Adrenals went on holiday: Well, I’m having the... - PMRGCAuk

PMRGCAuk
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Adrenals went on holiday

SnazzyD
SnazzyD

Well, I’m having the first 2 day break away from the house, dogs, teenagers and Grampa in years. I discovered a Triad of Joy with three places within walking distance - Hotel, National Trust property (Belton House) and a garden centre. Trouble is my adrenals have taken a break too. While tripping through the Italian garden, I suddenly felt weak, shakey, tearful, lightheaded and nauseated. Determined to have my damned day out, I dispatched my husband to get one of those electric buggies the NT lends to those less able. Less able? Moi? ‘Fraid so Mate. So a member of staff had to come out to my distant bench to hand it over after H&S briefing, rather than let my husband take it to me. After a brief experiment to see what ‘this baby can do’ I settled at a sedate speed after we established my athletic husband didn’t appreciate having to trot along side me in this heat like a certain dictator’s security detail. Got lots of stares for some reason. I looked to young as a non wrinkled 55 (thanks Pred face)? The older ones feeling smug (I don’t blame them)? Who knows. After I got over the tears of frustration that I couldn’t keep up the pretence of wellness, it was a good morning in spite of feeling like I had nothing in the tank I don’t normally wear my cap backwards by the way.

41 Replies
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Ohhhhh SnazzyD, What a difficult acknowledgement to have to realise. I'm so sorry.

I hate when I have to admit that I can't keep up. I have resigned myself to the fact that I must take the bus, either into to town, or back from town. I can no longer walk both ways. After beginning a new taper routine on Saturday (and drinking too much Rose' during the England game) I'm not feeling even 80-90% today. So when I had to go into town, today ... I knew I'd gave to take the bus both ways. : (

PS - At least you look pretty snazzy on the electric buggy!!!!

DorsetLady
DorsetLadyPMRGCAuk volunteer

You gotta do what you’ve gotta do!

Watch out Louis Hamilton! Or maybe that colour it should Sebastian Vettel!

Know of a second hand one for sale, am tempted. At the moment am doing pretty good, but... <LOL>

Constance13
Constance13
in reply to Ruadh

Google it - quite a lot of reasonably priced second hand machines. New ones cost about £2 - 3K, (off road ones do anyway).

PMRpro
PMRproAmbassador

Rather a fine vehicle! I'm jealous!

SnazzyD
SnazzyD
in reply to PMRpro

It was step up from the usual mobility scooter style and if you squint it almost looks like a mean machine.

Constance13
Constance13
in reply to PMRpro

Why jealous? You were on at me to buy one ages ago.😀 Where’s yours?

PMRpro
PMRproAmbassador
in reply to Constance13

Not the basic sort - the sort Snazzy got!!!! I don't need one yet - thought OH might be needing one but we'll see. His broken lung now has some space to breathe having got the fluid out. His heart needs a bit more exercise not less!

Constance13
Constance13
in reply to PMRpro

The one Snazzy is on costs about £3500 (I think)! Quite a lot, but amazingly cheap to keep someone mobile/active

PMRpro
PMRproAmbassador
in reply to Constance13

I have the card for a Canadian folding one just in case - we saw someone in the village with it, large chap and he said it still managed hills! I think he said you can get a step to put on the back for a second person to stand on and be towed but maybe I'm hallucinating! One between us would be good when away with the camper for going shopping!

Constance13
Constance13
in reply to PMRpro

You can get double seater ones as well, I’ve seen them around here.

Here's my latest hobby horse - were you by any chance dehydrated or low in sodium/other electrolytes?

SnazzyD
SnazzyD
in reply to HeronNS

I do drink well, however, it may have been less than usual for me. I tanked up when I got home but it took the rest of the day lying down to stop feeling jelly like.

HeronNS
HeronNS
in reply to SnazzyD

Well, whatever the reason, it makes a great story and I'm glad you felt better after a while. Your symptoms sounded very much like what my daughter experienced when she collapsed at the end of the first time she ran the Boston marathon - severely dehydrated.

I have to say SnazzyD you do so look hip hop and happening even if you're not! So, go girl go...xxx

HeronNS
HeronNS
in reply to Pipalina

I know! I love the picture, SnazzyD.

Well, If you didn’t have your name before-you sure deserve it now! I’m jealous! Get out there & do some wheelies! I would be tooling everywhere! I’m all for not making people standout and I appreciate your concern, but if it’s not a red Ferrari this comes a close second!

Watch the Rose the next game, but that will be hard. Go England!!! 🇬🇧

Ha! No wheelies I’m afraid. Couldn’t get the speed up and with four wheels it’s a big ask. Lots of gravel for handbrake turns but no handbrake. Even tried the horn but all it was, was a small, polite electric beep. However, it was good on rough terrain (good clearance and soft wheels) when we went off piste and had to take a short cut across tree rooted, goose infested parkland.

PMRpro
PMRproAmbassador
in reply to SnazzyD

I wondered if it was an off-road model - there was a guy on another forum whose leisure activity was walking cliff-top paths and PMR put a stop to that of course. Eventually he got an off-road mobility scooter and was over the moon when he got his old life back.

Constance13
Constance13
in reply to PMRpro

Me too - off road 6km per hour. No worry about getting about now.😀

I think these tramper scooters are amazing SnazzyD. Last Christmas we stayed at a cottage in the North Yorkshire Moors with my elder son and daughter in law and their dog. In addition to PMR I have heart failure and become breathless on exertion, so taking a walk is not an option. However, at the National Park Centre at Sutton Bank I was able to borrow one of these wonderful scooters and join the family for a “walk”on Boxing Day. It was bitterly cold but a bright day and I could see for miles. Ok I wasn’t taking exercise as I have done in previous years, but I was joining in instead of being left behind. I’ve since used a tramper at a RSPB reserve in West Sussex and the grandchildren came along too.. we were able to get down to the bird hides and covered some rough terrain, which was exciting. Took a picnic with us on the tramper. They don’t charge hire fees but ask that you consider a small donation towards maintenance. Brilliant idea and opens up some options for being outdoors that wouldn’t have been possible a few years ago.

SnazzyD
SnazzyD
in reply to linda49

Absolutely. It made the difference between going home disappointed or having a nice morning out.

Good for you SnazzyD. That’s a great looking machine. People were probably looking at you with envy!

Ooh! I hadn’t thought of that one

There are more of us about than we think. My Chiropodist has about 6 patients and she knew all the ins and outs of the disease.

Hi

I would have your blood sugars tested if you can

I am on 8.5 so not as low as you but yesterday I felt sick and very shaky could not stop trembling .

My Mum is diabetic so as I was with her got her to check blood sugar levels thay where 3.5.

After 4 biscuits and a banana followed later by Cauliflower and cheese burgers and good portion of mixed vegetables and a yogurt.

I did feel better but slept all evening and night .

So may be worth checking

BonnyQuine
BonnyQuine
in reply to Rose54

I was ok on 8.5 (ages ago) but, now getting down to 6.5, feel sick and shaky a lot. Wondering if I should give up and go back up for a while. Not low blood sugar - That's still often on the highish side.

SnazzyD
SnazzyD
in reply to BonnyQuine

I thought that at one point but then decided that if I go back up to 8 before all the problems (not flare) started but then at that level, my adrenals will never get the hint.

BonnyQuine
BonnyQuine
in reply to SnazzyD

Yes, been thinking that too. Will try stoicism. But for how long?

SnazzyD
SnazzyD
in reply to BonnyQuine

Not sure. My plan is to muddle along on 5mg, see what my Synacthen test results are next week and hear what the Endocrinologist has to say. Then I’ll have a talk with my body and we’ll make a plan. I’m afraid I have no plans at any point to be stoic 😉

PMRpro
PMRproAmbassador
in reply to BonnyQuine

I suppose you have to give it a couple of months - but if you can't function that is another factor.

Thanks for that and your concern, but I know my sugars are fine. I had also just had breakfast and it has happened a number of times and feels very different to low blood sugar for me. I get it with unusual stressors on the body or emotional and at the end of the day at the moment. I just hadn’t seen this as stressful as it was peaceful and beautiful though hot. This morning I’ve realised it is time for my three weekly low Neutrophil drop and I’ve woken up with a cold sore. If my bod was in high alert with crashing levels, it would have seen this trip as highly not wanted.

Mean machine. You look like one of the cast of 'Off Their Rockers!'. (I love the programme) Hope you are feeling better.

Looks like Greased Lightning has come to town - gogogogogogogogogooooo

Great pic! Very cool! Glad you figured out a way to stay in the game!

I decided to treat myself to a mobility scooter last year. It is a light weight fairly small one which wasn't one of the expensive ones. I use it when I go out with my husband and dog. They were forever waiting for me to catch up, or if I sat down the dog refuses to move and leave me. It was good this year on holiday in Northumberland, I rode my scooter in a park in Morpeth and they had to walk briskly behind me. I love the speeds. I mostly do fast tortoise but did go up to slow hare once.

You look absolutely great. Very"cool" even though you obviously didn't feel either. So good that you turned what could have been a disastrous day into a good one! So good to see your photo- good to put a face to a name. X

SnazzyD
SnazzyD
in reply to Jackoh

Well, I don’t normally wear the hat on backwards with a poorly attempted tough cool person’s expression. It was meant to make my girls laugh.

PMRpro
PMRproAmbassador
in reply to SnazzyD

Was that successful?

SnazzyD
SnazzyD
in reply to PMRpro

Well, I doubt any young person would actually think I pulled it off and I have no idea if my girls cringed or laughed because I sent the picture home. Dare I ask?

You are a inspiration to me. Along with coming down to 5mg I have severe spinal stenosis, which now I can only walk 50-60 ft. This machine is awesome. Keep up the good work😎

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