Thank you to Sue an Sue for a really good meeting.
Sarah was an excellent speaker well informed and knowledgeable. Her answers to our questions helped me understand a lot more about research trials for PMRGCA, GPS understanding of the conditions and the way NHS decide the best treatment. It was well organised and delivered. The group who attended all had a different story but in many ways we had similar circumstances. The daily challenges we face and sense of loss for how we were before was a common theme. There was someone there who was off Pred. It had taken a year to get down from 5 to 1 mg. That gave me hope and a light at the end of the tunnel. I now think PMR is not forever. It just feels like it. Thanks again for an enlightening day and to Sue who convinced me to go instead of feeling sorry for myself.