointed

I had my rheumy apt yesterday and asked about the 1 mg coated prednisolone. She told me they have been told not to prescribe it! Has anyone got a private...

I had my rheumy apt yesterday and asked about the 1 mg coated prednisolone. She ...

m33ary

•5 years ago

26 Replies

What a to do.

What I would like to know is do steroids thin the blood? I posted this somewhere yesterday but it seemed to disappear. I was given Apixaban anticoagulant...

What I would like to know is do steroids thin the blood? I posted this somewhere...

polymy

•5 years ago

22 Replies

gca

does your gca pain go awsy in the evening Heather

piping9

•5 years ago

12 Replies

Health update

Hello I have not posted for sometime but not because I have forgotten my fellow PMR sufferers. Since I stopped my steroid treatment at the beginning of...

Hello I have not posted for sometime but not because I have forgotten my fellow ...

Mitziecat

•5 years ago

15 Replies

Prednisolone injection rather than tablets

Has anyone had prednisolone given as an injection for PMR (that’s supposed to last 4-6 weeks). As I had suffered very bad side effects from taking Pred...

Has anyone had prednisolone given as an injection for PMR (that’s supposed to la...

Andypan

•5 years ago

5 Replies

Brain fog?

So partway through my day (it's 3:50 p.m. ADT as I write this) I considered whether I'd taken my pill. Yes, I distinctly remembered getting it out. More...

So partway through my day (it's 3:50 p.m. ADT as I write this) I considered whet...

HeronNS

•5 years ago

81 Replies

Watch your pill packs folks!

I have today collected from my local pharmacy 3 packs of 2.5mg GE coated Prednisolone only to discover that 2 packs had an expiry date of October 2019 and 1...

I have today collected from my local pharmacy 3 packs of 2.5mg GE coated Prednis...

jaycee444

•5 years ago

35 Replies

In the aftermath of PMR

I have not been on here for quite some time. A big part of the reason is because my PMR finally went into remission after 2 and 1/2 years. Although I'm quite...

I have not been on here for quite some time. A big part of the reason is because...

Amkoffee

•5 years ago

33 Replies

Long Term PMR

PMR struck suddenly one morning in Nov. 1999 when I found I could not even get my socks on! 30mg Prednisone fixed it instantly but despite many attempts I...

PMR struck suddenly one morning in Nov. 1999 when I found I could not even get m...

Flossoffa

•5 years ago

10 Replies

Chemo Therapy For PMR

I was reading an article about Dan Patrick, the well know former ESPN broadcaster, who now has his own show (The Dan Patrick Show). On CBS. Dan announced that...

I was reading an article about Dan Patrick, the well know former ESPN broadcaste...

LarryLeek

•5 years ago

103 Replies

Referral for Rheumy in New York City?

My GP is well-meaning, but he doesn't seem willing to come up to speed on current wisdom about PMR. Before I ask him for a recommendation for a rheumy and get...

My GP is well-meaning, but he doesn't seem willing to come up to speed on curren...

schmuppy

•5 years ago

9 Replies

Osteopenia

Dx GCA March/19 Started on 50mg prednisone, currently on 27.5, MTX added 2 wks ago. Not going really well.... Finally had my Deka scan done last wk, it was...

Dx GCA March/19 Started on 50mg prednisone, currently on 27.5, MTX added 2 wks ...

pugrescue

•5 years ago

9 Replies

PMR and aching legs

Hi everyone I am new here, I have recently been diagnosed with PMR, and have been on Prednisolone for 3 weeks. The pains in my shoulders have gone away but my...

Hi everyone I am new here, I have recently been diagnosed with PMR, and have bee...

Yogurt55

•5 years ago

17 Replies

Mental and physical training for the 47th highest mountain in the world

My physical and mental training us going very well with less than two weeks before we head for the Nepal Himalayas for 32 days. I'm still in PMR remission and...

My physical and mental training us going very well with less than two weeks befo...

Skinnyjonny

•5 years ago

35 Replies

Need all teeth out in order to sort bones! Anyone any experience of Guys Teaching Hospital Dentistry.

Well Rheumy wants me to have annual injection for Osteoporosis. Yes, before you ask, I have had DX every two years for last eight. Results haven't declined too...

Well Rheumy wants me to have annual injection for Osteoporosis. Yes, before you ...

Marilyn1959

•5 years ago

41 Replies

headaches

i was on prednisone for three years.stiffness gone not on prednisone but have headache especially in morning.taking advil.

i was on prednisone for three years.stiffness gone not on prednisone but have...

piping9

•5 years ago

2 Replies

Living in hope

Hello everyone been diagnosed with PMR and started taking 12mg of Deflazacort for 4 days ..not noticed any change ..still lot of pain . Do you think I could...

Hello everyone been diagnosed with PMR and started taking 12mg of Deflazacort f...

Seaglassgirl

•5 years ago

10 Replies

Hunter34

Sorry i forgot to mention my crp is 7.2 now

Hunter134

•5 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Clinical trial to test potential new therapy for giant cell arteritis

Introduction

Indigestion

Hair loss on pred

GCA Flare - how much to increase Prednisone?

PMG/Thyroid - Steroids

Mountains - living with and climbing them! And PMR ...

Fibro and toothache

Cortisone injection for PMR

Crumbly Pred & reducing

Is it PMR or something else?

Silent reflux

Disappointed

What a to do.

gca

Health update

Prednisolone injection rather than tablets

Brain fog?

Watch your pill packs folks!

In the aftermath of PMR

Long Term PMR

Chemo Therapy For PMR

Referral for Rheumy in New York City?

Osteopenia

PMR and aching legs

Mental and physical training for the 47th highest mountain in the world

Need all teeth out in order to sort bones! Anyone any experience of Guys Teaching Hospital Dentistry.

headaches

Living in hope

Hunter34

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