Brief history, was diagnosed with PMR in June and was following my Rheumatolgist’s tapering plan – 15 mg for 2 weeks then 12.5 for 4 weeks then 10 mg for 4 weeks and then drop by 1 mg every 4 weeks.
This worked well until I got to 9 mg and was on the 3rd week when I had two big flare-ups which prevented me walking or driving – one in the knee, followed by one in the shoulder and arm. My PMR starts very gently in the morning with a localised sharp point of pain in either the shoulder or the groin and then develops through the day into a full blown flare-up, which stays full blown for at least 2 days.
So I went back up to 15 mg for a week and dropped to 25 mg for a fortnight, before dropping to 10, thinking that this time I would do the DSNS 26 day program when I got to taper to 9 mg. However, on Wednesday had the localised sharp point of pain in my right groin and on Thursday two of my fingers on my right hand were getting very stiff, and by evening I couldn’t close my fist and any movement of the fingers was extremely sore. Sleeping was impossible and when I got up today the back of my hand was swollen and red and very sore. So I took 15 mg this morning. I can just about drive and was glad it wasn’t my left hand as changing gears would be impossible
So, my question is when and what tapering program I should start again? I was thinking 15 for a week or until the flare-up had subsided, then 12.5 for 4 weeks followed by tapering off to 10 using the DSNS 26 day plan
Thanks in advance