I have found your contributions invaluable and express my appreciation. My situation is as follows:
- Diagnosed with PMR and commenced on 50mg Pred by GP in August 2017.
- Having returned to Sydney (home) following two weeks of travel, saw rheumatologist who reduced dosage but in October, experienced an "eye episode" so dose was increased to 50mg again just in case GCA had presented.
- Dose again decreased slowly but lethargy issues meant cancellation of further travel.
- Then allergic reactions commenced! Since April, I have had throat and mouth swelling, angioedema, which has necessitated hospitalisation on four occasions...Adrenaline twice and now, still in hospital, following intubation for 6 days!
The whole experience has rheumatologist and immunologists baffled. I am wondering if any of you might have any thoughts on my situation? Any contribution will be most appreciated.