Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,025 posts

All posts for October 2018

Optometrist and my GCA

Is it possible to have GCA when there is nothing showing in your eyes? Would be very grateful if someone can educate me in the matter.

Is it possible to have GCA when there is nothing showing in your eyes? Would be ...

prunus

•6 years ago

25 Replies

Any advice please

Dear fellow inhabitants of planet PMR. There is a wealth of personal experience on this forum and I would appreciate any advice for my current situation. After...

Dear fellow inhabitants of planet PMR. There is a wealth of personal experience ...

Ventdunord

•6 years ago

57 Replies

considering CBD, along with tapering prednisone

long time since i have posted, and have had a lot of family crisis in last 2 yrs, as well, started at 40 mg 2 yrs aga thx giving, down to 8, going to reduce...

long time since i have posted, and have had a lot of family crisis in last 2 yr...

arvine

•6 years ago

17 Replies

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Reply to Tedski Alert, The Lighter Side

I did not approach this individual, as I feared he might be dangerous. The black tie shows he is almost certainly a member of the dreaded PMR Dragon Society....

I did not approach this individual, as I feared he might be dangerous. The black...

Purple-Owl

•6 years ago

12 Replies

The Lighter Side: FAKE TEDSKI ALERT!!! Have You Seen a Bear Faced Imposter where YOU live…? ;-)

EXCLUSIVE REPORT by Investigative Reporter, Tony French, from the UK’s Weston super Mare Gazette. In between this week’s Blockbuster Local News Stories...

EXCLUSIVE REPORT by Investigative Reporter, Tony French, from the UK’s Weston su...

markbenjamin57

•6 years ago

44 Replies

Chemo drug used for PMR

I have taken 4 pills of this drug for 2 weeks now and have had no side effects but also no,improvement in getting out of my chair! Does anyone take this drug,...

I have taken 4 pills of this drug for 2 weeks now and have had no side effects b...

ayoung

•6 years ago

16 Replies

pain at back of hip

Up until I took Pred I have had unbelievable pain in my groin but never in my back at hip level. Today pain in this area hit big time half way through the...

Up until I took Pred I have had unbelievable pain in my groin but never in my ba...

Yellowbluebell

•6 years ago

14 Replies

Joints

Legal in Canada now, eh?

aladymo

•6 years ago

19 Replies

CBD oil companies

For those of you in the states and use cbd oil, do you have a favorite company that you buy from? Would you mind sharing who and why? Thanks

For those of you in the states and use cbd oil, do you have a favorite company t...

gtate1914

•6 years ago

18 Replies

Rejected for University Cancer Study! What The .......?

REF:... Previous post ... Doc's invite for online study of Cancer recovery! Well! Apparently I don't fit in to their criteria for this online University...

REF:... Previous post ... Doc's invite for online study of Cancer recovery! Wel...

Hidden

•6 years ago

11 Replies

prednisone boost?

So I have a long long flight to Sweden from Minnesota tomorrow, and I am still battling this fool costochondritis and was thinking maybe taking 10mg today and...

So I have a long long flight to Sweden from Minnesota tomorrow, and I am still b...

yogabonnie

•6 years ago

24 Replies

Tip of tongue red and sore

Any thoughts on what might cause or cure this please? I have Large vessel GCA on prednisone and Tocilizumab infusions aspirin citalopram and amlodipine but...

Any thoughts on what might cause or cure this please? I have Large vessel GCA on...

Hidden

•6 years ago

5 Replies

Flare

I ave only been taking Medrol for about three months, and because of the idiocy of my Rheumy, who had me taper to quickly, I have already had two flares. I was...

I ave only been taking Medrol for about three months, and because of the idiocy ...

Manchild

•6 years ago

12 Replies

Prednisone and low blood pressure

I've had high blood pressure for many years and take medication for it. I've had PMR for four months and have tapered down to 11.5 mg. Lately, when I stand up,...

I've had high blood pressure for many years and take medication for it. I've had...

Reader7

•6 years ago

14 Replies

Knee Surgery/PMR/GCA

So I am curious, a number of folks seem to have had knee issues, needed knee replacement and also have PMR and/or GCA. I am wondering just how prevalent the...

So I am curious, a number of folks seem to have had knee issues, needed knee rep...

Mks9558

•6 years ago

4 Replies

Adrenal insufficiency

Good evening lovely people. Probably telling you something you all know already but just wanted to share with you the danger of reducing steroids too quickly....

Good evening lovely people. Probably telling you something you all know already...

cmj33g

•6 years ago

14 Replies

Am I having a flare up?

I have been going really steadily and not feeling to bad while tapering down I've just got to 6 m and today I awoke with a stiff/sore neck headache slight pain...

I have been going really steadily and not feeling to bad while tapering down I'v...

Jamie345

•6 years ago

19 Replies

Hurt and pain every day.

Feel like my groin and Achilles tendon are pulling apart. I was down to the 6/7 tablet and doing okay. Not so much now. Going back to 10 for a few days and...

Feel like my groin and Achilles tendon are pulling apart. I was down to the 6/7 ...

Celebrant

•6 years ago

2 Replies

Invite To Medical Studies! "University Stuff"! Or Not!!

An invite to take part in a study from the docs! Can't knock it if means progress! Hope so! This one was for my colon cancer recovery!

An invite to take part in a study from the docs! Can't knock it if means progres...

Hidden

•6 years ago

13 Replies

New Pain

Hi All, Had a wonderful family vacation at Woodloch Pines resort in Hawley, Pa. However, I have a pain on the left side only, from knee to ankle. It’s worse...

Hi All, Had a wonderful family vacation at Woodloch Pines resort in Hawley, Pa. ...

Sandy1947

•6 years ago

22 Replies

Yikes! What in the world have I done?

I went to my local surgery this morning as I heard they were having a Flu Jab Clinic... I went thinking I'd ask questions and "maybe" consider getting one......

I went to my local surgery this morning as I heard they were having a Flu Jab Cl...

Hidden

•6 years ago

86 Replies

An update and some excitement and anxiety about the next couple of weeks

Tentative PMR diagnoses late August and started on 15mg Pred, then 20mg and a whopping 60mg short-term on specialist advice pending a hospital referral I have...

Tentative PMR diagnoses late August and started on 15mg Pred, then 20mg and a wh...

KinnearD

•6 years ago

14 Replies

Could this be PMR?

Hi everyone. Since February this year I’ve started to develop pain in various parts of my body. First it was my left shoulder which I put down to sitting...

Hi everyone. Since February this year I’ve started to develop pain in various pa...

browny52

•6 years ago

21 Replies

Erythromelalgia

A friend in her 90s has been in remission from PMR for many years. She has now been diagnosed with Erythromelalgia which I see from Dr Google can be caused by...

A friend in her 90s has been in remission from PMR for many years. She has now b...

Janstr

•6 years ago

2 Replies

New Member

I am so pleased to have found this support group as I am 75 and live alone. I've had PMR since December of 2017 and have found being alone in pain very...

I am so pleased to have found this support group as I am 75 and live alone. I've...

Ozark

•6 years ago

31 Replies

Did I forget my dose??

Hello all..... Hope you're all doing as well as can be expected. I picked up my dosset box yesterday morning and it looked like I missed a dose. The dosset...

Hello all..... Hope you're all doing as well as can be expected. I picked up my...

IdasMum

•6 years ago

21 Replies

Can a persistent cough be caused by steroids?

For a long time, years on and off, I have a cough. Looking back I do wonder if it can be connected with the steroids. I have had a lung X-ray which was clear....

For a long time, years on and off, I have a cough. Looking back I do wonder if i...

Deemar

•6 years ago

15 Replies

Steroid sparing drugs.

I have read some of the posts from folk who are now taking steroid sparing drugs (immunosuppressants). I wonder how effective they are. Some of these these...

I have read some of the posts from folk who are now taking steroid sparing drugs...

Primarose

•6 years ago

27 Replies

Fracture

I had a minor fall indoors about 6 months ago, and knocked my elbow, I presumed I had just bruised the bone but the pain continued and recently got more...

I had a minor fall indoors about 6 months ago, and knocked my elbow, I presumed ...

Jamie345

•6 years ago

3 Replies

Brilliant insights - thank you all

Having joined and posted just recently I want to say a big ‘Thank you’ to all. Having been diagnosed in Oct 15 I have received more help and insight about PMR...

Having joined and posted just recently I want to say a big ‘Thank you’ to all. H...

Rover25

•6 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2018

Optometrist and my GCA

Any advice please

considering CBD, along with tapering prednisone

Reply to Tedski Alert, The Lighter Side

The Lighter Side: FAKE TEDSKI ALERT!!! Have You Seen a Bear Faced Imposter where YOU live…? ;-)

Chemo drug used for PMR

pain at back of hip

Joints

CBD oil companies

Rejected for University Cancer Study! What The .......?

prednisone boost?

Tip of tongue red and sore

Flare

Prednisone and low blood pressure

Knee Surgery/PMR/GCA

Adrenal insufficiency

Am I having a flare up?

Hurt and pain every day.

Invite To Medical Studies! "University Stuff"! Or Not!!

New Pain

Yikes! What in the world have I done?

An update and some excitement and anxiety about the next couple of weeks

Could this be PMR?

Erythromelalgia

New Member

Did I forget my dose??

Can a persistent cough be caused by steroids?

Steroid sparing drugs.

Fracture

Brilliant insights - thank you all

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