Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for October 2018

RA

Hi, I’m in my 3rd year of PMR, I was down to 1/2 mg last Xmas but after a stressful time had to go back on 10mg. 4 months ago I woke to swollen hands and feet...

Hi, I’m in my 3rd year of PMR, I was down to 1/2 mg last Xmas but after a stress...

Angex05

•6 years ago

15 Replies

Can PMR be triggered by exposure to electo-magnetic fields?

We have been getting some electrical work done & found out that the roof of our house has been live since the roof was replaced in January 2017. Apparently the...

We have been getting some electrical work done & found out that the roof of our ...

Janstr

•6 years ago

14 Replies

Prednisolone Reduction Rate

Husband was initially on 40mg pred for PMR/GCA and GP is monitoring the reduction (Rheumatologist died shortly after hospital IP assessment). After a few weeks...

Husband was initially on 40mg pred for PMR/GCA and GP is monitoring the reductio...

Nuff1

•6 years ago

13 Replies

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New to the site.

My husband has been undergoing treatment for PMR since September of this year. He initially went to the doctor with extreme pain all over, muscles, joints,...

My husband has been undergoing treatment for PMR since September of this year. H...

therock

•6 years ago

26 Replies

Tightening around arms?

Hi all I have GCA recently I have been experiencing a feeling like having your blood pressure taken on the inside of both my arms , left arm more then right....

Hi all I have GCA recently I have been experiencing a feeling like having your...

Robert09

•6 years ago

9 Replies

Zolronate infusion

Hi everyone, I'm wondering if you can help me. My rheumatologist wants me to have the Zoledronate infusion but I have read lots on this site about the pros and...

Hi everyone, I'm wondering if you can help me. My rheumatologist wants me to hav...

edmonton

•6 years ago

10 Replies

Cannabis Oil to be available on prescription in uk within a month

The Sunday Telegraph is reporting: 'Cannabis oil will be available on prescription to people with chronic pain across the UK within a month, it has been...

The Sunday Telegraph is reporting: 'Cannabis oil will be available on prescript...

Hidden

•6 years ago

31 Replies

Most exhausting activity???

Mine used to be rolling out of bed in the morning, waddling to the bathroom, waiting 15 minutes then washing and dressing. Now it’s “showering”!😟

Mine used to be rolling out of bed in the morning, waddling to the bathroom, wai...

Constance13

•6 years ago

35 Replies

The Hot Hole Dig Competition

If you wait long enough someone will get out of their hole and you nick it.

Estellemac

•6 years ago

2 Replies

Parker Digs M’Lady’s Hot Beach Hole

He had to drag me across the stream to get to the beach and over the soft sand and I am a bit unsteady on me pins.

He had to drag me across the stream to get to the beach and over the soft sand a...

Estellemac

•6 years ago

8 Replies

Downer Days PMR, GCA, Fibro

I have been handling this mess pretty well for the last 2.5 years, but lately just depressed and frustrated. I have major exhaustion, pain, cloudy brain,...

I have been handling this mess pretty well for the last 2.5 years, but lately ju...

Dream21

•6 years ago

25 Replies

PMR on Hot Water Beach Taurui

So here we are in New Zealand Day 22. Beautiful B&B called Harbour View in a small costal village. By day 5 we arrived in Sydney a bit jet lagged but we had...

So here we are in New Zealand Day 22. Beautiful B&B called Harbour View in a sma...

Estellemac

•6 years ago

13 Replies

LIFE 🤔🤔

Just an update on visit to doctor 😏well went to my doctor for visit, this was an out of hours visit, due to too many patients I think 🤔 well long story short...

Just an update on visit to doctor 😏well went to my doctor for visit, this was a...

Lucylooloo

•6 years ago

9 Replies

Helminth therapy

Hello wise ones I’ve been reading a lot lately about restoring our natural biome by using controlled infections of gut parasites. Apparently there have been...

Hello wise ones I’ve been reading a lot lately about restoring our natural biome...

MaryWR

•6 years ago

19 Replies

MRI necessary to diagnose TMJ?

Hello everyone, I’ve got PMR/GCA, currently on 17.25 mg pred down from 40 in January. I Recently developed jaw problems chewing on the right side....

Hello everyone, I’ve got PMR/GCA, currently on 17.25 mg pred down from 40 i...

Mstiles

•6 years ago

8 Replies

Exercising with a bit of pain and stiffness.

Exercising, good or bad? I have just started my Pred treatment for the second time this last year, now after 2 months of investigations. I am on 20 mg and...

Exercising, good or bad? I have just started my Pred treatment for the second ti...

Pirnilla

•6 years ago

20 Replies

Not coping to well today!!!!!

I have had a lot of problems with my spine, needing several operations and other invasive procedures so have experienced long periods of pain and disability...

I have had a lot of problems with my spine, needing several operations and othe...

Omanain

•6 years ago

14 Replies

PMR/GCA and stress.

I have read many articles on PMR/GCA and they all say that for GCA there is no known cause, although stress could be a factor as well as genetic tendencies. I...

I have read many articles on PMR/GCA and they all say that for GCA there is no k...

Primarose

•6 years ago

79 Replies

Moon face feelings

Does anyone with a moon face feel that it is swollen or tight? Could it contribute to a tired-feeling jaw?

Does anyone with a moon face feel that it is swollen or tight? Could it contribu...

gtate1914

•6 years ago

8 Replies

Naive question - should I be pain free on Pred?

Dear Friends, Please forgive me if this has appeared on the posts. I cant find it anywhere and this is my third attempt at writing this post and not...

Dear Friends, Please forgive me if this has appeared on the posts. I cant find...

Fieldofdreams

•6 years ago

67 Replies

Zoledronic Acid for osteopenia

Study done in New Zealand and published in New England Journal https://www.nejm.org/doi/full/10.1056/NEJMoa1808082

Study done in New Zealand and published in New England Journal https://www.nejm....

Janicep

•6 years ago

9 Replies

Interesting NHS news

I m in London, taking care of Teo, I woke up to this news! GP's are going to see groups of 15 patients at a time.. got me thinking how any of the GPs in Spain...

I m in London, taking care of Teo, I woke up to this news! GP's are going to see...

Gaijin

•6 years ago

54 Replies

Support team

My support team are pooped!!

Wraysbury

•6 years ago

13 Replies

Early days but strange pains

I only got the confirmation my doctor thinks I have pmr Tuesday and started Pred that day so only had 4 doses but my groin pain went almost immediately but now...

I only got the confirmation my doctor thinks I have pmr Tuesday and started Pred...

Yellowbluebell

•6 years ago

21 Replies

The Clumsiness of It!

Good afternoon from me! A Wiped post! Some beauty in that!

Hidden

•6 years ago

48 Replies

The Placebo Experiment

Did anyone see the Horizon programme on BBC2 last night?Very interesting. The point I wish to make (with more than a little tongue in cheek) is that Dr Mosley...

Did anyone see the Horizon programme on BBC2 last night?Very interesting. The po...

peace_lover

•6 years ago

67 Replies

Severe pain in hip after PMR flare

Last week I had a flare. I was almost at 8mg (DSNS) so I went back to 10mg and the GP told me to stay there for a month before trying to taper again. The pain...

Last week I had a flare. I was almost at 8mg (DSNS) so I went back to 10mg and t...

Omanain

•6 years ago

32 Replies

Vitamin D study

https://www.theguardian.com/society/2018/oct/04/vitamin-d-supplements-dont-help-bone-health-major-study-concludes Thoughts anyone?

https://www.theguardian.com/society/2018/oct/04/vitamin-d-supplements-dont-help-...

peace_lover

•6 years ago

20 Replies

Anyone had the flu jab in the UK this Year ?

Went to see my GP a couple of weeks ago for the results of a dexa scan. I'd declined the Alendronic acid and he insisted on the scan. Anyway my T score was...

Went to see my GP a couple of weeks ago for the results of a dexa scan. I'd decl...

Andymurph

•6 years ago

39 Replies

Top Lady

Dear Dorset Lady. Your tapering plan has been invaluable to me. Thanks for taking the time to post it on PMRGCAuk Now down to 2mg/1mg Your taper & Kate...

Dear Dorset Lady. Your tapering plan has been invaluable to me. Thanks for takin...

rewerb

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

RA

Can PMR be triggered by exposure to electo-magnetic fields?

Prednisolone Reduction Rate

New to the site.

Tightening around arms?

Zolronate infusion

Cannabis Oil to be available on prescription in uk within a month

Most exhausting activity???

The Hot Hole Dig Competition

Parker Digs M’Lady’s Hot Beach Hole

Downer Days PMR, GCA, Fibro

PMR on Hot Water Beach Taurui

LIFE 🤔🤔

Helminth therapy

MRI necessary to diagnose TMJ?

Exercising with a bit of pain and stiffness.

Not coping to well today!!!!!

PMR/GCA and stress.

Moon face feelings

Naive question - should I be pain free on Pred?

Zoledronic Acid for osteopenia

Interesting NHS news

Support team

Early days but strange pains

The Clumsiness of It!

The Placebo Experiment

Severe pain in hip after PMR flare

Vitamin D study

Anyone had the flu jab in the UK this Year ?

Top Lady

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