I have been pondering on the words of all our inspiring speakers at the members event yesterday. Amongst others, we heard from the treasurer ( retail monkey) and Kate Gilbert ( author of that useful book). It became clear that the charity has grown exponentially from the efforts of a handful of dedicated fellow sufferers who started it when there was literally nothing for PMR/GCA sufferers.
It also became clear that in order to carry on the great work that the charity does for all of us, they need more money. If I remember correctly, the Charity has 800 members currently. The forum has approximately 7,000 users. As Kate pointed out. If every user could donate £10.00 that would be an amazing boost to the Charity’s assets, enabling them to do much more to ease the suffering of people with GCA/PMR and raise awareness amongst the medical profession. To initiate projects such as the buddy system and the helpline.
So although there is a lot of love, information, support and company on here. It is not enough.
It gave me food for thought and I will be completing the membership forms and arranging for a donation. All that has prevented it, is a kind of procrastination. Let’s combat the awful ignorance that we encounter on here every day amongst people who have responsibility for our care. 🌦
Love from Jane. X