Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for October 2018

Flu shingles jab

What’s feeling about this with PMR GCA ... never had flu jab doctors seem keen to give flu and shingles jab..., all surgeries seen so keen are they expecting...

What’s feeling about this with PMR GCA ... never had flu jab doctors seem keen t...

shella

•6 years ago

130 Replies

Do I increase dose?

I thought I was doing so well! Reduced all the way down to 2mg of pred stayed there for about 6 weeks then WHAM out of the blue got up Saturday morning (well...

I thought I was doing so well! Reduced all the way down to 2mg of pred stayed th...

Alison300356

•6 years ago

11 Replies

Oh what a night follow up ;-)

Hubby is home from hospital now .thank you for all your kind words .He is ok a bit weak but he is good at resting lol so no problems there !!! Just waiting...

Hubby is home from hospital now .thank you for all your kind words .He is ok a b...

patriciawhite

•6 years ago

8 Replies

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Feeling dizzy

I started Pred on the 2nd Oct and have beennok on it but today got up quite late, and feel really dizzy. Is this normal for Pred or is it because I have taken...

I started Pred on the 2nd Oct and have beennok on it but today got up quite late...

Yellowbluebell

•6 years ago

3 Replies

Support Groups

Does anyone know if there are any PmR support groups in Northern Ireland I could attend?

Does anyone know if there are any PmR support groups in Northern Ireland I could...

TJ03

•6 years ago

1 Reply

Is there any help out there?? It feels like I'm suffering in silence!

I have been suffering for over 7 -8 years with weak bones in my knee and acid problems and bowel problems. It took Drs a while to diagnose me, they started me...

I have been suffering for over 7 -8 years with weak bones in my knee and acid pr...

PurpleG

•6 years ago

11 Replies

Biopsy or not to Biopsy? That is the question.

I mentioned to my Eye Doctor that I have had some issues with waking up in the night and in the dark and not being able to see out of my right eye. I made the...

I mentioned to my Eye Doctor that I have had some issues with waking up in the n...

SoHereWeAre

•6 years ago

26 Replies

Is my hip pain a symptom of PMR

I suffered PMR 5 years ago and have been PMR and steroid free for 2 years. Over last 2 weeks I have had gradually increasing hip pain until today when the pain...

I suffered PMR 5 years ago and have been PMR and steroid free for 2 years. Over ...

Twitcher1

•6 years ago

24 Replies

FAO PMRpro

I wonder if you can help. I recently joined PMR&GCAuk North East Support. I would like to receive news letters by email but had a note with the booklet saying...

I wonder if you can help. I recently joined PMR&GCAuk North East Support. I wou...

Omanain

•6 years ago

5 Replies

Heart Monitor Outcome + Wallop On My Shin!!

Bear with me!! Pouring with rain on way to local rail station. Flat cap positioned against the wind! (Wife gave me a lift). Earlier train late so can use my...

Bear with me!! Pouring with rain on way to local rail station. Flat cap positio...

Hidden

•6 years ago

50 Replies

CBD medicinal use

I thought since there has been a lot of discussion about this recently that this link was worth posting about:...

I thought since there has been a lot of discussion about this recently that this...

PMRpro

Ambassador•6 years ago

31 Replies

More advice please.

Update on costochondritis.... that new pain (inflammation) in my breast bone and ribs seems to be a bit worse... It was better...but perhaps it was the pain...

Update on costochondritis.... that new pain (inflammation) in my breast bone and...

yogabonnie

•6 years ago

12 Replies

GCA - nasal and rectal bleeding

This is my first post so hello everyone and many thanks for all your helpful insights and advice so far. I was diagnosed with GCA in late July, started off...

This is my first post so hello everyone and many thanks for all your helpful ins...

pinks33

•6 years ago

15 Replies

Hollow/nervous sensation in stomach

Does anyone have a suggestion to combat that uncomfortable 'empty/nervous' feeling in stomach??

Does anyone have a suggestion to combat that uncomfortable 'empty/nervous' feeli...

Plonkerme

•6 years ago

16 Replies

The accidental gamble and win

My new avatar is my great grandson Jaxon. My last post ( 6 months ago) was to state that rheumy considered the PMR activity in my body was relatively inactive...

My new avatar is my great grandson Jaxon. My last post ( 6 months ago) was to st...

violetsnowdrop

•6 years ago

12 Replies

Consultant This week

So after a rough summer of ups and downs and a huge deterioration in my health about 6 weeks ago I'm back to the consultant this week to query what happened my...

So after a rough summer of ups and downs and a huge deterioration in my health a...

TJ03

•6 years ago

19 Replies

Advice on best GCA test and extreme tiredness

Hello, I have had 24/7 severe head pain - vice grip and really sore inside head (mostly 8 of a 10 pain scale) for 2.5 years. Not a headache since it never...

Hello, I have had 24/7 severe head pain - vice grip and really sore inside head ...

kellykel

•6 years ago

9 Replies

Newbe to the site

Hi All Diagnosed October 2015, started on 30mg pred, after several relapses managed to get off pred in May this year. Fine for 3+ months, then In Mid-Sept...

Hi All Diagnosed October 2015, started on 30mg pred, after several relapses mana...

Rover25

•6 years ago

14 Replies

Steroid induced Type 2 Diabetes

I've been diagnosed with Type2 Diabetes. My question is, will it go away when I come off Prednisolone? Has anyone experienced this? I'm only on 3mg now, but...

I've been diagnosed with Type2 Diabetes. My question is, will it go away when I ...

Sheilamac

•6 years ago

72 Replies

Dates of next Southend/Chelmsford PMRGCAuk Group Meetings

Come along to the Southend/Chelmsford Group meetings. Groups are a really great opportunity to meet, share with others and make friends who understand how...

Come along to the Southend/Chelmsford Group meetings. Groups are a really gre...

Telian

•6 years ago

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Jaw MRI result, “compromised” miniscus

Thanks to all the great suggestions from you-all I made it through my MRI the second time with no proplems, (and a cute technician helped too). The...

Thanks to all the great suggestions from you-all I made it through my MRI th...

Mstiles

•6 years ago

12 Replies

Coping with Chronic Pain , it's the simple things we miss most.

Hello friends, If you are in the UK like me I hope you are not being blown off into the dark grey yonder by this terrible wind . I was talking to a friend...

Hello friends, If you are in the UK like me I hope you are not being blown of...

Blearyeyed

•6 years ago

66 Replies

Is a Bursitis/Synovitis a symptom of PMR/GCA?

My OH with PMR and possibly GCA has a large sausage shaped bursitis/synovitis (I'm not actually sure what the difference is) in his groin/thigh. Found with...

My OH with PMR and possibly GCA has a large sausage shaped bursitis/synovitis (I...

Funky-Butt

•6 years ago

19 Replies

Cheek bone pain, deep earache on left side of head plus headache

Hello everyone. Can anyone tell me please if this cheek bone pain, deep earache on left side of head plus headache can be to do with pmr? I have very bad...

Hello everyone. Can anyone tell me please if this cheek bone pain, deep earache ...

Bubbsyboo

•6 years ago

39 Replies

Re: Severe pain in hip after PMR flare

I recently posted about the pain I had in my right hip (buttock really). I was unable to get an appointment to see my usual doctor and was in such pain I...

I recently posted about the pain I had in my right hip (buttock really). I was ...

Omanain

•6 years ago

15 Replies

Legalize marijuana

Anyone seeing progress with legalized marijuana for prednisone reduction?

casse

•6 years ago

13 Replies

Tapering Pred

A little concerned about how my PMR is being monitored. I was diagnosed on 14/14/2018 by having a blood test, put on 30 mg pred for a couple of weeks then 20...

A little concerned about how my PMR is being monitored. I was diagnosed on 14/14...

Horizon12

•6 years ago

30 Replies

Love this forum!

Just wanted to thank you all for the informative, caring posts you write. Has been a couple of months since typing in “ aching shoulders and sore hips” came...

Just wanted to thank you all for the informative, caring posts you write. Has ...

Evercurious

•6 years ago

19 Replies

Pituitary tumour update.

Hi all, I'm still here! I had the surgery to remove the large tumour on my pituitary. I am now 16 days post op and according to my surgeon, doing very well....

Hi all, I'm still here! I had the surgery to remove the large tumour on my pitui...

Hidden

•6 years ago

22 Replies

Renal failure

Just been told as a good bye comment from GP “oh ur blood results show u have renal failure”. HAVE I I replied. Last time her parting comment was oh “you’ve...

Just been told as a good bye comment from GP “oh ur blood results show u have re...

Wraysbury

•6 years ago

47 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Flu shingles jab

Do I increase dose?

Oh what a night follow up ;-)

Feeling dizzy

Support Groups

Is there any help out there?? It feels like I'm suffering in silence!

Biopsy or not to Biopsy? That is the question.

Is my hip pain a symptom of PMR

FAO PMRpro

Heart Monitor Outcome + Wallop On My Shin!!

CBD medicinal use

More advice please.

GCA - nasal and rectal bleeding

Hollow/nervous sensation in stomach

The accidental gamble and win

Consultant This week

Advice on best GCA test and extreme tiredness

Newbe to the site

Steroid induced Type 2 Diabetes

Dates of next Southend/Chelmsford PMRGCAuk Group Meetings

Jaw MRI result, “compromised” miniscus

Coping with Chronic Pain , it's the simple things we miss most.

Is a Bursitis/Synovitis a symptom of PMR/GCA?

Cheek bone pain, deep earache on left side of head plus headache

Re: Severe pain in hip after PMR flare

Legalize marijuana

Tapering Pred

Love this forum!

Pituitary tumour update.

Renal failure

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