Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,295 members • 38,022 posts

All posts for September 2018

Will I ever get well?? Sick of being Sick!!

Diagnosed PMR Sept 2013. Started 20 mg pred...been on pred ever since. Numerous tapers to reach below 5 mg...always return (eventually) to 7-ish range....

Diagnosed PMR Sept 2013. Started 20 mg pred...been on pred ever since. Numerou...

Purplecrow

•6 years ago

83 Replies

Recurrent styes

I have had 3 styes in 5 months. Painful.. unsightly... They take forever to go away. My question is Is there any data to support if it’s from meds prednisone,...

I have had 3 styes in 5 months. Painful.. unsightly... They take forever to go a...

Leilagirl

•6 years ago

15 Replies

How Did It Go Guys & Girls? Hopefully Well!

Looking forward to the feedback & photos. Bloody well done to all attendants!

Hidden

•6 years ago

18 Replies

Want to take advantage of all our features? Just log in!

On reflection

Thank you to all your replies. I have written to my Doctor today to ask his view on low dose steroids and my mood disorder. So am waiting on his response to...

Thank you to all your replies. I have written to my Doctor today to ask his vie...

animalactivist

•6 years ago

5 Replies

Aspirin and Prednisolone

Hi I’ve been on 75mg of aspirin for a long time together with my blood pressure medication. Someone just pointed out to me that aspirin is anti inflammatory...

Hi I’ve been on 75mg of aspirin for a long time together with my blood pressure ...

susanspurs

•6 years ago

23 Replies

This is what is on my box from chemist

My prescription 🧐🤔

Lucylooloo

•6 years ago

21 Replies

AGM and me.

Many thanks to all who have sent pm’s regarding my dratted sciatica, slight improvement on the past week managed to get two two hour naps last night but still...

Many thanks to all who have sent pm’s regarding my dratted sciatica, slight impr...

CT-5012

•6 years ago

3 Replies

My support group!!

Meet Fifi, Sapphira and Tertius!!

Wraysbury

•6 years ago

14 Replies

NHS protocol for PMR

Hi. I’m returning to my Gp in 2 wks and want as much evidence as poss as I know she wants to start reducing me already. She seems to be following a set...

Hi. I’m returning to my Gp in 2 wks and want as much evidence as poss as I know ...

Wraysbury

•6 years ago

10 Replies

Help !!!!

Hi I’m a 60 year old rejuvenated teenager ,living with pmg /gca only recently diagnosed but suffered as you all with wrong diagnosis.ivguess I’ve joined you...

Hi I’m a 60 year old rejuvenated teenager ,living with pmg /gca only recently di...

Monkeymate

•6 years ago

37 Replies

More developments

So, after finding this bloody tumour on my pituitary I went to see a Neuro surgeon. We were with him for around 1 hour He is fairly sure that this has been my...

So, after finding this bloody tumour on my pituitary I went to see a Neuro surge...

Hidden

•6 years ago

13 Replies

So concerened

My symptoms are flaring up and going down back and forth. Could this be because of the one week on 60 of prednisone? I’ve been off for 3 days now. Seems to not...

My symptoms are flaring up and going down back and forth. Could this be because ...

Boozsa

•6 years ago

6 Replies

PMR/GCA?

I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR...

I need advice! I am a 43 year old female suffering for 3+ years now and believe ...

Boozsa

•6 years ago

2 Replies

To doubt or not to doubt

I need advice! I am a 43 year old female suffering for 3+ years now and believe it’s PMR and now GCA. Her goes: I first presented with the classic PMR...

I need advice! I am a 43 year old female suffering for 3+ years now and believe ...

Boozsa

•6 years ago

10 Replies

BIT CONFUSED😟

I had to go back up on prednisolone from 7mg then 8mg then10mg as was having a flare. I ended up going to doctor and he suggested going to 15mg for ten days,...

I had to go back up on prednisolone from 7mg then 8mg then10mg as was having a f...

Lucylooloo

•6 years ago

20 Replies

The Lighter Side: PMRGCAuk Members' Day Tomorrow - Looking forward to meeting You Lot ;-)

Greetings All Just a quick one from Benjamin Mansions in sunny WSM after much preparation and planning for tomorrow's Big Day in London. Ok, all's set:...

Greetings All Just a quick one from Benjamin Mansions in sunny WSM after much pr...

markbenjamin57

•6 years ago

21 Replies

Crazy world, crazy times!

I agree with you. The world has gone crazy!

Lanakay

•6 years ago

4 Replies

RESULT!!!!!!!!

I saw my GP today and explained to him what I had learnt about reducing pred. He said that is more or less the method he uses - allowing the patient to taper...

I saw my GP today and explained to him what I had learnt about reducing pred. H...

Omanain

•6 years ago

12 Replies

I tried this...it works!

https://health.howstuffworks.com/mental-health/sleep/basics/why-socks-help-sleep-better.htm

https://health.howstuffworks.com/mental-health/sleep/basics/why-socks-help-sleep...

GOOD_GRIEF

•6 years ago

9 Replies

Inflammation in the morning

Can anyone tell me what the inflammation that starts about 4am to 4.30am is called please. I thought it was cykolites but am obviously wrong.

Can anyone tell me what the inflammation that starts about 4am to 4.30am is call...

Suet3942

•6 years ago

3 Replies

I think I need to increase my dose of Prednisone

I have slowly decreased my dose from 20 mgms a year ago but not quite by the slowest method and am struggling with symptoms. I am now at 6 mgms and have never...

I have slowly decreased my dose from 20 mgms a year ago but not quite by the slo...

readingbooks

•6 years ago

4 Replies

Thank you

To all that have replied to my post Thank you but I sit feel as confused as ever. wish someone could out rightly be able to advise or say which would be best....

To all that have replied to my post Thank you but I sit feel as confused as ever...

animalactivist

•6 years ago

13 Replies

Totally wiped!

Hi again, I wrote a few weeks ago that I have been on prednisolone since May 2017 but after consulting with 2 different rheumatologists they are of the opinion...

Hi again, I wrote a few weeks ago that I have been on prednisolone since May 201...

Suin555

•6 years ago

23 Replies

"It says here you have Osteoporosis"

Hello all. I was diagnosed with GCA and PMR in February and started with a 3 day IV course of Prednisilone then went on 60mg a day tapering down to 10mg in...

Hello all. I was diagnosed with GCA and PMR in February and started with a 3 day...

Brizzleben

•6 years ago

28 Replies

Silicon wrist bands

www.thewristbandco.com sell “steroid dependent” wristbands. I have bought one and now feel much happier about going on holiday or just generally being out and...

www.thewristbandco.com sell “steroid dependent” wristbands. I have bought one an...

Suedeshayes

•6 years ago

10 Replies

Calcium with vitamin D and K?

Hello! thank you again for all your continued support and comradeship. I am currently quite excited because, since being diagnosed with PMR in March, i have...

Hello! thank you again for all your continued support and comradeship. I am cur...

MakingDo

•6 years ago

99 Replies

methotrexate

Had raised inflammation for 4 years Diagnosed polymylgia 4 yrs ago. Refused to take steroids as I'm also bi polar so didn't want mood altering steroids. Saw...

Had raised inflammation for 4 years Diagnosed polymylgia 4 yrs ago. Refused to ...

animalactivist

•6 years ago

11 Replies

Alendronic acid

Been to the dentist today cos have an infection under a crown. It’s got to come out but because I have taken AA I have to go to a hospital apparently. Even...

Been to the dentist today cos have an infection under a crown. It’s got to come ...

Suet3942

•6 years ago

33 Replies

Profile pic

Thought I’d add a photo of my ugly mug for recognition on Saturday. Complete with moon face 🤪🤪

Thought I’d add a photo of my ugly mug for recognition on Saturday. Complete wit...

Suet3942

•6 years ago

14 Replies

#JustBurnIt

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/06/justburnit/ Hmmm... not specifically related to PMR/GCA, but it does make my blood...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2018/09/06/just...

Hidden

•6 years ago

33 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Will I ever get well?? Sick of being Sick!!

Recurrent styes

How Did It Go Guys & Girls? Hopefully Well!

On reflection

Aspirin and Prednisolone

This is what is on my box from chemist

AGM and me.

My support group!!

NHS protocol for PMR

Help !!!!

More developments

So concerened

PMR/GCA?

To doubt or not to doubt

BIT CONFUSED😟

The Lighter Side: PMRGCAuk Members' Day Tomorrow - Looking forward to meeting You Lot ;-)

Crazy world, crazy times!

RESULT!!!!!!!!

I tried this...it works!

Inflammation in the morning

I think I need to increase my dose of Prednisone

Thank you

Totally wiped!

"It says here you have Osteoporosis"

Silicon wrist bands

Calcium with vitamin D and K?

methotrexate

Alendronic acid

Profile pic

#JustBurnIt

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive