Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,235 posts

All posts for April 2019

10 days Free of Pred! 3 years left to recover!

I have been reading others experience of being pred free and I thought about my own experiences over the last two and a bit years from diagnosis. I was...

I have been reading others experience of being pred free and I thought about my ...

JulieR2

•6 years ago

10 Replies

Hip replacement

Do steroids need to be increased when having hip replacement ?

lyndamcw

•6 years ago

5 Replies

Still fine off pred.

About 3 week. So there is life after pred. All the best gang. 🌹🌹🌹🌹 Ronzy.

About 3 week. So there is life after pred. All the best gang. 🌹🌹🌹🌹 Ronzy...

Rocketronzy

•6 years ago

33 Replies

Want to take advantage of all our features? Just log in!

Diabetic now new issues

I am a 67 year old man who has of late been very ill. On top of diabetes I now have a incurable autoimmune disease called Bullous Prehemgoid. Taking steroids...

I am a 67 year old man who has of late been very ill. On top of diabetes I now h...

Skycop51

•6 years ago

10 Replies

Bad day so.........

Spending the afternoon in bed - so much pain! Can't possibly be depressed though. Watching the children, families enjoying the sun. Happy Easter everyone....

Spending the afternoon in bed - so much pain! Can't possibly be depressed thoug...

Constance13

•6 years ago

38 Replies

Decreasing Prednisone, symptoms

I have now had GCA/PMR for two years and amazingly am now down to 3mg prednisone. I have been reducing very slowly. 3mg a day and 4mg the next. Now just 3mg...

I have now had GCA/PMR for two years and amazingly am now down to 3mg prednisone...

Stella3

•6 years ago

16 Replies

Full set now

When I wrote last I had dropped my pred from 20mg to 15mg because of atrial fibrillation. Pred was thought to be the cause but I’m convinced it’s not. In the...

When I wrote last I had dropped my pred from 20mg to 15mg because of atrial fibr...

polymy

•6 years ago

19 Replies

Really frightening

Currently experiencing frightening heart palpitations tapering from 15mg.Diagnosed in Nov18 with PMR, currently on 7mg and the lower this dose goes, the worse...

Currently experiencing frightening heart palpitations tapering from 15mg.Diagnos...

Themidget

•6 years ago

27 Replies

Feeling somewhat better

Diagnosed in January this year and started on 20mg. Now down to 10mg and, touch wood, this is my best week since I was diagnosed. No pain just a few manageable...

Diagnosed in January this year and started on 20mg. Now down to 10mg and, touch ...

Rosina1871

•6 years ago

19 Replies

Wondering if I have PMR or not

I'm a 63 year old woman who woke up one morning nearly 4 weeks ago with joint stiffness and muscle pain in quads, knees and feet, so getting out of bed and...

I'm a 63 year old woman who woke up one morning nearly 4 weeks ago with joint st...

anniearp

•6 years ago

21 Replies

GCA-Upper back teeth pressure

Jaw claudication & tongue cramping were my worst symptoms pre-diagnosis. Have had upper back teeth pressure off & on while tapering from 60 mg. If ignored, it...

Jaw claudication & tongue cramping were my worst symptoms pre-diagnosis. Have ha...

Hidden

•6 years ago

23 Replies

New Worries

I'm new here and am really worried about taking pred. I've had the blood tests and my GP has referred me to NHS Rheumatologist. The waiting list for first...

I'm new here and am really worried about taking pred. I've had the blood tests a...

tazman3

•6 years ago

38 Replies

Ulcerative Colitis

Does any one else have Ulcerative Colitis alongside their PMR?

jaycee444

•6 years ago

7 Replies

Headaches. GCA.

I reduced to 20 mg last week from 25. Plan to stay on 20 for a month. I have a daily headache. Does that mean 20 is not enough? Eyes are ok.

I reduced to 20 mg last week from 25. Plan to stay on 20 for a month. I have a...

alvertta

•6 years ago

19 Replies

acupuncture?

I had a series of flare-ups on our spring trip and am now back up to my January dose of 10mg, slowly trying to taper to 8mg before my one year anniversary of...

I had a series of flare-ups on our spring trip and am now back up to my January ...

izzyart

•6 years ago

7 Replies

Don't take medication in a dark room.

Yesterday night I fumbled for my 5mg and 1mg of prednisone and took it with a little yogurt. This morning I couldn't pull myself up out of bed. All my pmr...

Yesterday night I fumbled for my 5mg and 1mg of prednisone and took it with a l...

YuliK

•6 years ago

14 Replies

Pillcutters.

Have seen a few available - mostly vertical cutting but a couple cutting horizontally. Any views please?

Have seen a few available - mostly vertical cutting but a couple cutting horizon...

Nuff1

•6 years ago

9 Replies

My PMR Story.

I am 72 now. After my gp diagnosed me with bursitis, yes, a bakers cyst, sent me to physical therapy and a number of other ailments he decided it was PMR and...

I am 72 now. After my gp diagnosed me with bursitis, yes, a bakers cyst, sent me...

Lanakay

•6 years ago

16 Replies

How are you coping with Prednisone hunger?

I have been dealing with prednisone hunger since being diagnosed with pmr. in 2016. I have gained 15 lbs. in that time and am now trying to take the weight...

I have been dealing with prednisone hunger since being diagnosed with pmr. in 20...

Linny3

•6 years ago

80 Replies

Ayurvedic medicine

Hi all, I’ve just booked into an Ayurverdic Hospital in India for 3 weeks to see if this can help me. Has anyone had any experience with this natural form of...

Hi all, I’ve just booked into an Ayurverdic Hospital in India for 3 weeks to see...

thepainterlyone

•6 years ago

17 Replies

Adrenal insufficiency

Yesterday I received the worrying news that, after a blood test taken by the rheumatology pharmacist he finds my score is 61. 100-400 is considered abnormally...

Yesterday I received the worrying news that, after a blood test taken by the rhe...

Pollyanna16

•6 years ago

45 Replies

So whats happening here???

My first week of treatment is like this:- Monday - Dr prescribes 15 mg Prednisolone together with Omeprazole daily for 3 weeks initially. Take pills as soon...

My first week of treatment is like this:- Monday - Dr prescribes 15 mg Prednisol...

jaycee444

•6 years ago

14 Replies

Stowmarket cafe get-together

We are meeting at the Osier Cafe, in the Museum of East Anglian Life in Stowmarket, at 1030 next Thursday, the 25th April. An advance notice - on the 16th...

We are meeting at the Osier Cafe, in the Museum of East Anglian Life in Stowmar...

Vanner460

•6 years ago

Be the first to reply

Muscle awareness.

Good morning everyone.For the last few months I have been constantly aware of the muscles on the backs of my thighs and to a lesser extent the muscles at the...

Good morning everyone.For the last few months I have been constantly aware of th...

Dewdrop456

•6 years ago

11 Replies

How long on Pred

I was diagnosed 10 days ago and put on 20mg Pred, which I have to reduce to 15 mg after a fortnight. My GP said I should be able to come off it in 6- 9...

I was diagnosed 10 days ago and put on 20mg Pred, which I have to reduce to 15 m...

palewolf

•6 years ago

28 Replies

GCA symptoms coming back. Need advice.

I've been on 60 mg of prednisone for 10 days for pmr/gca. 90% of pmr pain is gone. Only about 70% of gca symptoms went away, and not all all of the time....

I've been on 60 mg of prednisone for 10 days for pmr/gca. 90% of pmr pain is gon...

pollymarierose

•6 years ago

17 Replies

Dry rash

Can prednisone cause a dry rash? It’s not itchy. Photo included. Thank you.

ptm2018

•6 years ago

14 Replies

PMR stories - what our symptoms were like

Recently I asked the same question for GCA stories. It was so successful I am asking the same for PMR. Please include information about stiffness and pain -...

Recently I asked the same question for GCA stories. It was so successful I am as...

PMRpro

Ambassador•6 years ago

56 Replies

Bone scan

Today I have been for a bone scan. I expected it to be ok. Unfortunately it wasn't. I have osteoporosis score of minus 3.4. I have been refusing alendronic...

Today I have been for a bone scan. I expected it to be ok. Unfortunately it wasn...

Healthworrier

•6 years ago

12 Replies

Hypothyroidism n intake of prednisone

I hv been taking prednisone since many years as i m a patient of rheumatoid arthritis now in my recent blood test my tsh came around 30. Is it caused by...

I hv been taking prednisone since many years as i m a patient of rheumatoid arth...

Alsaba

•6 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2019

10 days Free of Pred! 3 years left to recover!

Hip replacement

Still fine off pred.

Diabetic now new issues

Bad day so.........

Decreasing Prednisone, symptoms

Full set now

Really frightening

Feeling somewhat better

Wondering if I have PMR or not

GCA-Upper back teeth pressure

New Worries

Ulcerative Colitis

Headaches. GCA.

acupuncture?

Don't take medication in a dark room.

Pillcutters.

My PMR Story.

How are you coping with Prednisone hunger?

Ayurvedic medicine

Adrenal insufficiency

So whats happening here???

Stowmarket cafe get-together

Muscle awareness.

How long on Pred

GCA symptoms coming back. Need advice.

Dry rash

PMR stories - what our symptoms were like

Bone scan

Hypothyroidism n intake of prednisone

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive