Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,635 members • 38,785 posts

All posts for September 2018

Day 4 29c Flying Tonight to Aus

Well no more bits have fell off. Stable at 8mg not reducing don’t feel the need to increase yet. Last day in HK high humidity hot as well. Must be a bit of...

Well no more bits have fell off. Stable at 8mg not reducing don’t feel the need ...

Estellemac

•6 years ago

14 Replies

Not sure what is happening nearly four weeks on Prednisone...

As I have posted previously, I have been on 15mg - 20mg Pred since 27th August with limited relief of upper arm and pelvic girdle stiffness and pain that...

As I have posted previously, I have been on 15mg - 20mg Pred since 27th August w...

KinnearD

•6 years ago

9 Replies

Falling to bits

Literally it seems, 4 fillings/bits of tooth have fallen out in the last few months. Is is just bad luck or linked to steroids or the alendronic acid I was...

Literally it seems, 4 fillings/bits of tooth have fallen out in the last few mon...

Griggser

•6 years ago

16 Replies

Want to take advantage of all our features? Just log in!

To all UK members should I ask my GP for a dexascan, is this meant to be done routinely please?? Thanks

Dexascan

Wraysbury

•6 years ago

25 Replies

Tapering

Gp appt today after 5 wks on steroids She told me at last appt 2wks ago that she wants to start me tapering now. I’ve only just got the night time pain sorted...

Gp appt today after 5 wks on steroids She told me at last appt 2wks ago that sh...

Wraysbury

•6 years ago

23 Replies

Diagnosis,has left me soo confused

So here it is , yesterday morning saw my rheumatologist,but was not expecting to receive the results of my tab so soon , well I have them he said . Negative. I...

So here it is , yesterday morning saw my rheumatologist,but was not expecting to...

Monkeymate

•6 years ago

38 Replies

hip, leg, butt pain---flare?

Soooooo Was down to 35 mgs (started at 65 in March) and doing okay, but having some hip, leg pain. 3 weeks ago--- we were headed out the door to my...

Soooooo Was down to 35 mgs (started at 65 in March) and doing okay, but having s...

pwalker801

•6 years ago

12 Replies

My thumb popped out? :)

Hello PMRGCA friends, My story. Diagnosed GCA 13th Aug onto 60 mg. Down to 50 mg quite quickly by rheumy in 2 weeks then to 40 mg by week 4. He wants me...

Hello PMRGCA friends, My story. Diagnosed GCA 13th Aug onto 60 mg. Down to ...

Fieldofdreams

•6 years ago

18 Replies

Broken ribs

I bent over the wrong way and broke 2 ribs on my left side. My Rheumy is not going to be happy with me. She told me to be careful, but who would have thought...

I bent over the wrong way and broke 2 ribs on my left side. My Rheumy is not go...

kay7954

•6 years ago

33 Replies

Vitamins & PMR

Is taking Vitamin B3(nicotinamide) a good idea?

Marotic

•6 years ago

2 Replies

Enjoying a bit of sunshine.

10 days away in the Canaries. This is the view from our balcony. Pacing myself well, walk each evening after dinner. Tried to swim a few lengths in the pool😱,...

10 days away in the Canaries. This is the view from our balcony. Pacing myself w...

York54

•6 years ago

14 Replies

Does pain from PMR move round the body

This is my first post. I am an 81-year-old woman who was very poorly for a long time before I was diagnosed with PMR in 2013. A dosage of 35 mg steroid then...

This is my first post. I am an 81-year-old woman who was very poorly for a long ...

gables123

•6 years ago

22 Replies

Update

Well, I have been off prednisone since last Friday requested by my pcp. Saturday I was ok Sunday a little worse and now Monday it was the worst day ever since...

Well, I have been off prednisone since last Friday requested by my pcp. Saturday...

1958hurts

•6 years ago

7 Replies

Disappointed with Actemra

After being on Actemra since May 1st, I am now experiencing a full blown flare. At first it was like a miracle, my markers went down to normal and I was...

After being on Actemra since May 1st, I am now experiencing a full blown flare. ...

Gaijin

•6 years ago

44 Replies

Pred for scary dental appointment

I already sent this once but it disappeared, so I hope you don't get it twice. I usually see a very nice dentist who specialises in dental phobia. Even so,...

I already sent this once but it disappeared, so I hope you don't get it twice. ...

Myosotis

•6 years ago

8 Replies

When do you downsize from original dose?

How long do you stay at 80 mg after diagnosis? How many weeks after that do you begin to taper and at what dose?

How long do you stay at 80 mg after diagnosis? How many weeks after that do you ...

People1

•6 years ago

22 Replies

What is going on with the Doctors

So i went to the optician for a regular eye test .he advised me I have bleeding behind one eye and he would write to the doctor . I waited a week then went and...

So i went to the optician for a regular eye test .he advised me I have bleeding ...

patriciawhite

•6 years ago

79 Replies

PMR and Long Distance Travel

Well I didn’t up the Pred from 8 to 10 just in case as I was flying for 11.5 hours and I was ok. I am still ok but only walking around. Let’s hope I am not...

Well I didn’t up the Pred from 8 to 10 just in case as I was flying for 11.5 hou...

Estellemac

•6 years ago

4 Replies

How to deal with flare up

I have been down to 9mg for the past 2 weeks. then on Friday woke with sharp pain in right kneecap, couldn't bend the knee. I put it down to using weights at...

I have been down to 9mg for the past 2 weeks. then on Friday woke with sharp pai...

Theziggy

•6 years ago

12 Replies

Newly Diagnosed

Phone call from Doctor while on holiday to say blood tests show Pmr and wants me to start on steroids immediately I get back. Very reluctant to go on steroids,...

Phone call from Doctor while on holiday to say blood tests show Pmr and wants me...

SurfMurf

•6 years ago

26 Replies

Sore scalp at back of head

Anyone have really sore scalp at back of skull that went away shortly after being administered steroids?

Anyone have really sore scalp at back of skull that went away shortly after bein...

People1

•6 years ago

5 Replies

Swollen ankles

I have been experiencing episodes of swollen ankles, worse on left. No pain just swelling. Is this a PMR symptom? It does get better with putting feet up....

I have been experiencing episodes of swollen ankles, worse on left. No pain just...

NEPatriots12

•6 years ago

15 Replies

Prophylactic antibiotics

My rheumatologist wants me to go on Bactrim, three days a week, prophylactically in order to not contract some of the more obscure, dangerous illnesses such as...

My rheumatologist wants me to go on Bactrim, three days a week, prophylactically...

Viola1

•6 years ago

5 Replies

Is it steroids or PTSD

I was diagnosed with PMR and I am on my 3rd week of Prednisone. I started at 30mg and am now on 15. All pain gone but I feel really weak & strange. Racing...

I was diagnosed with PMR and I am on my 3rd week of Prednisone. I started at 30m...

Purplelamp

•6 years ago

32 Replies

Still wiped out!

Hi it's me again! I just wanted to ask if anyone could advise me about when to take my preds. I am still completely exhausted reducing - now on 10mg for 10...

Hi it's me again! I just wanted to ask if anyone could advise me about when to t...

Suin555

•6 years ago

11 Replies

TMJ follow up, can’t eat anything but soft foods

I posted Saturday about probable TMJ problem. My bite is off, my back teeth aren’t connecting, I can only chew with my front teeth, and as a result can’t...

I posted Saturday about probable TMJ problem. My bite is off, my back teeth ...

Mstiles

•6 years ago

4 Replies

Solent Support Group

Hi There is a meeting of the Solent Support Group at the Harvester at Port Solent on Monday 24th September at 11am. Coffee or tea and a natter. Some members...

Hi There is a meeting of the Solent Support Group at the Harvester at Port Solen...

Valnvaughan

•6 years ago

2 Replies

Tapering...like standing on a basketball

In Jan, 2018, within hours of taking my first 15 mg of Prednisone I felt relief from the PMR pain. I was a believer!! Armed with research from my dear sister...

In Jan, 2018, within hours of taking my first 15 mg of Prednisone I felt relief ...

DianeA1

•6 years ago

24 Replies

Rituximab for PMR/GCA? And more effective for Vasculitis.

Food for thought. https://www.nyp.org/amazingadvances/clinical-innovations/rethinking-therapeutic-and-diagnostic-approaches-for-vasculitis My doctor, Robert...

Food for thought. https://www.nyp.org/amazingadvances/clinical-innovations/rethi...

Canygirl61

•6 years ago

2 Replies

Flu jab

Your opinion please, people, I have GCA, is there any reason not to have Flu jab while on pred - methotrexate, which I will be coming off, after all the...

Your opinion please, people, I have GCA, is there any reason not to have Flu jab...

Robert09

•6 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Day 4 29c Flying Tonight to Aus

Not sure what is happening nearly four weeks on Prednisone...

Falling to bits

To all UK members should I ask my GP for a dexascan, is this meant to be done routinely please?? Thanks

Tapering

Diagnosis,has left me soo confused

hip, leg, butt pain---flare?

My thumb popped out? :)

Broken ribs

Vitamins & PMR

Enjoying a bit of sunshine.

Does pain from PMR move round the body

Update

Disappointed with Actemra

Pred for scary dental appointment

When do you downsize from original dose?

What is going on with the Doctors

PMR and Long Distance Travel

How to deal with flare up

Newly Diagnosed

Sore scalp at back of head

Swollen ankles

Prophylactic antibiotics

Is it steroids or PTSD

Still wiped out!

TMJ follow up, can’t eat anything but soft foods

Solent Support Group

Tapering...like standing on a basketball

Rituximab for PMR/GCA? And more effective for Vasculitis.

Flu jab

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive