Feeling somewhat better: Diagnosed in January this... - PMRGCAuk

PMRGCAuk

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Feeling somewhat better

Rosina1871 profile image
19 Replies

Diagnosed in January this year and started on 20mg. Now down to 10mg and, touch wood, this is my best week since I was diagnosed. No pain just a few manageable aches in the morning and the fatigue has been so much better this week. I know I have a long way to go and I’m sure I will have my bad days and possible flares but I just wanted to share some positive news.

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Rosina1871 profile image
Rosina1871
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19 Replies
SnazzyD profile image
SnazzyD

Hooray for good days! 🥳 Go steady and I’m sure you’ll have more.

Rosina1871 profile image
Rosina1871 in reply to SnazzyD

Thank you Snazzy. Just so good to feel a little better

powerwalk profile image
powerwalk

Great. That's what we need - good days to show light at the end of the tunnel. Hope it keeps good for you.

Rosina1871 profile image
Rosina1871 in reply to powerwalk

Thanks. Knowing how long PMR can last, was very daunting at first but having felt better this week, it does make me feel more optimistic

YuliK profile image
YuliK

Don't go down too quickly. Take it easy with your reduction. 1mg per month from now on. 👍

Good to read you are feeling a bit better. Keep up the good work. 🌹

Rosina1871 profile image
Rosina1871 in reply to YuliK

I’m on 10mg until the end of May and then it will be very sloooooow taper

Marilyn1959 profile image
Marilyn1959

It is a bit of a roller coaster journey and I am delighted you are feeling better at the moment. The good times are well worth celebrating. Wishing you a lovely weekend.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Good, love to hear positive news. Long may it continue.

SheffieldJane profile image
SheffieldJane

Don’t you just love it when the planets all align and you get a taste of normal?

PMRpro profile image
PMRproAmbassador

Great!

Rosina1871 profile image
Rosina1871

Thanks everyone x

Pollypuds profile image
Pollypuds

That's encouraging🌝 diagnosed in December last year, down to 8mg and hoping that so far so good continues. Thanks for sharing.

bunnymom profile image
bunnymom

Happy Easter!

👍😁

Noosat profile image
Noosat

Great to hear some Good News ! I was diagnosed in middle of December, have tapered to 2.5mg, which may be too fast. However, so far doing OK. Will not try to taper for quite some time, until I am sure I have "stabilized."

Rosina1871 profile image
Rosina1871

That’s a fast taper. Well Done. Hope alol goes well

PMRCanada profile image
PMRCanada

So good to hear of your state, feeling well at this dose. It’s nice to “settle in” and come to terms with the diagnosis and medication. Acceptance brings peace of mind.

Overall I find I feel better and better as time passes (was diagnosed May 1/18, started on 20mg, currently at 8.5mg). The lower dose means I worry less about side effects, and the ones I do have seem to be lessening. I’m certain those around me are relieved that my mood swings (at higher doses) have lessened. So now when I’m feeling moody, I blame menopause! 😉 The only down side is existing other aches and pains are emerging (OA in knees, waiting for replacement surgery). At least extra strength Tylenol helps with this.

Wishing you continued feelings of wellness, and as mentioned, slow and steady taper especially below 10mg.

Rosina1871 profile image
Rosina1871

Thank you so much for your response. Still feeling good today despite being very active. Going to take it easy tomorrow. Don’t want to un do the progress . All the best x

Jackoh profile image
Jackoh

Really good news👍

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