Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,610 members • 38,757 posts

All posts for September 2018

Forgot my dose last night.

I’m 21 months since the start of PMR and down from 20 mgs to almost 4. My inflammatory markers have been normal for the last 17 months except for when I had an...

I’m 21 months since the start of PMR and down from 20 mgs to almost 4. My inflam...

Hindags

•6 years ago

9 Replies

My nasty

I forgot to introduce you to my pooch .shed been to the minders as we’d booked to go away but dua to tab had to cancel but mazy still went as she enjoys it...

I forgot to introduce you to my pooch .shed been to the minders as we’d booked t...

Monkeymate

•6 years ago

41 Replies

Can this be real?

So , today is Monday, I awoke at 3 10 am , wow I slept for 5 hours 😃with only slight pressure to my temple, shocked an delighted with with my new found peace...

So , today is Monday, I awoke at 3 10 am , wow I slept for 5 hours 😃with only s...

Monkeymate

•6 years ago

14 Replies

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Loss of hair on legs

I was diagnosed with PMR in June 2018, and currently on 13.5mg of prednisone. I've noticed that the hair on my legs has stopped growing...I used to shave my...

I was diagnosed with PMR in June 2018, and currently on 13.5mg of prednisone. I'...

Reader7

•6 years ago

26 Replies

CAROTID ARTERY BRUITS

Rheumatologist discovered bruits (whooshing sounds!) on the right carotid artery at last weeks meeting. I wasn’t expecting that at all, especially as I wasn’t...

Rheumatologist discovered bruits (whooshing sounds!) on the right carotid artery...

Hev1964

•6 years ago

14 Replies

Our Mallorca view.

Lovely to wake up to . X

SheffieldJane

•6 years ago

28 Replies

Limb weakness after exertion.

Hi, I wonder if anyone experiences a weak sensation like low level pins and needles or restless legs after exertion? It is currently keeping me awake following...

Hi, I wonder if anyone experiences a weak sensation like low level pins and need...

SheffieldJane

•6 years ago

34 Replies

keep getting very hot

hi all i keep getting like hot sweats for no reason i am down to 2mg of steroids . Isthere any one out there like that .i am afraid to go some places ,...

hi all i keep getting like hot sweats for no reason i am down to 2mg of steroi...

ballyboy

•6 years ago

66 Replies

Travelling to South Asia

Has anyone travelled from UK to South Asia with Prednisolone? We are travelling to Shanghai and then picking up a cruise and end up in Singapore for one night...

Has anyone travelled from UK to South Asia with Prednisolone? We are travelling ...

JanetT58

•6 years ago

32 Replies

Ears

I went for ear test mentioned gca and got told they hadnt heard of that so didn’t carry on with conversation that was in a war department

I went for ear test mentioned gca and got told they hadnt heard of that so didn’...

Rusty8

•6 years ago

2 Replies

Flu jab response

Thank you to all who responded, I shall have my flu jab as usual.

Godrevy1960

•6 years ago

2 Replies

Fatigue, rest periods, work

Did anyone find they had to take frequent rest breaks with GCA, particularly in early days? I have been on 60 mg of prednisone for a week and can only do very...

Did anyone find they had to take frequent rest breaks with GCA, particularly in ...

People1

•6 years ago

14 Replies

Flu jab

Has anyone refused to have a flu jab or had more flu like symptoms afterwards. I was just wondering if the steroids would affect anything in any way. Currently...

Has anyone refused to have a flu jab or had more flu like symptoms afterwards. I...

Godrevy1960

•6 years ago

25 Replies

Where have you all gone ?

I haven't received my daily update in my inbox since Friday and I don't know why. Can anyone advise me, please ?

I haven't received my daily update in my inbox since Friday and I don't know why...

readingbooks

•6 years ago

12 Replies

Another flare

Hi all, this is my second post. I read the forum every day and I am so thankful for all the great advice (which I don’t get from ny GP or Rheumatologist). I...

Hi all, this is my second post. I read the forum every day and I am so thankful...

SueMacD

•6 years ago

8 Replies

Update on tapering,

I managed to get down from 30 to 25mg of prednisolone without any real problems and 4 days ago reduced to 22.5mg. Yesterday morning I woke with what I thought...

I managed to get down from 30 to 25mg of prednisolone without any real problems ...

studiomaster1

•6 years ago

19 Replies

TMJ problem, bite is off

Yet another issue from pred? Today, Saturday of course!, my jaw on the right side started “clicking” when I was eating and my bite felt off and then it...

Yet another issue from pred? Today, Saturday of course!, my jaw on the righ...

Mstiles

•6 years ago

10 Replies

Intense temple pressure

Also is intense pressure at the temples a common symptom of GCA even after being on 60 mg prednisone for a week? Does it take a long time for the temple...

Also is intense pressure at the temples a common symptom of GCA even after being...

People1

•6 years ago

4 Replies

Symptom length

I was wondering how long it takes to get the inflammation of GCA under control before the headaches, jaw pain, and fatigue go away? Anyone continue to have...

I was wondering how long it takes to get the inflammation of GCA under control b...

People1

•6 years ago

11 Replies

Now I know what fatigue is !

Have read so much about fatigue on here and I must have been lucky up until now because I didn't know what it was all about but boy it's hit me now....

Have read so much about fatigue on here and I must have been lucky up until now ...

Wenben

•6 years ago

36 Replies

Awaiting temporal biopsy results and would so appreciate hearing your wisdom and expertise in regard to GCA

Hello dear friends, I am currently waiting for the results of a temporal artery biopsy after severe headaches, neck and shoulder pain, jaw pain, no appetite,...

Hello dear friends, I am currently waiting for the results of a temporal artery ...

People1

•6 years ago

12 Replies

These are the things that “weigh” on my mind!

Hmmmm? Flat stones, wedged between wooden slats... that is the ceiling of our hotel room, here in Provence! Absolutely beautiful, But wondering what happens...

Hmmmm? Flat stones, wedged between wooden slats... that is the ceiling of our ...

Hidden

•6 years ago

83 Replies

Interesting info...PMR info

A few years old but some good stuff for people new to this PMR thing.. https://bpac.org.nz/BPJ/2013/June/polymyalgia-rheumatica.aspx

A few years old but some good stuff for people new to this PMR thing.. https://b...

daworm

•6 years ago

18 Replies

Recent GCA suspect

Got put on 40mg Pred, I didn't realize how awful this was. Been on 9 days now, can I stop cold turkey. What if I haven't got it, my blood work was not overly...

Got put on 40mg Pred, I didn't realize how awful this was. Been on 9 days now, c...

Bigwhite

•6 years ago

28 Replies

Disappointing Research Study Form On Ear Involvement!

Well!! Looked at the questions & choices! Is it me or is it them! Ah Ha! So much of this crap now! Good day for myself hopefully for you too.

Well!! Looked at the questions & choices! Is it me or is it them! Ah Ha! So muc...

Hidden

•6 years ago

19 Replies

And to go with the above question

I have just finished up with a mild case of shingles.

bunnymom

•6 years ago

28 Replies

Is the flare back?

Four weeks ago had a flare at 5 which I had been on a month. Increased by 5 one day and then rhuemy said go to 7 and stay there. At 7 I feel stiff and sore and...

Four weeks ago had a flare at 5 which I had been on a month. Increased by 5 one ...

bunnymom

•6 years ago

5 Replies

Reclast (zoledronic acid)

Has anyone here tried Reclast infusions? Once a year. Has it helped? Experiences with it? My rheumy wants me on it. I have osteoporosis. I am taking...

Has anyone here tried Reclast infusions? Once a year. Has it helped? Experien...

gtate1914

•6 years ago

3 Replies

Methotrexate

How many on this forum have used or are still using methotrexate either in pill form or injections? Do you feel it has helped or have you given up on it...

How many on this forum have used or are still using methotrexate either in pill...

gtate1914

•6 years ago

21 Replies

Psoriasis and PMR

Hi All, Its been a while since I did a post, have been doing well with no symptoms to speak of and down to 4mg/day after a slow taper. However, probably over...

Hi All, Its been a while since I did a post, have been doing well with no sympto...

hiandri

•6 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Forgot my dose last night.

My nasty

Can this be real?

Loss of hair on legs

CAROTID ARTERY BRUITS

Our Mallorca view.

Limb weakness after exertion.

keep getting very hot

Travelling to South Asia

Ears

Flu jab response

Fatigue, rest periods, work

Flu jab

Where have you all gone ?

Another flare

Update on tapering,

TMJ problem, bite is off

Intense temple pressure

Symptom length

Now I know what fatigue is !

Awaiting temporal biopsy results and would so appreciate hearing your wisdom and expertise in regard to GCA

These are the things that “weigh” on my mind!

Interesting info...PMR info

Recent GCA suspect

Disappointing Research Study Form On Ear Involvement!

And to go with the above question

Is the flare back?

Reclast (zoledronic acid)

Methotrexate

Psoriasis and PMR

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