Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2018

Where can I find link to analogies for fatigue etc

I met a gym instructor who has ME and similar fatigue symptoms. I was trying to explain Spoon Theory to her. Anyone have the links to any of this?

I met a gym instructor who has ME and similar fatigue symptoms. I was trying to ...

Singr

•6 years ago

3 Replies

New diagnosis

Just diagnosed with PMR and started on Pred. Wont know for certain until the pain goes. If it doesnt then back to the drawing board. I was very reluctant to...

Just diagnosed with PMR and started on Pred. Wont know for certain until the pai...

Jac-lin

•6 years ago

13 Replies

A Tattoo From My 4 Legged Mates.

Just joined the tattoo world! Sacked them halfway through the design! Lucky to mug other dogs & thanks to their owners. Contest it was! "Elvis" the...

Just joined the tattoo world! Sacked them halfway through the design! Lucky to ...

Hidden

•6 years ago

5 Replies

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hand leg and feed cramps - pmr GDA

Anyone out there suffering from cramps... Had cramps i feet and loer legs today for 0ver 30mins - previously had hand cramps .

Anyone out there suffering from cramps... Had cramps i feet and loer legs today ...

dragonrider

•6 years ago

18 Replies

Back to square 1

After five days of upping my dose from 7mgs to 10 megs I finally called my doctor. She decided that I should go back to 15mgs and retaper down. I am NOT...

After five days of upping my dose from 7mgs to 10 megs I finally called my docto...

AltonBay

•6 years ago

4 Replies

cholesterol

Had blood test today at local Pharmacy. Result 7.4 - six months ago it was 5.6. Told to see Nurse or GP. My GP has always said not necessary to know...

Had blood test today at local Pharmacy. Result 7.4 - six months ago it was 5.6. ...

joat

•6 years ago

35 Replies

Atypical PMR

Four years into GCA and aches and pains started last year. It's taken the best part of a year to see a Rheum. A couple of hip and hand X-Ray's and an MRI...

Four years into GCA and aches and pains started last year. It's taken the best p...

Roy46

•6 years ago

16 Replies

Is reducing pred a matter of self-control??!!

I was diagnosed in May this year and am currently on 9mg pred. If the point of taking pred is to gradually reduce from the starting dose to the level we need...

I was diagnosed in May this year and am currently on 9mg pred. If the point of t...

Omanain

•6 years ago

73 Replies

PMRGCAuk Members' Day & AGM - Fancy a Coffee?

Good Morning! Since there was not a strong response as to where people would like to meet for coffee, I will be at Fortnum and Mason Restaurant, in St Pancras...

Good Morning! Since there was not a strong response as to where people would lik...

Hidden

•6 years ago

76 Replies

Utterly confused myself and need help

I thought I was going okay finding my way through these early days. Quick recap 2 days x15mg taken at 7am then increased to 20 mg with GPs email consent. Have...

I thought I was going okay finding my way through these early days. Quick recap ...

KinnearD

•6 years ago

13 Replies

My husband has the lingo down after 2 1/2 years!

We were outdoors at a memorial service over the weekend and in spite of shady tents it was very hot. We were next to a corn field and there was no breeze....

We were outdoors at a memorial service over the weekend and in spite of shady te...

bunnymom

•6 years ago

8 Replies

Does a lower carb diet cause fatigue for a short time?

I have shifted to a lower carb diet which I am seeing results from. As usual I am trying to figure out why I am so tired. I had a flare a few weeks ago and...

I have shifted to a lower carb diet which I am seeing results from. As usual I a...

bunnymom

•6 years ago

15 Replies

The Reflective Side: Rachael Bland, BBC Presenter and Devoted Young Mother passes away at the tender age of 40 from incurable Cancer.

Greetings All On an unusually sombre note (seriously - no jokes please)... I'm sure that many of Us Lot of PMR / GCA sufferers in the UK who follow the...

Greetings All On an unusually sombre note (seriously - no jokes please)... I'm ...

markbenjamin57

•6 years ago

36 Replies

My son is in hospital

First off I am sorry for not answering my personal messages and not sure if I will have enough energy to even comment on posts. My son had his teeth deep...

First off I am sorry for not answering my personal messages and not sure if I wi...

Hidden

•6 years ago

74 Replies

My red eye

Re: my “bloody” eye. Thank you all for your suggestions and advise. Went my GP who arranged quick appt. at local hospital who in turn arranged to see me same...

Re: my “bloody” eye. Thank you all for your suggestions and advise. Went my GP w...

suracon

•6 years ago

4 Replies

Shivers and Sweats

Hi Everyone Wondered if anyone is experiencing the shivers while on prednisone? All last winter I had the shivers really bad with teeth banging together. All...

Hi Everyone Wondered if anyone is experiencing the shivers while on prednisone? ...

Linny3

•6 years ago

5 Replies

My Moon Face

I was diagnosed only in June and started off on 100mg Prednisolone for first day reducing to 75mg and am now down to 25mg. Everything tastes terrible so no...

I was diagnosed only in June and started off on 100mg Prednisolone for first day...

Hidden

•6 years ago

20 Replies

Reducing steroids to fast?

Hi everyone just wanted your thoughts on my situation My rheumatology doctor is reducing my pred by 2.5mg every 2 weeks in order to get me off them in a year...

Hi everyone just wanted your thoughts on my situation My rheumatology doctor is ...

Anitao2

•6 years ago

24 Replies

How do you know if your adrenals kick in or not?

I have finally managed reduction from 8mgs to 7.5mgs! HURRAH! I can physically see a difference reduction in weight and hamster face / neck in transition stage...

I have finally managed reduction from 8mgs to 7.5mgs! HURRAH! I can physically s...

Marilyn1959

•6 years ago

50 Replies

Sad

The last of 2 wonderful chestnut trees. It took 6 or 7 skips to take them away.

The last of 2 wonderful chestnut trees. It took 6 or 7 skips to take them away....

Constance13

•6 years ago

20 Replies

Support group Worcestershire

Hi. I’d so love to go to one of these, but the Midlands one is too far away. Is anyone else in Worcestershire and interested in forming a group?

Hi. I’d so love to go to one of these, but the Midlands one is too far away. Is ...

Wraysbury

•6 years ago

8 Replies

Worried about looking after Grandaughter

My Grandaughter starts school tomorrow and my Husband and I will be picking her up two afternoons a week. She also visits for four hours on a Sunday. My...

My Grandaughter starts school tomorrow and my Husband and I will be picking her ...

Attic

•6 years ago

24 Replies

The Lighter Side: An Unexpected and Superb GP Experience - it CAN Happen! ;-)

Greetings to all of You Lot who, for better or worse, follow my Ramblings (and occasional Rantings) here. As usual, all I can say is: haven't you got better...

Greetings to all of You Lot who, for better or worse, follow my Ramblings (and o...

markbenjamin57

•6 years ago

104 Replies

Following on from Scats post about the AGM

This was on my Facebook news feed yesterday. Thought it was worth sharing here!

Louisepenygraig

•6 years ago

25 Replies

Kefir and prednisilone

Is it OK to take Kefir with prednisolone. My and OH started making it with thoughts of the marvelous improvements for our guts, and then she read that it was...

Is it OK to take Kefir with prednisolone. My and OH started making it with thoug...

Theziggy

•6 years ago

42 Replies

Fatigue!!

Why is this fatigue getting worse instead of better!!?? Seriously I have not improved one bit in the last year. Am I missing something? Realistically I...

Why is this fatigue getting worse instead of better!!?? Seriously I have not im...

powerwalk

•6 years ago

59 Replies

Help!!

I was diagnosed with PMR and GCA in May. My Pred dose has not got below 20 since beginning of July. Just keeps flaring up! Am struggling with sleep, depression...

I was diagnosed with PMR and GCA in May. My Pred dose has not got below 20 since...

Barnaby11

•6 years ago

15 Replies

RS3PE

I wonder if RS3PE is causing the swelling in my right hand, going on for 2 months. link; "RS3PE syndrome – The RS3PE syndrome [52] refers to Remitting...

I wonder if RS3PE is causing the swelling in my right hand, going on for 2 month...

gifford7

•6 years ago

6 Replies

Helping our charity

Hi. Are any of you in UK familiar with Money Saving Expert? I used this website this week with a link to writing free wills in return hopefully for a...

Hi. Are any of you in UK familiar with Money Saving Expert? I used this website ...

Valnvaughan

•6 years ago

1 Reply

Suracon

GCA. Just woke up this morning and as I was lying there (face upward) I suddenly had a very piercing pain in my right eye. When I looked in the mirror my eye...

GCA. Just woke up this morning and as I was lying there (face upward) I suddenly...

suracon

•6 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

Where can I find link to analogies for fatigue etc

New diagnosis

A Tattoo From My 4 Legged Mates.

hand leg and feed cramps - pmr GDA

Back to square 1

cholesterol

Atypical PMR

Is reducing pred a matter of self-control??!!

PMRGCAuk Members' Day & AGM - Fancy a Coffee?

Utterly confused myself and need help

My husband has the lingo down after 2 1/2 years!

Does a lower carb diet cause fatigue for a short time?

The Reflective Side: Rachael Bland, BBC Presenter and Devoted Young Mother passes away at the tender age of 40 from incurable Cancer.

My son is in hospital

My red eye

Shivers and Sweats

My Moon Face

Reducing steroids to fast?

How do you know if your adrenals kick in or not?

Sad

Support group Worcestershire

Worried about looking after Grandaughter

The Lighter Side: An Unexpected and Superb GP Experience - it CAN Happen! ;-)

Following on from Scats post about the AGM

Kefir and prednisilone

Fatigue!!

Help!!

RS3PE

Helping our charity

Suracon

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