Burning feeling in scalp

[Suet3942]

Morning all. I am currently on 9mg pred and was doing okayish. Last night, went to bed with a feeling like the top of my head was burning. Couldn’t sleep so took paracetamol about 12.30am. Woke up with a slight stiff neck. Head feels a little better. Any ideas?

[SheffieldJane]

Hi Sue!

It might be a virus. I have had a GCA mocking chest infection with pressure in my eyes and head, neck and chest pain. It’s always our first thought, isn’t it?

Mine has gone this morning and I haven’t wasted a day in ER or spoiled a good taper. See what painkillers do. If every instinct is on high alert, involve the doctors. Hope it’s all good!

[Suet3942 in reply to SheffieldJane]

Thanks Jane. I have been having problems with slight temple tenderness and sometimes sore scalp since the beginning of the year. Gets worse the more I taper. Seeing my consultant in November. If I see one more locum I am going to get referred to Southend hospital.

Glad you are feeling a lot better. This illness does cause confusion doesn’t it!!

[SheffieldJane in reply to Suet3942]

When I hear stories such as yours Sue, it makes me believe that there isn’t a hard line drawn between PMR and GCA. Stop tapering and don’t hesitate to increase whilst you are between medical advice. Your body is trying to tell you something. Wishing you the best, as ever!

[Suet3942 in reply to SheffieldJane]

Thank you Jane. You are a good source of knowledge. X

[Daisychain12 in reply to Suet3942]

Darling I wish I had something to offer but I am too scared to dabble in areas I am not qualified. Please check it out though and get back to us? Xxxx

[Suet3942 in reply to Daisychain12]

Linda it was so lovely of you to reply when you are feeling so horrible. Xxx🌸🌸