Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,610 members • 38,757 posts

All posts for September 2018

Should I increase pred

Hi guys, Hope you are all well. I need some help on my change of dosage. I have been on 12.5mg per week of pred for 4 months. Then changed to 11.25mg per...

Hi guys, Hope you are all well. I need some help on my change of dosage. I have...

Buenavista

•6 years ago

6 Replies

I am new here, my first post. Sympathy is in short supply...if you look ok you must be ok!

Diagnosed in June and ‘sympathy’ is unfortunately in short supply....I feel irritable that people, (especially) husbands think all ok because you look ok. It...

Diagnosed in June and ‘sympathy’ is unfortunately in short supply....I feel irri...

Pmrmolly2018

•6 years ago

4 Replies

Teriparatide (Forteo)

Has anyone used this treatment for osteoporosis for the recommended two years and, within weeks of stopping the injections, been diagnosed with PMR/GCA?

Has anyone used this treatment for osteoporosis for the recommended two years an...

clieder

•6 years ago

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All change

Due to advice 're my no polar. I've been told methotrexate is probably the wisest choice. Started my first dose and fealt knocked out also feel ironicly more...

Due to advice 're my no polar. I've been told methotrexate is probably the wises...

animalactivist

•6 years ago

14 Replies

Osteoporosis

Hi Have had a bone scan this morning and it showed osteoporosis in my right femur and osteopenia in the left and spine. Completely gobsmacked as I have been on...

Hi Have had a bone scan this morning and it showed osteoporosis in my right femu...

Mitziecat

•6 years ago

33 Replies

Always A Beauty to See.

It's early morning! Waking up time! Cheering choir for this great forum!

Hidden

•6 years ago

7 Replies

Does anyone with PMR have pain in their wrist arteries.

Wrist pain.

pmrgcavictim

•6 years ago

9 Replies

Interstitial lung disease

Hello After weaning prednisone from40mg to 20mg in 5 months I am now at 18 mg during 8 days suffering only fatigue and 3 or four dayly cough episodes with...

Hello After weaning prednisone from40mg to 20mg in 5 months I am now at 18 mg du...

Chanquete

•6 years ago

6 Replies

GCA taper info please

I see my rheumy and a neurologist today for PMR/GCA and want to be prepared with taper info. After a flare I am on 65 mg pred for 3 weeks. At this dose I have...

I see my rheumy and a neurologist today for PMR/GCA and want to be prepared with...

Viola1

•6 years ago

5 Replies

Feeling apprehensive and a quick up date

Day 16 on prednisone and saw the doctor today after she had consulted with the rheumatology department. There was concern that I hasn't achieved enough symptom...

Day 16 on prednisone and saw the doctor today after she had consulted with the r...

KinnearD

•6 years ago

23 Replies

sore jaw and stiff neck

I was diagnosed and started 20mg pred on June 27...saw rheumatologist July 20 and started to cut down to 15mg...I was too ambitious a week later and cut again...

I was diagnosed and started 20mg pred on June 27...saw rheumatologist July 20 an...

izzyart

•6 years ago

7 Replies

The Lighter Side: PMR and ‘Op Shop’ Bargain Hunting. Retail Therapy + Exercise = Fun? ;-)

Greetings All on a September Friday. Autumn looms. And then Christmas. And then we start all over again. Ohh.. no.. 'don't go there'. :-D Following (and...

Greetings All on a September Friday. Autumn looms. And then Christmas. And then ...

markbenjamin57

•6 years ago

74 Replies

Cataract operationl

Hello, I had one cataract done yesterday. I thought that I would have as little medication as possible so had no sedation or injection round the eye. I just...

Hello, I had one cataract done yesterday. I thought that I would have as little ...

jennifer15

•6 years ago

27 Replies

Should you be headache free on Pred? And, do you tell work colleagues whats the matter?

Hello GCA pals, Me again. Can I ask if its normal to still have headaches when on Pred? I am down to 40 mg per day at the moment and wondering when it...

Hello GCA pals, Me again. Can I ask if its normal to still have headaches when...

Fieldofdreams

•6 years ago

40 Replies

Hurricanes, spoons and blue grass bands.

Good morning y’all, You might have noticed that a catastrophic hurricane is bearing down on the Carolinas. I live by Raleigh NC so we will be impacted. Several...

Good morning y’all, You might have noticed that a catastrophic hurricane is bear...

fmkkm

•6 years ago

17 Replies

Just beginning

I see the rheumatoid doctor next Friday to get diagnosed but my pcp and I believe I have PMR. Started months ago in my both hips. I thought I was just getting...

I see the rheumatoid doctor next Friday to get diagnosed but my pcp and I believ...

1958hurts

•6 years ago

19 Replies

Building up my strength

Im as weak as a kitten and struggle to lift bags of shopping or a pan from the aga. As I’ve mentioned in previous posts, ive got barely enough energy to get...

Im as weak as a kitten and struggle to lift bags of shopping or a pan from the a...

Paula-kent

•6 years ago

41 Replies

Prednisolone vs. Prednisone

Hi My aunt has been battling polymyalgia and the steroid cure for over 2 years now. Her doctor is encouraging her to wean off prednisolone and get her adrenal...

Hi My aunt has been battling polymyalgia and the steroid cure for over 2 years n...

Darmahcat

•6 years ago

10 Replies

PMR and Cushing she syndrome?

Anyone have tips? I have been reducing my Prednisone I am at 8.5 working to lower it. Now cushings? So depressed and frustrated

Anyone have tips? I have been reducing my Prednisone I am at 8.5 working to lowe...

2roos

•6 years ago

8 Replies

treating PMR with supplements

I have been on prednisone for 1.5 years now and successfully dosed down to 2 mg. When i went to 1 the pain returned. I am slowly increasing the dosage, but...

I have been on prednisone for 1.5 years now and successfully dosed down to 2 mg....

moondance44

•6 years ago

8 Replies

Pneumococcal Immunisation

Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've been offered this as a precaution against pneumonia, septicaemia and...

Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've ...

Ronnie101

•6 years ago

8 Replies

Thank you everyone. I made it! I did some yoga and swam in the sea!

Dear fellow GCA pals, I just wanted to say a huge thank you to everyone on this forum who has helped me since my diagnosis on 13th August. My world spun 360...

Dear fellow GCA pals, I just wanted to say a huge thank you to everyone on this ...

Fieldofdreams

•6 years ago

50 Replies

Having to sign in to answer each post - help please admin.?

This maybe because I am posting from Majorca, but it is a nuisance. How can I get straight in each time, as I used to do?

This maybe because I am posting from Majorca, but it is a nuisance. How can I ge...

SheffieldJane

•6 years ago

31 Replies

Thyroid and preds?

Just wondering how many of us have both PMR/GCA and also have underactive thyroids? How do you manage taking preds and thyroxine in the mornings? I'm just...

Just wondering how many of us have both PMR/GCA and also have underactive thyroi...

MamaBeagle

•6 years ago

42 Replies

PMR and new friend PsA

Hey guys! Diagnosed with PMR in February. Been on prednisone since. Constantly trying to reduce. Rheumatologist appointment yesterday showed that my...

Hey guys! Diagnosed with PMR in February. Been on prednisone since. Constantly...

Dianejohnson

•6 years ago

9 Replies

I have just realised I forgot to take pred yesterday

I have GCA & PMR and am trying to taper from 14 to 13.5 pred. Over the last week doses have been fri 13.5, sat 13.5, sun 14, mon 13.5, tue 14 (had a headache...

I have GCA & PMR and am trying to taper from 14 to 13.5 pred. Over the last week...

Janstr

•6 years ago

13 Replies

GCA early signs , not sure

Hi all Have PMR 6 months now on prednisone 6 mg.. still have some pain on 6 mg but it’s manageable. On plaquenil as well. Lately I’m having a pain 2/10 on pain...

Hi all Have PMR 6 months now on prednisone 6 mg.. still have some pain on 6 mg b...

Leilagirl

•6 years ago

11 Replies

Advice re tapering

On Saturday I am meant to go from 7.5 to 7 on my fortnightly reduction plan agreed with Dr. My last letter to her agreed this ongoing plan with the proviso I...

On Saturday I am meant to go from 7.5 to 7 on my fortnightly reduction plan agre...

Pongo13

•6 years ago

10 Replies

Easily pleased.

Thought I'd have a lazy day yesterday but finally got a call from a handyman to put up numerous shelves, mirrors, towel rails and cupboards around the house....

Thought I'd have a lazy day yesterday but finally got a call from a handyman to ...

Hidden

•6 years ago

9 Replies

More Meds

Just back from a "today" appt at GP. I take 14 different meds for PMR, high BP, hypothyroidism, osteoarthritis. I had a AF episode 2 weeks ago and had to go...

Just back from a "today" appt at GP. I take 14 different meds for PMR, high BP,...

Valnvaughan

•6 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Should I increase pred

I am new here, my first post. Sympathy is in short supply...if you look ok you must be ok!

Teriparatide (Forteo)

All change

Osteoporosis

Always A Beauty to See.

Does anyone with PMR have pain in their wrist arteries.

Interstitial lung disease

GCA taper info please

Feeling apprehensive and a quick up date

sore jaw and stiff neck

The Lighter Side: PMR and ‘Op Shop’ Bargain Hunting. Retail Therapy + Exercise = Fun? ;-)

Cataract operationl

Should you be headache free on Pred? And, do you tell work colleagues whats the matter?

Hurricanes, spoons and blue grass bands.

Just beginning

Building up my strength

Prednisolone vs. Prednisone

PMR and Cushing she syndrome?

treating PMR with supplements

Pneumococcal Immunisation

Thank you everyone. I made it! I did some yoga and swam in the sea!

Having to sign in to answer each post - help please admin.?

Thyroid and preds?

PMR and new friend PsA

I have just realised I forgot to take pred yesterday

GCA early signs , not sure

Advice re tapering

Easily pleased.

More Meds

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