Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2018

A lesson possibly to be learned!

Wednesday was a lovely sunny day but as I drove the short distance to the farm shop I couldn't see the cars properly in the distance. When I arrived there I...

Wednesday was a lovely sunny day but as I drove the short distance to the farm s...

Jackoh

•6 years ago

40 Replies

Leeds Community Hub 10 September

Thank you to Sue an Sue for a really good meeting. Sarah was an excellent speaker well informed and knowledgeable. Her answers to our questions helped me...

Thank you to Sue an Sue for a really good meeting. Sarah was an excellent speak...

Estellemac

•6 years ago

8 Replies

Insomia

Hi, Has anybody found a solution to sleepless nights from long term intake of Prednisone. Sleeping pills made me so drowsy and tired that I felt the whole...

Hi, Has anybody found a solution to sleepless nights from long term intake of P...

Orchid47

•6 years ago

14 Replies

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Question on tapering

I started my pred at 60 mg in June 2017 when diagnosed with GCA, now done to 7mg now using a very slow taper. However I sometimes experience slight or...

I started my pred at 60 mg in June 2017 when diagnosed with GCA, now done to 7mg...

Robert09

•6 years ago

10 Replies

PMR ...is it in the family ?

I’ve just informed my Aunt of my PMR diagnosis, to be told that her son and one of her sisters had it as well. So that’s an Aunt (on my mother’s side) and a...

I’ve just informed my Aunt of my PMR diagnosis, to be told that her son and one ...

chillipeppergirl32

•6 years ago

32 Replies

Another medication and first virus of the year

Some of you may remember that when I saw the rheumatologist he confirmed that I had fibromyalgia as well as PMR. When I saw my GP on the 28th he'd not heard...

Some of you may remember that when I saw the rheumatologist he confirmed that I ...

Louisepenygraig

•6 years ago

7 Replies

Wasn’t No Stoppin Me!

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/10/wasnt-no-stoppin-me/ Warning; Hmmm? NO WARNING! Does not contain strong language...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/10/wasn...

Hidden

•6 years ago

33 Replies

A real respite!

We are off to a cabin in Northern Minnesota where I will write my stories, read books and study Swedish. My husband will fish from the dock and we will paddle...

We are off to a cabin in Northern Minnesota where I will write my stories, read ...

yogabonnie

•6 years ago

19 Replies

Is rheumatology 'acute'?

I posted recently about my September hospital appointment being cancelled and re-arranged for March (What's up with the NHS?). I just spoke with the...

I posted recently about my September hospital appointment being cancelled and re...

Marijo1951

•6 years ago

22 Replies

At a standstill

I was at 45mg when I started to flare, went up to 65mg w/o consulting rheumy who was unavailable. She insisted on going back to 45, 65-60-55-50-45 over the...

I was at 45mg when I started to flare, went up to 65mg w/o consulting rheumy who...

gtate1914

•6 years ago

11 Replies

Feeling low. Sorry to moan

Hi. Now 4 wks on prednisolone. The aching especially in my neck comes back and stops me sleeping after about 2 every morning. I can’t say it’s pain like before...

Hi. Now 4 wks on prednisolone. The aching especially in my neck comes back and s...

Wraysbury

•6 years ago

34 Replies

Cardiff Meeting

The next meeting of the group is on Friday 14th September at 11.30 in the Central Library.

The next meeting of the group is on Friday 14th September at 11.30 in the Centra...

slewis

•6 years ago

1 Reply

the good and the bad

just so you can give the family time to pack

coda123

•6 years ago

4 Replies

This forum as a source of invaluable information regarding eventual outcomes for people with PMR and GCA .

Hello Everyone I am sure this must have crossed most of or thoughts before - but I am wondering if there is any collected or possibly 'collectible' data from...

Hello Everyone I am sure this must have crossed most of or thoughts before - but...

Rimmy

•6 years ago

34 Replies

Acceptance has been the key.

When I look back over the last 2 and a half years with PMR I think the key for me to having a better daily life has been acceptance. I tried to figure it out,...

When I look back over the last 2 and a half years with PMR I think the key for m...

bunnymom

•6 years ago

27 Replies

Does anyone else have problems with pain in knee with pmr?

Hello everyone, I've never posted anything before so hope I'm doing it right. I'm having a nightmare time at the moment. Diagnosed pmr in June, rheumatologist...

Hello everyone, I've never posted anything before so hope I'm doing it right. I'...

Bubbsyboo

•6 years ago

19 Replies

Cannot do anything

Hya I have to login every time I visit the site I cannot do anything. I have deleted the site and reloaded - but no use. It does not recognise my profile if...

Hya I have to login every time I visit the site I cannot do anything. I have d...

Pamela60

•6 years ago

9 Replies

A bad week.

So this week I experienced swelling in my right foot and toe. I went to hospital with it. To be told they suspect it's psoriasis arthritis in my toe/foot....

So this week I experienced swelling in my right foot and toe. I went to hospital...

TJ03

•6 years ago

5 Replies

back again

Hi All, I was on this site a while back. In one of my GCA pred induced anti-social hate the world moments I took myself off of all social media. A few weeks...

Hi All, I was on this site a while back. In one of my GCA pred induced anti-soci...

fmkkm

•6 years ago

25 Replies

Prednisilone withdrawal symptoms

After three months of reducing Pred to 10mg, on the instructions of the consultant rheumatol0gist, with no ill effects, he then told me to reduce to 9mg for a...

After three months of reducing Pred to 10mg, on the instructions of the consulta...

Maryis80

•6 years ago

4 Replies

sudden very rapid pulse

I was sitting, watching TV and became aware of my heart racing. i have a B/P machine so I checked. Heart rate was 163 , BP within healthy and normal limits...

I was sitting, watching TV and became aware of my heart racing. i have a B/P ma...

readingbooks

•6 years ago

14 Replies

Prednisolone and Vitamin K and Vitamin D3

Does anyone know if it's ok to take pred and vit K 2 at the same time...I've just read there should be 8 to 12 hrs between taking Vit K and Vit D3 and I...

Does anyone know if it's ok to take pred and vit K 2 at the same time...I've jus...

GrannyDi

•6 years ago

8 Replies

Next London meeting

Can anyone tell me when this is please?

Mary63

•6 years ago

12 Replies

Bananas

I have just read on another site that this man eats 3 bananas a day and is now steroid free! Thoughts please Also on another topic does anyone suffer more on a...

I have just read on another site that this man eats 3 bananas a day and is now s...

Xanthe12345

•6 years ago

28 Replies

Dead slow reduction

Hello, I seem to have lost the plan for the dead slow reduction method, could some kind person post it for me or tell me where I can find it many thanks xxx

Hello, I seem to have lost the plan for the dead slow reduction method, could so...

quincey1

•6 years ago

5 Replies

Love is not enough!

I have been pondering on the words of all our inspiring speakers at the members event yesterday. Amongst others, we heard from the treasurer ( retail monkey)...

I have been pondering on the words of all our inspiring speakers at the members ...

SheffieldJane

•6 years ago

42 Replies

I'm thinking about realistic self- management goals for this first month.

Some of my initial panic has receded and I have reasonable symptom control finally starting on my third week of Pred. I'm on a 15mg split dose taking 5mg...

Some of my initial panic has receded and I have reasonable symptom control final...

KinnearD

•6 years ago

25 Replies

PMRGCAuk Members' Day & AGM - PHOTOS!

I promised photos... I did not promise "good" photos! Here's hoping the link works for everyone; I'm sure you'll let me know if it doesn't! (Here we are at...

I promised photos... I did not promise "good" photos! Here's hoping the link wo...

Hidden

•6 years ago

109 Replies

PMRGCAUK MEMBERS DAY

I had such a good time today. I met some lovely people and enjoyed all the interesting presentations. I hope everyone got home as quickly as the dreaded...

I had such a good time today. I met some lovely people and enjoyed all the inter...

Bamber99

•6 years ago

16 Replies

GCA sufferer?

Me As not very good with technology I'm not sure if this will reach you! Am very impressed by the quality and variety of posts I have read. It has helped me...

Me As not very good with technology I'm not sure if this will reach you! Am ver...

charlie444

•6 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

A lesson possibly to be learned!

Leeds Community Hub 10 September

Insomia

Question on tapering

PMR ...is it in the family ?

Another medication and first virus of the year

Wasn’t No Stoppin Me!

A real respite!

Is rheumatology 'acute'?

At a standstill

Feeling low. Sorry to moan

Cardiff Meeting

the good and the bad

This forum as a source of invaluable information regarding eventual outcomes for people with PMR and GCA .

Acceptance has been the key.

Does anyone else have problems with pain in knee with pmr?

Cannot do anything

A bad week.

back again

Prednisilone withdrawal symptoms

sudden very rapid pulse

Prednisolone and Vitamin K and Vitamin D3

Next London meeting

Bananas

Dead slow reduction

Love is not enough!

I'm thinking about realistic self- management goals for this first month.

PMRGCAuk Members' Day & AGM - PHOTOS!

PMRGCAUK MEMBERS DAY

GCA sufferer?

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