hi all i keep getting like hot sweats for no reason i am down to 2mg of steroids . Isthere any one out there like that .i am afraid to go some places ,
for some time i keep getting like hot swee
keep getting very hot : hi all i keep getting... - PMRGCAuk
keep getting very hot
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ballyboy
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•
I get them too, especially around my neck. I’m at 11mgs. In my case I’m not sure if it’s pred or menopause???
• in reply toPMRCanada
This beats the Hot Sweats from the Menopause hands down! 😪
Oh my gosh I am the dissolving woman. I am sorry to be graphic but I drip perspiration to a hideous degree. I am down to 14 from 75+. Linda xxxx
Yep! There’s a fair few of us around, I’ve been suffering since February when I was on 7.5mg & I’m now back up at 10mg
It is most definitely worse when the weathers hot, I was on a Caribbean Cruise in March & mainly stayed on the air conditioned ship, l suffered terribly through our exceptionally hot summer & I’ve just come back fro a week in the South of France with same issues!.......
It also gets worse if l rush or am on a time deadline or have to exert myself etc!
It is my main complaint at this time & I’m constantly reporting it to my GP, my Rheumatologist, The Endocrinologist l saw all to no avail!
Wish l had some answers for all of us!
Mrs N 💅🏼😓
Daisychain12• in reply to
Angela there seems to be no answer which is bizarre isn’t it xxx
I sure do. But it's my head that sweats. My hair gets soaking wet. It's embarrassing when I am out. Specially if I am in a store with air conditioning and the other people are wearing sweaters.... mind you it is still really hot and humid here.
Yes Mike me too. No point me blow drying my damn hair it just goes limp and wet. I hate it 😭😭😭
Me too! My hair just drips all over everything.
I hate it. Nothing you can do with a dripping fringe
I too sweat so much my hair is drenched. Then it started running down my legs. Very uncomfortable. Yesterday I noticed I had not had the sweats for over a week. I would not be disappointed if they do not return.
Shaz have you ever left a wet patch in a leather or vinyl chair? I have and it’s sooooo embarrassing! Xxx
It is a well known side effect of Prednisalone but like you I am puzzled as to why it is severe at low doses. I am on 6 mgs. I agree with Angela ( Mrs Nails) this is much worse than the menopause (hot flushes/flashes depending on where you are in the world).
Jane I had no idea. I already sweat horribly due to my pain killers and now this on top. I can’t believe a human can lose so much liquid and not melt. Xx. My nighties get as wet as though they have been in the washing machine. My whole bed needs to be changed. My upper body is awash. I have no words to describe. Xx
Don't know if it will
Help you but my daughter has bought me A cool max insert for my pillow and it's been A god send , I'm actually sleeping for more than A coulee of hours at A time and not waking up with soaking wet hair X
I have not heard of that. Is it like an ice pack please? Xx
I swear by Cucumber nightwear , made specially for night sweats, actually one could wear some of the garments by day. My pyjamas are fantastic, I only need 1pair because they dry very quickly. They don’t get smelly and are anti bacterial, sooo comfy. They also make a headband .
No it's A gel pad that you can either put inside A pillowcase or rest on top and it helps to keep you cool , made by JML ,I love mine but my other daughter can't get I with it x
I don’t know why either, friend calls them power surges. 😤
I admire anyone who trues to put a positive spin on it but I just can’t. Xx
Even although I am down to 1mg pred I still get these sweating episodes. It’s particularly bad at night. Wake with soaking nightie and bed damp. In the day I have sweat dripping off the end of my hair. It was a lot worse on higher doses of pred. It’s also very weakening. I thought it would go as the doses decreased but alas it hasn’t.
Liz.
I get those sweats as the first sign my dose is too low. There are a few others like me on the forum.
Hi, me too mainly just head sweats, with a very drippy face. I’ve slowly got down to 3 1/2 mg and had wondered whether this was a consequence of pred reduction. Just one of the many weird and wonderful effects of pred I presume!
Oh dear! Xxx
Quite a few of us ballyboy and the lower the dose the worse the symptoms seem to be, I'm on 4.5mg. Having said that I did get to 3mg once without problem in comparison but not this time - perhaps there's something in what Mary63 says, the dose is now too low. I'm going to ask at my next Rheumie appt in October. ATB.
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Morning sweats as I lower the dose are a failsafe sign for me that I am having a flare - i.e. have reduced the dose too far. Sweats can be a symptom of both PMR and GCA and a side effect of steroids. Can't win!
I am either too hot and sweating or too cold and need to wrap up!
This too shall pass.......but WHEN!
I have had them so bad while in a store that the drops of sweat land on the counters. Very Embarrassing to say the least. There is no stopping them when they start. I have started carrying a mans hankerchief to sop up the mess. What Fun! I was hoping when the pred. was decreased they would be better, but that doesn't seem to be the case.
Me too! Oh drips! They are impossible to describe As people think I am exaggerating. If they see it they go EWWWW in disgust which feels horrible too xxxx
There’s certainly a lot of us suffering, Terri l still haven’t looked at the name of those tablets, l’m just so tired of so many Meds.
I definitely was much worse while we were in France last week as it was very hot. Still having them now I’m home but not in need of a towel to mop myself up like I did in France. I’m more convinced than ever it’s something to do with the Adrenal/Pituitary/Hypothalamus but that Endocrinologist Guy l saw wouldn’t even consider it!
I’m halfway through a post on this subject!........
SheffieldJane• in reply to
I invested in an attractive little fan in Mallorca, low tech. Sat through a Chopin recital ( he lived in Mallorca for a while) systematically drying parts of my head and face, like an old fashioned coquette. It worked. 😉
• in reply toSheffieldJane
Oh the Joys! 😉
• in reply to
I ‘found’ a lovely black lace fan yesterday while unpacking a ‘random’ box 📦 keeping that handy! x
Daisychain12• in reply to
Ooh you will look so mysterious and elegant! Xxxx
Oh yes the joy and fun of the fanXxxxxx
My sweats seem to have reappeared! Particularly at night. Often find it’s after eating certain foods eg carbs but not always. Can’t really work it out but find it frustrating. Doesn’t appear to link in with a flare either. Will have to monitor more closely.
Let me know if you find any common denominator! Xxxx
I have had an intolerance to humid weather,and sweat runs off me even during winter.lt did get a little better when l had settled down on 3 mg. of Pred.,but since l tried to lower the dose the sweats are back again.l do find they are worse after eating too much sugar os salt. They are really uncomfortable and l avoid going anywhere abroad where the weather is very hot or humid.l had this problem before PMR,and for a long time l could not tolerate too much heat without breaking into a sweat.
Yes I am in fear of humidity it makes my fibromyalgia much worse. Sweating was never part of my life until about five years ago and I never even had to buy deodorant! Now I sweat for Australia but (sorry to be graphic) I don’t have the sort of sweat that gives one body odour. It’s just a pouring if sweat from head, neck and upper body xxxxx
• in reply toDaisychain12
Hi Linda
Same for me ~ we have two types of sweat glands
Apocrine Glands ~ under the arms, where we use deodorant & in the perianal region.
Eccrine Glands ~ which are situated all over the body, which is where l suspect most of us are perspiring from ~ neck, head, face, back, chest & l perspire in the flex of my elbow & on top of my wrists.
Daisychain12• in reply to
Angela thank you so much for explaining that to me. I had no idea!!! It is definitely the second set of sweat glands that are the problem for me. It makes perfect sense. The trouble is there is no way of treating it. I know some people have Botox for excessive sweating under their arms. It’s not like we can do that! Xxx
There is medication that reduces it - one of my grandsons suffers from excessive sweating and is on something to "dry it up". It then means though that he has to be very careful about not getting overheated as the body sweats to lower its core temperature.
Really? No one has ever told me about that!!! Do you have a name for it? I might be a bit nervous of it but it would be interesting to know xxx
There are suggestions here:
webmd.com/skin-problems-and...
And as you have already heard - there are supplements that are said to help. But do check with the pharmacist (not the counter staff) that they are OK together with any medication you are on.
Oh thank you! ( Linda gets stuck in doorway in mad rush to get to shop). I will be careful. If I could stop this darn sweating I could wear make up again. I look like that cake in the song " someone left the cake out in the rain" !!!!
Only on this site could one openly admit to dripping sweat on counters in shops and out loud describe sweating in such graphic detail. Just one of the wonders of this condition and site. Long live PMR/GCAuk! I too am a member of the PPSC (PMR Prolific Sweat Club!)
Marilyn I agree. I was nervous about bringing it up but it’s a real problem and we are all adults. How do you cope with it? It’s awful isn’t it xxxx
Hi me too ! Down to 2.5 my and have the same symptoms plus aches and pains in my neck and shoulders I guess it's just one more symptom to put up with Hope things improve for you soon
Anita sending you a hug. I am sorry to read that. I guess also I was hoping that by the time I got to that low a dose my sweating would have resolved! Seems not. We have to support each other xxx
Thank you sending a hug back it's so good to have all the support on this site am sure it makes us all feel a lot better : ) x
Anita being alone wait would have been the last straw for me xx
I am always hot and sweat when everyone else is wearing jumpers. I never used to sweat even when I lived in Cyprus. My hair is a mess and I wear it tied up all the time due to excessive sweating. Sweat runs down my face and I have wet patches on my tshirts. If I don’t move it eat it’s fine. Got to be steroids for me I am on 8 mg.
Estelle you too!! Your description sounds just like me. It’s really horrible isn’t it? Xxx
It truly is. It’s not menopause either as I am on HRT.
No it’s definitely not menopausal. Xx
I’ve tried sage in tablet form from Holland and Barrett it works for me !
Might ask a herbalist here for some?
Sage? I love that!!! I have sage in the garden I could make tea!!! Xxx. Thank you!
Hi yes me too, it starts at my head and works it’s way down my body.
I get an anxious feeling in my stomach just before it all kicks off and my head feels weird !!
Carole x
Forgot to say down to 2.5 x
Are you doing ok? Xxxxx
Hi yes not doing too bad, compared to others on this site.
how about you,?
Xxx
I’ve actually had three good days I’m so happy!!
Well done you x
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