Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for February 2019

not pmr/gca.........just a little silliness.........

On the back of 1 of my birthday cards, last week, I found this. Life should NOT be a journey to the grave with the intention of arriving safely in an...

On the back of 1 of my birthday cards, last week, I found this. Life should NOT ...

karools16

•6 years ago

21 Replies

Orpington Support Group Meeting

Group Conditions We meet at St Paul's in the Crofton Road Sharing the journey lightens the load. Our speakers are varied; the talks they give Help us improve...

Group Conditions We meet at St Paul's in the Crofton Road Sharing the journey li...

BromleyPen

•6 years ago

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Irritated mouth and throat is it Methotrexate

Hi ,Does any one have a mouth and throat irritation with Methotrexate ,I have the feeling of a sore throat and mouth my tongue is sore too tiny little cuts or...

Hi ,Does any one have a mouth and throat irritation with Methotrexate ,I have th...

patriciawhite

•6 years ago

14 Replies

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Back to pred

Hi I am a 62yr old female diagnosed with pmr 4yrs ago , how this condition has altered my life is an understatement,having been taking pred for a few years my...

Hi I am a 62yr old female diagnosed with pmr 4yrs ago , how this condition has a...

Visby

•6 years ago

25 Replies

Prednisolone and methotrexate?

Hi there, I was diagnosed with PMR in January 2017 and posted a question here in August 2017 when there was a suggestion from my rheumatologist that I...

Hi there, I was diagnosed with PMR in January 2017 and posted a question here in...

skye_blue

•6 years ago

15 Replies

eyes

i have had a lot of trouble with my eyes has any one had Macular Degeneration .ihad 3 injections in my eye but no change.

i have had a lot of trouble with my eyes has any one had Macular Degeneration .i...

ballyboy

•6 years ago

4 Replies

Adding age to every post. Also quantity of prednisone before and present.

I think it would be a good idea that posters give the minimum information about themselves. YuliK 76 years Started 25mg Present 7:5mg Thank you

I think it would be a good idea that posters give the minimum information about ...

YuliK

•6 years ago

16 Replies

Hello from fellow GCA/PMR sufferer in New York (US)

Hello all. Thanks for having this community to support folks struggling with PMR/GCA. I am a 54-years old female in the US and have had to put my life on hold...

Hello all. Thanks for having this community to support folks struggling with PMR...

Gennyh

•6 years ago

18 Replies

Is it wise to take Immune boosting supplements when you’re taking Prednisone?

Vitamin D eg

ConventCassie

•6 years ago

38 Replies

GCA

Diagnosed with GCA 18 days ago on 40mg but pain kept coming back so on 50mg still getting ear ache is this normal? Still worried about my sight.

Diagnosed with GCA 18 days ago on 40mg but pain kept coming back so on 50mg stil...

castingcollectives

•6 years ago

25 Replies

Dastardly Screwtop Defeats Me!!! AHHH!

Opening the old corn beef & sardine cans has nothing on the opening hazards with health & safety solutions of today!! OK! May be just me!!! This one is...

Opening the old corn beef & sardine cans has nothing on the opening hazards wit...

Hidden

•6 years ago

47 Replies

Tapering corticosteroids article

https://aiunited.org/glucocorticoid-tapering-and-adrenal-suppression-testing-guide/ I thought this was a link that should be easily available - it's a bit...

https://aiunited.org/glucocorticoid-tapering-and-adrenal-suppression-testing-gui...

PMRpro

Ambassador•6 years ago

54 Replies

PMR and Sweating

I have had PMR diagnosed since late October and am still on 10mg of steroids. The problem I have is that whenever I get stressed I get hot flushes. I am too...

I have had PMR diagnosed since late October and am still on 10mg of steroids. T...

fairy100

•6 years ago

12 Replies

On Pred when I shouldn't be

I was originally diagnosed with PMR last June and put on Predisolone, then since joining this group I discovered that I may have been misdiagnosed and most...

I was originally diagnosed with PMR last June and put on Predisolone, then since...

Theziggy

•6 years ago

7 Replies

Views on Methotrexate

A good friend who also developed PMR about 18 months ago is very keen for me to see his consultant. He wasn’t getting far with Pred but is now on methotrexate...

A good friend who also developed PMR about 18 months ago is very keen for me to ...

Pym1

•6 years ago

10 Replies

So tired, so very very tired. Taper further?

Once again I have shown myself to be seldom right but never in doubt. I have read so many posts about exhaustion at different levels and thought, Oh, I won't...

Once again I have shown myself to be seldom right but never in doubt. I have rea...

yogabonnie

•6 years ago

44 Replies

Reaction to coming of long term steroids

Been on steroids for 5 years And finally off them about a month ago due to my blood results showing no inflammation but since then my mobility has...

Been on steroids for 5 years And finally off them about a month ago due to my b...

granelliheywood

•6 years ago

9 Replies

GCA or something else?

Hello was wondering if anyone could help I’m a 32 year old male currently being treated for Crohn’s disease- I’ve tthe past two years on and off I’ve been...

Hello was wondering if anyone could help I’m a 32 year old male currently being ...

Crisjord86

•6 years ago

8 Replies

Pacing - another view from Lene Andersen

http://theseatedview.com/2019/01/how-to-pace-yourself-with-chronic-illness.html After Daisychain's wail of anguish I found this where Lene writes a detailed...

http://theseatedview.com/2019/01/how-to-pace-yourself-with-chronic-illness.html ...

PMRpro

Ambassador•6 years ago

94 Replies

What is the average length of time for pmr.? Its been 2 years and I cant get below 4mg of methylprednisolone without muscle and joint pain.

Any input greatly appreciated!

Kenneth77

•6 years ago

20 Replies

Adrenal Glands and PMR/GCA

Is there any connection at all between low cortisol or adrenal gland malfunction and PMR/GCA?

Is there any connection at all between low cortisol or adrenal gland malfunctio...

Boozsa

•6 years ago

10 Replies

There’s Nowt so Queer as Folk

It's a non PMR/GCA related blog post... read it, don't read it; like it, don't like it. It's all good!...

It's a non PMR/GCA related blog post... read it, don't read it; like it, don't l...

Hidden

•6 years ago

72 Replies

When having Bursitis is a relief

Hi everyone I would really value some advice. I have had PMR for two years and have done pretty well in my journey. I was 51 when I was diagnosed. I am now...

Hi everyone I would really value some advice. I have had PMR for two years and...

JulieR2

•6 years ago

26 Replies

Losing weight on Pred

Hello everyone. Picture is of Salo on Lake Garda Italy. Cheers me up on this wet and windy day in Cheshire. Going back in the summer. Down to 9mg pred now...

Hello everyone. Picture is of Salo on Lake Garda Italy. Cheers me up on this we...

Oxford8

•6 years ago

28 Replies

CRP RESULRS,

Hi , I am attending my 1st Rheumatologist apt next week. My GP diagnosed PMR in Dec and commenced me on Prednisol 15 mg. Relief was nearly instant. My CPR at...

Hi , I am attending my 1st Rheumatologist apt next week. My GP diagnosed PMR in...

Joanmc

•6 years ago

6 Replies

Symptoms to be concerned about

Tapering steroids now down to 5mg ,joint pain , stiffness all increased ,been advised not to increase dosage in response? Are there any symptoms I should be...

Tapering steroids now down to 5mg ,joint pain , stiffness all increased ,been a...

Seagu11

•6 years ago

4 Replies

Indigestion

Do/ have / any of you suffered severe indigestion since you have had PMR / taking Pred.? Keep getting .

Do/ have / any of you suffered severe indigestion since you have had PMR / tak...

Stifffingers

•6 years ago

24 Replies

Annoying advert

Is there any way to get rid of that annoying advert about hearing teats that keeps on popping up? I do not want to enrol on the programme.

Is there any way to get rid of that annoying advert about hearing teats that kee...

Bailybiscuit

•6 years ago

8 Replies

"Don’t Shoot… I’m an American!" Part Two

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/02/08/dont-shoot-im-an-american-part-two/ Warning: Please be advised, this blog is not...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/02/08/dont...

Hidden

•6 years ago

59 Replies

Update to 1st rheumy appt

As I wrote on Wednesday I was impressed by my rheumatologist. Today my feelings towards him have soared even higher. We have just had our post an in it was a...

As I wrote on Wednesday I was impressed by my rheumatologist. Today my feelings...

Yellowbluebell

•6 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2019

not pmr/gca.........just a little silliness.........

Orpington Support Group Meeting

Irritated mouth and throat is it Methotrexate

Back to pred

Prednisolone and methotrexate?

eyes

Adding age to every post. Also quantity of prednisone before and present.

Hello from fellow GCA/PMR sufferer in New York (US)

Is it wise to take Immune boosting supplements when you’re taking Prednisone?

GCA

Dastardly Screwtop Defeats Me!!! AHHH!

Tapering corticosteroids article

PMR and Sweating

On Pred when I shouldn't be

Views on Methotrexate

So tired, so very very tired. Taper further?

Reaction to coming of long term steroids

GCA or something else?

Pacing - another view from Lene Andersen

What is the average length of time for pmr.? Its been 2 years and I cant get below 4mg of methylprednisolone without muscle and joint pain.

Adrenal Glands and PMR/GCA

There’s Nowt so Queer as Folk

When having Bursitis is a relief

Losing weight on Pred

CRP RESULRS,

Symptoms to be concerned about

Indigestion

Annoying advert

"Don’t Shoot… I’m an American!" Part Two

Update to 1st rheumy appt

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