Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,453 members • 38,365 posts

All posts for September 2018

"Wanted" side effects!

Steroid Induced Ocular Hypertension:- I was told by a consultant at the Eye Hospital to use Lantanoprost eye drops for this condition. He "warned" me that...

Steroid Induced Ocular Hypertension:- I was told by a consultant at the Eye Hos...

Primarose

•6 years ago

38 Replies

Walking on, walking on broken glass…

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/12/walking-on-walking-on-broken-glass/ No Warning; This post does not contain strong...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/12/walk...

Hidden

•6 years ago

92 Replies

Scalp tenderness

Just curious. Would scalp tenderness or hurtful spots briefly appearing on scalp be a symptom of gca or a steriod withdrawal symptom? Or both?

Just curious. Would scalp tenderness or hurtful spots briefly appearing on scal...

gtate1914

•6 years ago

4 Replies

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Just when you think it can't get any worse...pred taper abandoned, back to start line

Saw rheumy yesterday. An urgent referral after I hit problems with his taper plan which was a 15mg start in July, reducing by 2.5 every 2 weeks til down to...

Saw rheumy yesterday. An urgent referral after I hit problems with his taper pla...

Hidden

•6 years ago

39 Replies

Fluid on my Heart 😟

I had appointment with doctor in hospital on Monday (follow up from Scan on heart a while ago). He informed me that I had fluid on my heart (in sac I think he...

I had appointment with doctor in hospital on Monday (follow up from Scan on hear...

Lucylooloo

•6 years ago

14 Replies

How long will this go on for

I was diagnoised with GCA May/June 2018 after being very ill for several months. I was put on high dose steroids etc. But I am still feeling very unwell. I...

I was diagnoised with GCA May/June 2018 after being very ill for several months....

Cairn

•6 years ago

39 Replies

Feeling better

After a dreadful day yesterday, I suddenly felt better about 7pm and this morning I feel pretty good! Was able to walk down the stairs without feeling i was...

After a dreadful day yesterday, I suddenly felt better about 7pm and this mornin...

Maryis80

•6 years ago

14 Replies

Numbness and tingling...update for friends with same issues

Hello to everyone dealing with numbness and tingling! Here’s an update on my ongoing issues with tingling just about everywhere (especially arms and legs) and...

Hello to everyone dealing with numbness and tingling! Here’s an update on my ong...

Ciar

•6 years ago

18 Replies

All done 😁

Morning to you all 😁well yesterday is gone thank goodness ,Tuesday . I underwent my temperal artery biopsy, so today I’m resting an pondering on what will be...

Morning to you all 😁well yesterday is gone thank goodness ,Tuesday . I underwen...

Monkeymate

•6 years ago

16 Replies

My Mom, Predinose, Actemra Infusions, and today a clean bill of health.

Many of you have seen my updated posts in the past regarding my Mom and her diagnosis of GCA. This month marks 2.5 years from day of diagnosis. Today she was...

Many of you have seen my updated posts in the past regarding my Mom and her diag...

Joyismami

•6 years ago

18 Replies

Just down.

I'm down because I have been ill. For the 4th time in 3 years plus. I lost the use of my legs. Suddenly going to bed. I couldn'the climb the stairs. My body...

I'm down because I have been ill. For the 4th time in 3 years plus. I lost the ...

morrison

•6 years ago

20 Replies

Information required about PMR

Hi, I am new on this forum ( or on any forum ! ) I was diagnosed with PMR about a year and half ago, I was put on 20 mg prednisolone originally and am now down...

Hi, I am new on this forum ( or on any forum ! ) I was diagnosed with PMR about ...

Acorn0

•6 years ago

21 Replies

update

been prescribed low dose predisanole have asked gp and psychiatrist to be involved regarding mood. My polymylgia started age 55 quite young surely? Also fealt...

been prescribed low dose predisanole have asked gp and psychiatrist to be involv...

animalactivist

•6 years ago

9 Replies

Steroid withdrawal or flare?

Since posting two days ago, I have had increasing pain and stiffness which has spread everywhere, almost as bad as it was when I was diagnosed 16 months ago....

Since posting two days ago, I have had increasing pain and stiffness which has s...

Maryis80

•6 years ago

13 Replies

Taper question

Hello everyone, PMR/GCA diagnosed Jan. 2018, started at 40 mg pred. I tapered from 20 mg to 18.75 three weeks ago and doing OK as far as pain...

Hello everyone, PMR/GCA diagnosed Jan. 2018, started at 40 mg pred. ...

Mstiles

•6 years ago

4 Replies

Bona fide!!

I just joined properly! Filled in the form and paid my subs! I enjoyed my first meeting at the Ilkley group yesterday and rugger encouraged me to put pen to...

I just joined properly! Filled in the form and paid my subs! I enjoyed my first ...

MamaBeagle

•6 years ago

6 Replies

Cheerful Pic. On A Black Dog Morning.

One of those bleak moods for me this morning! lucky I am to still be able to walk round the park & feed the waterfowl. Soaked by a heavy shower it was...

One of those bleak moods for me this morning! lucky I am to still be able to wal...

Hidden

•6 years ago

65 Replies

Kidney infection...Increase Pred?

Hi everyone. I’m down to 5mg Pred ( diagnosed GCA March 2017) and all going ok. I have just been diagnosed with a kidney infection...feeling complete rubbish...

Hi everyone. I’m down to 5mg Pred ( diagnosed GCA March 2017) and all going ok. ...

Judy211

•6 years ago

19 Replies

Still trying to find the right dose

I'm having some symptoms of light headaches,temple aches, some scalp sensitivity in the afternoon and evening. (I take my pred about 3:30 am) I Am at 47.5 mg...

I'm having some symptoms of light headaches,temple aches, some scalp sensitivity...

gtate1914

•6 years ago

20 Replies

PMR AND Fibromyalgia?!

Would certainly appreciate your experience if anyone of you have been suffering from Fibromyalgia for as many as 25 years and didn’t think your (newer)...

Would certainly appreciate your experience if anyone of you have been suffering ...

Alliswellforever

•6 years ago

23 Replies

The Lighter / More Reflective Side: Gradually Letting-go of PMR - and also the Legacy of my PMR Journey. Things could be Worse.. ;-)

Greetings All Well, what to say - and how to say it? On the Positive Side (and not wishing to gloat since I know how many of You Lot are still struggling...

Greetings All Well, what to say - and how to say it? On the Positive Side (...

markbenjamin57

•6 years ago

130 Replies

2018 AGM London

Lovely Sue (Suet3942).... enjoying her 'day out with the Us Lot'

Telian

•6 years ago

12 Replies

2018 AGM London

Professor Dasgupta deep in conversation...

Telian

•6 years ago

Be the first to reply

2018 AGM

Professor Dasgupta closing speaker looking very pleased with himself after his excellent talk. I had to sneak a pic!

Professor Dasgupta closing speaker looking very pleased with himself after his e...

Telian

•6 years ago

4 Replies

2018 AGM

...and another and I know the names this time! It's Terri and Melissa (aka Telian & Mamici)

...and another and I know the names this time! It's Terri and Melissa (aka Telia...

Telian

•6 years ago

12 Replies

2018 AGM London

Another photo...please don't ask me their names, too late to recall except Jane - sorry girls!

Another photo...please don't ask me their names, too late to recall except Jane ...

Telian

•6 years ago

13 Replies

The secrets out now!

MB (of Benjamin Towers) and his beloved 'Tedski' at Saturday's 2018 AGM. Tedski oversaw the whole proceedings at the AGM and gave his seal of approval by...

MB (of Benjamin Towers) and his beloved 'Tedski' at Saturday's 2018 AGM. Tedski ...

Telian

•6 years ago

40 Replies

Hi Friends, I am still hoping to find successful treatment for my wife's horrendous pmr pred side effects and skin fragility.

Last week a stumble against the bedroom wall whilest undressing caused her to raise her arm to prevent a fall but the friction against the wall was sufficient...

Last week a stumble against the bedroom wall whilest undressing caused her to ra...

Yorkie2

•6 years ago

23 Replies

Eyes

I have just read about some on here having. Problems with there eyes could some please tell me if it is the pills we are on that can cause problems as one min...

I have just read about some on here having. Problems with there eyes could some ...

Rusty8

•6 years ago

8 Replies

Polymyalgia and Fibromyalgia

There was an article in Telegraph today by James le Fanu (Too Many Pills). He was comparing polymyalgia and fibromyalgia because of Kirsty Young having Fibro....

There was an article in Telegraph today by James le Fanu (Too Many Pills). He wa...

piglette

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

"Wanted" side effects!

Walking on, walking on broken glass…

Scalp tenderness

Just when you think it can't get any worse...pred taper abandoned, back to start line

Fluid on my Heart 😟

How long will this go on for

Feeling better

Numbness and tingling...update for friends with same issues

All done 😁

My Mom, Predinose, Actemra Infusions, and today a clean bill of health.

Just down.

Information required about PMR

update

Steroid withdrawal or flare?

Taper question

Bona fide!!

Cheerful Pic. On A Black Dog Morning.

Kidney infection...Increase Pred?

Still trying to find the right dose

PMR AND Fibromyalgia?!

The Lighter / More Reflective Side: Gradually Letting-go of PMR - and also the Legacy of my PMR Journey. Things could be Worse.. ;-)

2018 AGM London

2018 AGM London

2018 AGM

2018 AGM

2018 AGM London

The secrets out now!

Hi Friends, I am still hoping to find successful treatment for my wife's horrendous pmr pred side effects and skin fragility.

Eyes

Polymyalgia and Fibromyalgia

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