Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,026 posts

All posts for October 2018

Tip for the ladies

Hi An unwanted side effect of Pred is often weight gain. I have developed breasts of " a good handful" as described by my husband. Apologies to our male...

Hi An unwanted side effect of Pred is often weight gain. I have developed breast...

Valnvaughan

•6 years ago

18 Replies

Help needed with Flare Up when tapering

Brief history, was diagnosed with PMR in June and was following my Rheumatolgist’s tapering plan – 15 mg for 2 weeks then 12.5 for 4 weeks then 10 mg for 4...

Brief history, was diagnosed with PMR in June and was following my Rheumatolgist...

Theziggy

•6 years ago

29 Replies

Thank Goodness I rang

A couple of weeks ago I was getting GCA symptoms back. So Rhumy put steroids back up to 30mgs. My CPr readings had rose from 1.8 to 16.5 (no where near the 184...

A couple of weeks ago I was getting GCA symptoms back. So Rhumy put steroids bac...

Cairn

•6 years ago

44 Replies

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Yesterday? Not Inappropriately Happy, but a Pretty Good Day!

So, my first phone call of the day yesterday was to the Royal Sussex County Hospital (RSCH) PALS Department. A very nice, young woman, named Maria listened...

So, my first phone call of the day yesterday was to the Royal Sussex County Hosp...

Hidden

•6 years ago

65 Replies

Nice wake up call

My gorgeous 6 year old stays with us a lot and this morning decided his nanny needed an early morning cup of tea (with grandad help). Very nice treat...

My gorgeous 6 year old stays with us a lot and this morning decided his nanny ne...

Yellowbluebell

•6 years ago

13 Replies

Parker and Penny The Last Leg

This is the final stage of our epic journey. We fly to Las Vegas tomorrow from Rorotonga in the Cook Islands. As we come towards the end of the fantastic trip...

This is the final stage of our epic journey. We fly to Las Vegas tomorrow from R...

Estellemac

•6 years ago

29 Replies

So now it's psyriasis arthritis

Saw my consultant today and after a scan of my wonky foot and further discussion he now feels my condition is psyriasis arthritis. At this point the flood...

Saw my consultant today and after a scan of my wonky foot and further discussion...

TJ03

•6 years ago

12 Replies

Knowledgeable physiotherapist

I had an appointment booked with a specialist physiotherapist before I was told I have PMr and after reading in the forum that specialists don’t always know...

I had an appointment booked with a specialist physiotherapist before I was told ...

Yellowbluebell

•6 years ago

12 Replies

Plaquenil as a steroid sparing agent

Hi Everyone I was wondering if anyone has tried plaquenil as a steroid sparing agent? I finally agreed to take it. I was diagnosed with pmr 22 months ago....

Hi Everyone I was wondering if anyone has tried plaquenil as a steroid sparing a...

Linny3

•6 years ago

29 Replies

scam post

I onlypeace555 sent you a message: I am very sorry for using this media to contact you, i have prayed and fast before making this decision, just last week...

I onlypeace555 sent you a message: I am very sorry for using this media to c...

Celebrant

•6 years ago

13 Replies

Predsone

If any one needs some. I got extras. 1mg I get extra every time I go ❤️😉

Mjhollywood1

•6 years ago

5 Replies

Had The Flu Jab Today! Declined The Shingles One!

Personal decision on this! Read earlier posts,references & the devil is in the detail! Who knows? What I can say is that my GCA followed straight after...

Personal decision on this! Read earlier posts,references & the devil is in the ...

Hidden

•6 years ago

20 Replies

If you're still hesitating about getting a flu jab...

Follow the link: https://www.npr.org/sections/health-shots/2018/10/14/656290155/last-year-the-flu-put-him-in-a-coma-this-year-hes-getting-the-shot

Follow the link: https://www.npr.org/sections/health-shots/2018/10/14/656290155...

GOOD_GRIEF

•6 years ago

4 Replies

New medication!

Hi all, need some advice re new meds. I saw the Rhumy last month and she wants me to try Ibandronic acid 150mg monthly, as i refused to take AA. I am on 7.5mg...

Hi all, need some advice re new meds. I saw the Rhumy last month and she wants m...

jlyndauk2002

•6 years ago

41 Replies

GP is refusing to prescribe enteric coated Prednislone

I want to stop taking lansoprozole and rely on yoghurt instead to protect the stomach from the steroids. I have been taking the uncoated preds and thought the...

I want to stop taking lansoprozole and rely on yoghurt instead to protect the st...

pinks33

•6 years ago

35 Replies

Bilateral buttock and upper back of thigh pain

I am having bilateral lower buttock pain and upper back of thigh pain which is much worse when sitting. It is like a band all the way across my lower buttocks....

I am having bilateral lower buttock pain and upper back of thigh pain which is m...

Hidden

•6 years ago

20 Replies

Thanks for all your support

just seen GP and gd news. My iron level has shot up since August with my reformed diet. She apologised that the other GP told me re renal failure and said she...

just seen GP and gd news. My iron level has shot up since August with my reforme...

Wraysbury

•6 years ago

7 Replies

Question on preds

Hi there, I have read suggestions about asking my dr for gastro-resistant preds so I wouldn't need to take lansaprozole (think thats the right spelling!) which...

Hi there, I have read suggestions about asking my dr for gastro-resistant preds ...

Lonsdalelass

•6 years ago

13 Replies

Hello - I am new and wondering if I have to accept a trade off re: pain and side-effects.

Hi everyone I am new to the forum - I am so please to know there is support out there and I am not the only one with PMR. I am a 56 yo woman who got a PMR...

Hi everyone I am new to the forum - I am so please to know there is support out ...

EscapedtoWales

•6 years ago

64 Replies

Prednisone supply.

HI. Not to incite a riot... but just out of curiosity.. as I am reading the paper here in the US about "Preppers" for Brexit...just in case.. any of you...

HI. Not to incite a riot... but just out of curiosity.. as I am reading the pape...

yogabonnie

•6 years ago

35 Replies

Side effects of Prednisilone versus GCA

A topic I haven't seen raised, or might have missed, is one of the side effects of prednisilone versus GCA. I have suffered from CGA for around ten years...

A topic I haven't seen raised, or might have missed, is one of the side effects ...

Stkeyna

•6 years ago

10 Replies

No Chance of "Inappropriate Happiness" Today!

I showed up for my 11:45 appointment with the Rheumatologist, at 11:15. Bright-eyed and bushy-tailed, I was eager to see her! It's been 6 months since I've...

I showed up for my 11:45 appointment with the Rheumatologist, at 11:15. Bright...

Hidden

•6 years ago

179 Replies

Advice please. Sickness & diarrhoea bug

Hello. I posted a few days ago worried about gca as had headaches etc. Think now that I was coming down with some sort virus. I'm feeling unwell with terrible...

Hello. I posted a few days ago worried about gca as had headaches etc. Think now...

Bubbsyboo

•6 years ago

8 Replies

Medical students

My surgery rang yesterday to ask if I would be a patient for medical students. Requested specifically as I had GCA/PMR. Consultation done this morning and...

My surgery rang yesterday to ask if I would be a patient for medical students. R...

Pamela60

•6 years ago

7 Replies

UTIs

I am plagued with UTIs. Really getting out of hand. I've tried everything, cranberry, D mannose, nothing is helping. Continually back on antibiotics. Not to...

I am plagued with UTIs. Really getting out of hand. I've tried everything, cran...

powerwalk

•6 years ago

24 Replies

childish?

good morning my forum friends. This is not a technical question, but I wonder if there are more pmr and/or gca people experiencing this and how to tackle the...

good morning my forum friends. This is not a technical question, but I wonder if...

Zofitmogelijk

•6 years ago

15 Replies

Burning feeling in scalp

Morning all. I am currently on 9mg pred and was doing okayish. Last night, went to bed with a feeling like the top of my head was burning. Couldn’t sleep so...

Morning all. I am currently on 9mg pred and was doing okayish. Last night, went...

Suet3942

•6 years ago

6 Replies

'INAPPROPRIATE HAPPINESS' - HOW DARE WE !!!??

Hello Everyone Well we all know about the ZILLIONS of 'side effects' we might expect from taking Prednisone - the list seems 'endless' and I am almost positive...

Hello Everyone Well we all know about the ZILLIONS of 'side effects' we might ex...

Rimmy

•6 years ago

29 Replies

Tingling Scalp & Headache

On 60 mg of pred since september 21. diagnosed with PMR/GCA - 9/17- initial dose was 20 mg for 5 days - have seen rhuemy every two weeks - return 10/30- will...

On 60 mg of pred since september 21. diagnosed with PMR/GCA - 9/17- initial dose...

Mks9558

•6 years ago

10 Replies

NHS Appointments system... blurgh...

So, OH asked GP for a referral to see one of two rheumies at QE Gateshead who have an interest in PMR & GCA. (He tried to ask for a named doc but apparently...

So, OH asked GP for a referral to see one of two rheumies at QE Gateshead who h...

Funky-Butt

•6 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Tip for the ladies

Help needed with Flare Up when tapering

Thank Goodness I rang

Yesterday? Not Inappropriately Happy, but a Pretty Good Day!

Nice wake up call

Parker and Penny The Last Leg

So now it's psyriasis arthritis

Knowledgeable physiotherapist

Plaquenil as a steroid sparing agent

scam post

Predsone

Had The Flu Jab Today! Declined The Shingles One!

If you're still hesitating about getting a flu jab...

New medication!

GP is refusing to prescribe enteric coated Prednislone

Bilateral buttock and upper back of thigh pain

Thanks for all your support

Question on preds

Hello - I am new and wondering if I have to accept a trade off re: pain and side-effects.

Prednisone supply.

Side effects of Prednisilone versus GCA

No Chance of "Inappropriate Happiness" Today!

Advice please. Sickness & diarrhoea bug

Medical students

UTIs

childish?

Burning feeling in scalp

'INAPPROPRIATE HAPPINESS' - HOW DARE WE !!!??

Tingling Scalp & Headache

NHS Appointments system... blurgh...

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