Most exhausting activity???

[Constance13]

Mine used to be rolling out of bed in the morning, waddling to the bathroom, waiting 15 minutes then washing and dressing.

Now it’s “showering”!😟

[Hidden]

For me... the most exhausting activity was changing the bedding! That is still tiring, but walking and talking at the same time, is impossible! 😩

[Constance13 in reply to Hidden]

I get my OH to change the bed.😀 And I can talk the hind leg, etc etc while walking, as long as I have my rollator!

[Hidden in reply to Constance13]

Hahahahaha, good for you Constance13!!!!

[MaryA_ in reply to Hidden]

You said it! It’s the same for me too 🙄

[SheffieldJane in reply to Hidden]

Really Muck should be doing that Melissa. I dump all the clean bedding on the stripped bed and make helpless mewling noises. My mattress weighs a ton.

[Hidden in reply to SheffieldJane]

🤣 "...helpless mewling noises?' Too funny! It's better now than it used to be... it used to take me hours, as I'd fall on the mattress at various points in the process, and have to rest!!! Now I can do it all in one go, it's just a looonger go !

[Telian in reply to SheffieldJane]

Simple asking works for me - if I had anyone to ask! ....and yes our mattress weighs a ton too - and yet your supposed to turn it once a month - they should supply someone to do it!

[SheffieldJane in reply to Telian]

If it ain’t broke etc........😉

[stellafmdm in reply to Hidden]

Me too Melissa, but showering runs a close second!

[pmrgcavictim]

Hello Constance, the most exhausting activity at the start of my PMR was, how the heck am I going to move. Trevor.

[HeronNS in reply to pmrgcavictim]

Yep. Took me half an hour to get up off the floor one evening after doing what I could still manage of my back exercises. Nowadays, after more than three years of pred, it's more emotional stress which wears me out.

[SheffieldJane]

It exhausts me too and makes me want to go back to sleep which I sometimes do - damp.

[Constance13 in reply to SheffieldJane]

Thank goodness for terry towelling bathrobes.🙂

[Joaclp]

Taking a shower definitely. And washing hair. And I have a chair in my shower! Go to my bed clean in the middle of the day, soooo tired.

[Constance13 in reply to Joaclp]

What I’m waiting for is a “body wash machine” like the ones for the car. You walk in, water and shampoo are squirted at you, then washed off, and lastly you are dried as you walk out of the shower.😂😂😂

[HeronNS in reply to Constance13]

While interviewing contractors for our anticipated reno, one of them told me he'd recently installed a shower with 12 body jets.

[Constance13 in reply to HeronNS]

I had one, but when we moved didn’t bother to buy a new one. I found the jets hit the wrong places, two of which were eye level.😟 It was a tall man that installed it!!!

[Telian in reply to HeronNS]

My son has just had one installed in the family bathroom - he's not impressed even by the look of it - sticks to his en-suite 'normal' shower --DIL wanted it and she has the final say.....

[HeronNS in reply to Telian]

Now they each have a shower.

[Telian in reply to HeronNS]

They always have - 3 en-suites plus family bathroom and a downstairs washroom.

[Jackoh in reply to Telian]

Think of all that cleaning!! - do they have a cleaner as well?!

[Telian in reply to Jackoh]

Jackoh the reply to me is for you!

[Telian in reply to Telian]

No she doesn't think they'll do a good enough job! OH has his duties at the weekend but mainly she does it herself! Workaholic she is...... I keep telling her it's going to catch up with her but.....

[Hidden in reply to Constance13]

🤣🤣🤣

[kay7954 in reply to Joaclp]

Me too, showering and washing my hair just wipes me out.

[Joaclp in reply to kay7954]

I showered and washed my hair this afternoon and then slept 2 hours.

[Joaclp]

I'd have to lose weight to expose myself in such a wonderful machine. I could cover myself in wet rags, I suppose! 😁🤣😂😁

[PMRpro Ambassador]

I have to say - showering is the least of my problems!!! We don't get dirty these days - so what on earth are you all DOING in the shower?!!!! Hairwashing is a bit different - but it doesn't send me back to bed.

If I have shoulder/arm problems like that it is usually because I need a smidgeon more pred - it is an early sign of more disease activity for me.

[Constance13 in reply to PMRpro]

You’re right, these days people shower too often. My husband had a colleague who showered 3 times a day (including mid-day in the college). God knows what his skin was like! I was warned not to shower/bath more than twice a week because I have extremely dry skin.

[PMRpro Ambassador in reply to Constance13]

I swear that is why I have no real skin problems despite 9 years of pred! When I do shower I use no soap - if I do I peel for the next few days! Soap is for hair - and that is washed about once in 2 or 3 weeks usually. I've just managed 4 weeks - I had hoped I could manage another few days and go to the hairdresser, it needs tidying up in the process of growing out the bad cut from the early spring. But no - from one day to the next I couldn't stand it!

[Constance13 in reply to PMRpro]

As yours did at first withPMR, my hair has “changed” in this last year or so. I used to have very fine flyaway hair, now it’s like wire, dreadful! It just sticks out all over the place, no controlling it at all.😟

[PMRpro Ambassador in reply to Constance13]

Mine seems to be getting more flyaway - or maybe it is the change of shampoo.

[Grants148]

I find washing my hair and sometimes ,more often now , having to use a colour on it,a real chore,and it takes quite a while to dry,being thick in places,but rather thin on the top ,thanks to the Pred.lt was really hard to do when l first had PMR,because of the pain in my arms.l find that my hair also seems to stick out all over the place and in damp weather goes really limp .Definately in a much poorer condition than it used to be.

[Telian in reply to Grants148]

Your hair sounds exactly like mine, apart from the colouring..... I blame the high dose pred plus having cancer treatments at the same time didn't help me - hair is gradually settling down but it is 4 years on......

[Jazzys]

I did get that feeling. I am so thankful that we redid our shower several years ago and added a bench and a walking shower. I couldn't take a short if not for the bench. It is exhausting. I hope that you regain your strength soon.