Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2019

Update: Finally

I transferred my care and had an appointment with a new GP, a female :) She gave me a temporary diagnosis of PMR and TA pending the rheumatologist confirmation...

I transferred my care and had an appointment with a new GP, a female :) She gave...

Boozsa

•5 years ago

12 Replies

Spring is on the way ......... we hope!!!😉😉😉😉

We are off to a cottage in Wiltshire today for rest and relaxation. Giving these aching arms, hands and shoulders a rest!! Will do as much or little as I feel...

We are off to a cottage in Wiltshire today for rest and relaxation. Giving these...

York54

•5 years ago

65 Replies

I hate the cat!!

This is just a silly post for every one to laugh at. I quite happily got in my this morning whilst OH let the cat in. She wandered around the house calling...

This is just a silly post for every one to laugh at. I quite happily got in my ...

Yellowbluebell

•5 years ago

42 Replies

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Can we try to sleuth this headache out together?

I wake up headache free in the morning. Eat my breakfast at 8:00 and take my prednisone.....4:00 ish my head pain starts to creep in. Too much prednisone?...

I wake up headache free in the morning. Eat my breakfast at 8:00 and take my pr...

Blurry62

•5 years ago

31 Replies

Update on visit to Chertsey (UK)

Following up on a previous post of mine re tapering and beginning my treatment at 10mg, saw the new rheumy this week at Runnymead Hospital, who I found (and...

Following up on a previous post of mine re tapering and beginning my treatment a...

braininjurythepits

•5 years ago

21 Replies

Forget GCA/PMR! Last Night I was Nearly Eaten by a Bin!! A not entirely 'off topic' funny tale with PMR.

As , I am writing this little tale of woe to amuse us all , fellow PMR/GCA sufferers can be happy in the knowledge that your friend Bleary-eyed has not met...

As , I am writing this little tale of woe to amuse us all , fellow PMR/GCA suff...

Blearyeyed

•5 years ago

117 Replies

Harlow Group

Hello All. The next meeting of the Harlow Group is next Monday 11th Feb at 1230. We are a small Group that's growing, please join us. Details on...

Hello All. The next meeting of the Harlow Group is next Monday 11th Feb at 1230....

Roy46

•5 years ago

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skin so cold

Hi all off morphine all the way - my pmr-gc has gone crazy can not get my skin to calm down so cold. head ,face.... everything. Home up to 78 still can not get...

Hi all off morphine all the way - my pmr-gc has gone crazy can not get my skin t...

ejvb

•5 years ago

8 Replies

Vikings! Personality! Genes! Sex! Diet! Stress! Sibling Order! Who Knows with PMR/GCA ?

No one knows do they!! Sibling order is an interesting one for myself! Last one out the pot by 10 years! Always catching up with the others! Don't know...

No one knows do they!! Sibling order is an interesting one for myself! Last on...

Hidden

•5 years ago

111 Replies

Yes it is PMR

I wrote a few days ago about all this pain I have in the top of my hip. For me The pain is not the usual place for pmr pain. Had a series of x-rays . No...

I wrote a few days ago about all this pain I have in the top of my hip. For me T...

Linny3

•5 years ago

24 Replies

Finding Kate Gilbert's book

I prefer not to use Amazon so have been looking for Kate Gilbert's book from other sources. So far no luck. Could someone please tell me who the publisher is...

I prefer not to use Amazon so have been looking for Kate Gilbert's book from oth...

Hildalew

•5 years ago

29 Replies

thank you so much for advice on methotexate.

Dear PMRGCA friends, thank you from the bottom of my heart for all your wise and kind replies. I wasn't able to get on line yesterday and I was feeling...

Dear PMRGCA friends, thank you from the bottom of my heart for all your wise a...

Fieldofdreams

•5 years ago

6 Replies

Further Update on Severe Hip Pain and Insufficiency Fracture

I went for a DEXA Scan yesterday. When it was finished I asked the operator if she had the results. She said they had to be checked by the radiologist and...

I went for a DEXA Scan yesterday. When it was finished I asked the operator if ...

Omanain

•5 years ago

13 Replies

Re Scalp tenderness

Hello I have had PMR for 6 years, 83 years old. Thanks to the advice given on this forum I have at last learned that it is essential to pace oneself even when...

Hello I have had PMR for 6 years, 83 years old. Thanks to the advice given on th...

Salanddee

•5 years ago

8 Replies

Enlarged Aorta

I have ha GCA/PMR for four years now. I have been able to keep it at bay for the most part. I now have developed an enlarged descending Aorta that may need...

I have ha GCA/PMR for four years now. I have been able to keep it at bay for the...

northwesterner

•5 years ago

13 Replies

To Mellisa

You are great my dear girl I am not going to join you with FACEBOOK When I started with this horrible autoimmune illness in 2012 I didn't know what was...

You are great my dear girl I am not going to join you with FACEBOOK When I st...

morrison

•5 years ago

5 Replies

1st rheumy appt.

I was diagnosed in oct 18 with pmr and referred to rheumy at the same time. I saw rheumy today and can only say I must have been extremely lucky to get him....

I was diagnosed in oct 18 with pmr and referred to rheumy at the same time. I s...

Yellowbluebell

•5 years ago

120 Replies

Crp always elevated

Had pmr over 5 years dose of pred now 8.5mg after painful arms in oct and crp of 38 had me go back to 15mg yet again always yoying despite dead slow...

Had pmr over 5 years dose of pred now 8.5mg after painful arms in oct and crp of...

Hidden

•5 years ago

7 Replies

Thought of the day

Thought this was very poignant.

Suet3942

•5 years ago

31 Replies

A long week

Well this week is a long one! Sunday, up at 6 and out from 8 until 3, little snooze before going out again at 4 until about 9. Monday, up at 5 and home from...

Well this week is a long one! Sunday, up at 6 and out from 8 until 3, little sno...

JulianJ

•5 years ago

29 Replies

My experience on dosage reduction

Having reduced from 20mg Prednisolone daily by 2.5mg every 4 weeks I then became more attentive of how I felt. Although NICE does not suggest reducing in 0.5mg...

Having reduced from 20mg Prednisolone daily by 2.5mg every 4 weeks I then became...

HamishPMR

•5 years ago

10 Replies

Feeling depressed and most days unable to get dressed.

HI everyone, Tapering down my pred. Doing it by 5 mgs one day and alternative days 6 mgs. Appears to be working okay. But I feel so dreadfully depressed. Have...

HI everyone, Tapering down my pred. Doing it by 5 mgs one day and alternative da...

Dappa

•5 years ago

30 Replies

Help. On 25 mg of Pred for GCA moving onto methotrexate - advice on metho please :)

hello friends, I have not been on here since Christmas, which came and went. I have now got down to 25 mg Pred reducing 2.5 mg. BUT temporal head pain is...

hello friends, I have not been on here since Christmas, which came and went. ...

Fieldofdreams

•5 years ago

19 Replies

Today and ongoing

I came across this and am applying it myself for managing PMR/GCA. ‘Maintaining serenity is the key to good mental health’.

I came across this and am applying it myself for managing PMR/GCA. ‘Maintainin...

Cyclegirl54

•5 years ago

6 Replies

Question about carbs

I know we should limit our carb intake in order to minimise weight gain, but I'm getting the impression that carb consumption can also have an adverse effect...

I know we should limit our carb intake in order to minimise weight gain, but I'm...

Dontwannabesick

•5 years ago

25 Replies

From suspected GCA to cluster headaches what a minefield

I have been experiencing temporal headaches for over 3weeks , I have a history of PMR and was taking 5 mg of prednisolone tapered from 20 with ups and downs...

I have been experiencing temporal headaches for over 3weeks , I have a history o...

Gaz227

•5 years ago

6 Replies

Idiotic observations of others to my affliction

Following on from how people feel the need to comment on “my PMR”. Ive just remembered a classic. I am a Christian and when I broke my neck in a horse riding...

Following on from how people feel the need to comment on “my PMR”. Ive just reme...

Wraysbury

•5 years ago

52 Replies

What a silly disease! Before you taper your prednisone should you be almost pain free?

I am trying to taper the pred. as the doctor has suggested. My problem is that I am not anywhere near pain free. I have a high pain tolerance and a tendency to...

I am trying to taper the pred. as the doctor has suggested. My problem is that I...

Celebrant

•5 years ago

12 Replies

From Prednisone to Cataracts to PCO YAG laser surgery

I know there are several of us who recently had cataract surgery due to prednisone induced cataracts. The rate that I went from a trace of a cataract to...

I know there are several of us who recently had cataract surgery due to predniso...

Nitrobunny

•5 years ago

13 Replies

What painkillers can I take together

Hello my name is Julie I suffer with rheumatoid arthritis I've just taken one co-codamol as I don't really like taking them because they make me feel sick but...

Hello my name is Julie I suffer with rheumatoid arthritis I've just taken one co...

Sophiejayj2

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2019

Update: Finally

Spring is on the way ......... we hope!!!😉😉😉😉

I hate the cat!!

Can we try to sleuth this headache out together?

Update on visit to Chertsey (UK)

Forget GCA/PMR! Last Night I was Nearly Eaten by a Bin!! A not entirely 'off topic' funny tale with PMR.

Harlow Group

skin so cold

Vikings! Personality! Genes! Sex! Diet! Stress! Sibling Order! Who Knows with PMR/GCA ?

Yes it is PMR

Finding Kate Gilbert's book

thank you so much for advice on methotexate.

Further Update on Severe Hip Pain and Insufficiency Fracture

Re Scalp tenderness

Enlarged Aorta

To Mellisa

1st rheumy appt.

Crp always elevated

Thought of the day

A long week

My experience on dosage reduction

Feeling depressed and most days unable to get dressed.

Help. On 25 mg of Pred for GCA moving onto methotrexate - advice on metho please :)

Today and ongoing

Question about carbs

From suspected GCA to cluster headaches what a minefield

Idiotic observations of others to my affliction

What a silly disease! Before you taper your prednisone should you be almost pain free?

From Prednisone to Cataracts to PCO YAG laser surgery

What painkillers can I take together

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