PMR ...is it in the family ?

[chillipeppergirl32]

I’ve just informed my Aunt of my PMR diagnosis, to be told that her son and one of her sisters had it as well. So that’s an Aunt (on my mother’s side) and a cousin, all getting PMR .. surely not coincidence?

[DorsetLady PMRGCAuk volunteer]

Not not purely coincidental. Quite a few on here have commented that relations have same, particularly earlier generations which weren’t necessarily diagnosed as such.

Plus there is evidence that certain peoples and environments are likely to have a higher number of sufferers.

Have a look at my lightedheart post Are we all Vikings for proof!

healthunlocked.com/pmrgcauk...

[chillipeppergirl32 in reply to DorsetLady]

Ha ha a good read !

. My doctor suggested I researched more ....I’ve already given him info about PMR that he wasn’t aware of.ie: higher incidence amoungst Scandinavian people .

All very interesting ..

[scats]

Both my father and brother. We qualify on the environmental side as well, all grew up on the same farm. Mind you I have often wondered about all the chemicals that were sprayed liberally on crops last centuary.

As for Viking ancestry,someone once said the surname was a derivation of a very early french name. Then these vikings did get around!

[chillipeppergirl32 in reply to scats]

Well you are even more closely linked ! Especially living on the same farm .

All of us country living people should be aware of the chemicals we have all been exposed to over the past 50/60 years

[DorsetLady PMRGCAuk volunteer in reply to scats]

They certainly did! Then add in all those of Viking ancestry who have migrated in the following years. Its a wonder they’re aren’t more of us - Freyja aka DL!

[scats in reply to DorsetLady]

I think we've been down this path before!

[DorsetLady PMRGCAuk volunteer in reply to scats]

Oh, more than once! Hang around long enough, and we’ll cover it again. 😳

[chanel2]

My mother was diagnosed with pmrgca in the 70's. I remember vividly the doctor saying this is very rare and warned that this could cause blindness or a stroke. And now I have been diagnosed with GCA in August (biopsy came back positive). So I think heredity plays a role in this some how.

[chillipeppergirl32 in reply to chanel2]

Yes , I’m thinking this is partly genetic

[piglette]

They reckon twenty five per cent is genetic and seventy five per cent environmental, I read somewhere.

[scats in reply to piglette]

I read that too!

[chillipeppergirl32]

It is looking that way isn’t it

[CT-5012]

My brother and I both have PMR and GCA.

[chillipeppergirl32 in reply to CT-5012]

I’m sorry to hear that you both have this disease. It’s not as unusual as I thought for it to be in the family .

[CT-5012 in reply to chillipeppergirl32]

Both of us have children with various autoimmune problems. B****y Vikings.

[chillipeppergirl32 in reply to CT-5012]

Surely you and your family would make a good case study for research into auto immune diseases ...

[HeronNS]

I don't know about PMR specifically but I think autoimmune diseases run in families. I have no siblings, but amongst myself and four first cousins I know well we have in order of age, oldest to youngest, PMR (me), RA, OA, possibly Fibro but she cured herself so who knows, and schizophrenia, which itself may not be inflammatory but does apparently have an association with inflammation some way or other, autoimmune disease or a severe infection are risk factors for schizophrenia. A fifth child in that family (fourth in age) was adopted and he has no autoimmune disease.

[chillipeppergirl32 in reply to HeronNS]

Interesting

[Janstr]

I read that if you have a sibling with an auto-immune disease you have a 30% chance of getting one as well. Do there must be a genetic factor

[piglette in reply to Janstr]

They reckon twenty five per cent is genetic and seventy five per cent environmental, so if it runs in the family your chances of getting an autoimmune disease is higher.

[chillipeppergirl32 in reply to piglette]

So the rest of my siblings need to be aware that their risk of getting PMR is higher ?

[piglette in reply to chillipeppergirl32]

It probably is not that high even if it runs in the family, it is stress and things like that that seems to really bring it out.

[chillipeppergirl32 in reply to piglette]

I lost my brother,who I was really close to, to bowel cancer last August 2017 and had PMR symptoms from around then until diagnosed in June 2018 before that I was looking after my Dad and my mum ....

[piglette in reply to chillipeppergirl32]

I am so sorry about your brother. That sort of thing really causes stress. I lost my sister in law to bowel cancer too, she was 52.

[chillipeppergirl32 in reply to piglette]

I’m so sorry for you .That is so young !

Yes , I think it’s definitely contributed ..

[misha453]

My mother developed PMR at 62 and I developed PMR at 54. I think there must be a genetic link

[chillipeppergirl32 in reply to misha453]

Looks that way doesn’t it ..

[GerriMc]

I’m from Dublin, a famous Viking stronghold back in the day. The only other person I knew that had PMR was my mother-in-law. My poor children are doomed! 😱

[Jamie345]

My eldest sister got PMR I promptly followed 3 months later with PMR/GCA

she is 93 and until this hit her extremely active especially with the WI all her adult life so it was very hard for her to accept but at least she did or has not got GCA, she's doing well, so I do think a strong genetic link, my friends family have 3 of her syblings with PMR only one with GCA as well .

[chillipeppergirl32 in reply to Jamie345]

It must be so debilitating having PMR at 93, & for you to get diagnosed so soon after ! Hope your coping well .

[Nitrobunny]

Myself, my mother and her mother all have/has PMR and GCA

[chillipeppergirl32 in reply to Nitrobunny]

Well ,with the amount of replies , beginning to see that PMR/GCA can be genetic .