Disappointing Research Study Form On Ear Involvem... - PMRGCAuk

PMRGCAuk

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Disappointing Research Study Form On Ear Involvement!

19 Replies

Well!! Looked at the questions & choices! Is it me or is it them! Ah Ha! So much of this crap now! Good day for myself hopefully for you too.

19 Replies
stellafmdm profile image
stellafmdm

Beautiful garden Pepperdoggie! you are so clever and green fingered!!!

in reply to stellafmdm

Ta. Dunno about clever! It's just evolved over the years! Inherited my old mans gardening genes. ATB

SnazzyD profile image
SnazzyD

Never mind that, is that an uneaten hosta I see??

in reply to SnazzyD

It's a variegated polyanthus. Gave up on the hosta's with the slugs here! Haven for vine weevil too they are.

SnazzyD profile image
SnazzyD in reply to

Ah, is that what is eating all my hostas’ roots off? It’s important for those with PMR/GCA to know 😉

in reply to SnazzyD

Yes. Munching monsters the larva are. Any plant with soft roots is in trouble. Adult weevils can't fly & crawl about at dusk onwards. You're need a hammer or nutcracker! Tough blighters they are!

Grants148 profile image
Grants148

Lovely garden,l wish l could get my borders to look like that !Well done Pepperdoggie.Have a good weekend,

in reply to Grants148

Ta. Grants. North facing border many past failures, the old proven ones do the job nicely now. ATB

Your garden still looks summery, as usual here it's barely stopped raining since August, desperately trying to catch up on garden and allotment before outdoor work becomes too soggy!

It's looking better now than in that long dry spell. Not too much to do here now. Mostly the potted stuff. Mind that back & don't overdo it!

bunnymom profile image
bunnymom

Your garden still looks lively. I'm starting to get rid of some pots that look sad. Also writing lists of what to do next year. Maybe we'll both be feeling better 😄

in reply to bunnymom

Ta. Good to have that lively look & some forward planning. Watering pots can be boring in a hot Summer. Enjoy the engagement & process of it all though myself. Certainly helps me feel better & looks like yourself too. ATB

SheffieldJane profile image
SheffieldJane

Glad you had a better day! Stunning picture. Where is the research questionnaire?

in reply to SheffieldJane

"Research Study: Ear Involvement In Giant Cell Arteritis". Gateshead Health NHS Trust.

Email:susan.pugmire@nhs.net or Tel.0191 4455191. for form.

Has been on the forum a few times asking for more volunteers with GCA. Sent & returned by post. I found it disappointing! Hope you enjoyed your week away.

jinasc profile image
jinasc in reply to

How did you find it disappointing?

SheffieldJane profile image
SheffieldJane in reply to

Thank you! I remember now, I dismissed it from my sieve-like brain, because I only have PMR. I do have ear symptoms sometimes though. Sorry that you found it disappointing. Apparently, they have to do these research studies on a wing and a prayer. I sat beside a PHD student at the event who was looking, I think, at the long term impact of steroids on PMR/GCA sufferers.

I thought it narrow in it's questions & possible responses. Like so many of modern polls & feedback. Can't see any useful outcome from it! But of course that's just my personal view! ATB

SheffieldJane profile image
SheffieldJane

I know what you mean, no room for sometimes, partially, not exactly, once in a blue moon. Too hard to analyse.

in reply to SheffieldJane

That's it! They are like online" helps" which steer you all over the place & don't have the solution to your problem!!! Rant over! Off to have a stroll up the cut.

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