Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,032 posts

All posts for October 2018

Euphoria when starting pred..

Just read the booklet "Living with PMR&GCA produced by PMR&GCA uk North East. (Which is brilliant btw) . "At first you may feel quite euphoric and "high" as...

Just read the booklet "Living with PMR&GCA produced by PMR&GCA uk North East. (W...

Funky-Butt

•6 years ago

22 Replies

Hair Loss

Hi all, I am wondering if my hair will grow back as the dose of pred. reduces. If it carries on like it is I will be bald by Christmas! EEK! I have GCA and was...

Hi all, I am wondering if my hair will grow back as the dose of pred. reduces. I...

sharonnorfolk

•6 years ago

17 Replies

Thank you for support!!!❤️❤️

I wanted to thank everyone for their support during my downer period. When I hear from all of you, it makes me feel less alone and adjust my thinking. Suzy...

I wanted to thank everyone for their support during my downer period. When I hea...

Dream21

•6 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Scam alert..................

Beware! I have just had a long email from someone who goes by the name SUS101. She starts by saying she has less than a week to live, and then says'you are...

Beware! I have just had a long email from someone who goes by the name SUS101. S...

karools16

•6 years ago

78 Replies

New to PMR GCA - Looking for diet-related treatment

Hi folks. I am so happy to have found this site! I was just diagnosed yesterday and put on prednisone. This is my second diagnosed autoimmune disease - I...

Hi folks. I am so happy to have found this site! I was just diagnosed yesterda...

BeansHB

•6 years ago

14 Replies

Lefluminide and flu jab

I have started, two weeks ago,taking Lefluminide along with 7.5 pred. I am due to have my flu jab tomorrow. Is it ok , will it interfere with the Lefluminide?...

I have started, two weeks ago,taking Lefluminide along with 7.5 pred. I am due t...

Jeanjean16

•6 years ago

1 Reply

A bleed into skin at eye

Harbel here introducing myself. I have been stalking you since discovering your most helpful site a couple of weeks ago and thank you all for the much needed...

Harbel here introducing myself. I have been stalking you since discovering your ...

Harbel

•6 years ago

21 Replies

How Difficult should this Be?

Am really fed up with this situation. I live in Fife, am 71 and have PMR. I phoned our surgery a week ago to ask which flu vaccine I would get as my immune...

Am really fed up with this situation. I live in Fife, am 71 and have PMR. I phon...

Carol-mc

•6 years ago

24 Replies

Tapering and went Back to work full time last week

Hi everyone, Haven’t posted in a while but on the forum everyday. I started tapering from 15mg Pred about 6 weeks ago now! a week before starting on 12.5 I...

Hi everyone, Haven’t posted in a while but on the forum everyday. I started t...

Angie6969

•6 years ago

18 Replies

Salissbury meeting

The next Salisbury group meeting will be held on Tuesday 16th October. Usual place: Edinburgh Wool Mill Resturant in Wilton Shopping Village. Time: 11am -...

The next Salisbury group meeting will be held on Tuesday 16th October. Usual pl...

podo

•6 years ago

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Getting 'better' (maybe)

Greetings Everyone It has recently dawned on me that I am feeling or maybe 'remembering' my 'old self'. Here I am again - reprising last year (which was the...

Greetings Everyone It has recently dawned on me that I am feeling or maybe 'reme...

Rimmy

•6 years ago

27 Replies

Has ANYBODY recovered from PMR in less than 2 years?

Since being diagnosed in August I’ve been an avid reader of posts and have met many lovely people suffering from PMR. However so far I’ve not come across...

Since being diagnosed in August I’ve been an avid reader of posts and have met m...

Bamber99

•6 years ago

20 Replies

One week in and 2nd doctor appt.

Saw doctor one week after starting Pred and he’s more certain it’s pmr because the groin pain disappeared so quickly and he’s now added in alendronic acid and...

Saw doctor one week after starting Pred and he’s more certain it’s pmr because t...

Yellowbluebell

•6 years ago

9 Replies

Tapering success

So, my question... when do I know my taper is being successful? In other words, how long do I need to wait at 6 mg, before I can trust my new level is...

So, my question... when do I know my taper is being successful? In other words...

Purplecrow

•6 years ago

5 Replies

I’m still here 😂

Halo everyone, how are you doing ? Well thought I’d drop in an give you an update as you’ve all been so kind an supportive, my eyes are doing fine an have...

Halo everyone, how are you doing ? Well thought I’d drop in an give you an updat...

Monkeymate

•6 years ago

26 Replies

Tears

Took myself off for a walk in our local wood this afternoon, well more of a slow wobble than a walk ! Part way round I perched on a bench and just drank in...

Took myself off for a walk in our local wood this afternoon, well more of a slow...

GrannyDi

•6 years ago

19 Replies

Mesh implants and autoimmune disease

I was watching a morning news program on BBC when they started talking about mesh implants, how the procedure has been probablematic for thousands of people....

I was watching a morning news program on BBC when they started talking about me...

Gaijin

•6 years ago

36 Replies

A guy walks into a bar…

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/10/09/a-guy-walks-into-a-bar/ No Warning; This post does not contain strong language or...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/10/09/a-g...

Hidden

•6 years ago

66 Replies

New problem in my hands

Hello Friends, Over the last two weeks I have noticed a change in my hands. Mostly the right one, but a little in the left as well. They are stiff and painful...

Hello Friends, Over the last two weeks I have noticed a change in my hands. Most...

AliDeJ

•6 years ago

17 Replies

Please help

I'm really freaked out that I could have an eye parasite. I often feel like there's something in my eye like there's movement. The corner of one of my eyes is...

I'm really freaked out that I could have an eye parasite. I often feel like ther...

Gamer_girl

•6 years ago

6 Replies

Alcohol.

Discovering alcohol does not go down well with pmra. Or arthritis

Rocketronzy

•6 years ago

28 Replies

Tapering

Hello everyone, I have just as 4 days ago was able to taper down from 12 mg to 11 mg each day. The last two days I have been experiencing hot flashes...

Hello everyone, I have just as 4 days ago was able to taper down from 12 mg to...

CRW-68

•6 years ago

13 Replies

What are the specific eye symptoms that precede sight loss?

Hi gang, newbie here! Not me with the PMR_GCA but other half who is 66 next week. He's had PMR for about three months, diagnosed last week when he popped the...

Hi gang, newbie here! Not me with the PMR_GCA but other half who is 66 next wee...

Funky-Butt

•6 years ago

12 Replies

Suspected GCA

I spent 5 hrs in ophthalmology today 😟sent by GP with jaw ache radiating to temples, numb roof of mouth and sides of my tongue, blurred vision, weird....

I spent 5 hrs in ophthalmology today 😟sent by GP with jaw ache radiating to tem...

Wraysbury

•6 years ago

30 Replies

"Participants-needed-for-study-about-taking-medications" - have a look if you are interested

https://healthunlocked.com/lupusuk/posts/139084524/participants-needed-for-study-about-taking-medications?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=no

https://healthunlocked.com/lupusuk/posts/139084524/participants-needed-for-study...

PMRpro

Ambassador•6 years ago

15 Replies

Can you have GCA even though sed rate and mri is fine

Gca

orange22

•6 years ago

10 Replies

Flu Jab

Can someone help please, I wonder if I should have a flu jab I have never had one. I have Autoimmune Hepatitis and PMR I take 8mg at the moment but am...

Can someone help please, I wonder if I should have a flu jab I have never had on...

Maryfrombury

•6 years ago

33 Replies

Holiday insurance

Having just typed all this, before posting it I made a call to our previous (3 years ago) insurers and have probably got the answer. But I'll post it anyway as...

Having just typed all this, before posting it I made a call to our previous (3 y...

Roltuba

•6 years ago

19 Replies

The cost of GCA & PMR..........

On 31st August a press release was sent out it contained this statement: "Five women are launching a trans-Atlantic survey to help find the causes – and cure –...

On 31st August a press release was sent out it contained this statement: "Five w...

jinasc

•6 years ago

34 Replies

Tapering

Started my planned slow taper this am just dropped 1/2 mg and have leg pain. I plan 10mg and 9 1/2 mg every other day for at least 2 weeks. Would such a...

Started my planned slow taper this am just dropped 1/2 mg and have leg pain. I ...

SuziCutie

•6 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Euphoria when starting pred..

Hair Loss

Thank you for support!!!❤️❤️

Scam alert..................

New to PMR GCA - Looking for diet-related treatment

Lefluminide and flu jab

A bleed into skin at eye

How Difficult should this Be?

Tapering and went Back to work full time last week

Salissbury meeting

Getting 'better' (maybe)

Has ANYBODY recovered from PMR in less than 2 years?

One week in and 2nd doctor appt.

Tapering success

I’m still here 😂

Tears

Mesh implants and autoimmune disease

A guy walks into a bar…

New problem in my hands

Please help

Alcohol.

Tapering

What are the specific eye symptoms that precede sight loss?

Suspected GCA

"Participants-needed-for-study-about-taking-medications" - have a look if you are interested

Can you have GCA even though sed rate and mri is fine

Flu Jab

Holiday insurance

The cost of GCA & PMR..........

Tapering

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