Vit D test results: As I’m supposed to be starting... - PMRGCAuk


14,974 members27,326 posts

Vit D test results

peace_lover profile image

As I’m supposed to be starting on Risedronate I decided to get a vitamin D test done privately, as my surgery seems a bit behind on this. I used a site

which I found through this forum. Just to say that my results were fine (or adequate levels as they call it) which I half expected, but it’s nice to be sure.

First class service: test kit arrived the day after I purchased it and the results were emailed to me the same day as they received my test! Not bad for £29. I thoroughly recommend them.

12 Replies

Very cool!!!! Thank you!!!! I will be trying!!!!

Rugger profile image
Rugger in reply to

Try your GP first and hopefully save the £29 to be spent on Max!

My GP checked mine 18 months ago and it was too low, so I had 8 weeks of the megadose that ipsidipsy had and now take a total of 1600 IU a day. (I think that's 8 times the recommended daily dose!) It's just keeping my level from dropping too low.

in reply to Rugger

Good tip!

PMRpro profile image
PMRproAmbassador in reply to Rugger

Not for our age - recommended is more like 800 IU per day. And most experts feel that isn't enough for anyone with a/i disorders.

Rugger profile image
Rugger in reply to PMRpro

Thanks for this. My level was up to 150 after the megadose, but fell to 53 when I was taking 1200 IU /day. Now I'm on 1600 IU, it's crept up to 62.

I'm on Risedronate for osteoporosis and wonder if I need more because of that too?

PMRpro profile image
PMRproAmbassador in reply to Rugger

You certainly need a good level, same with calcium, or otherwise the bisphosphonate won't work. They should always be checked before a patient is put on them.

Almost all a/i disorders are associated with low vit D levels. It isn't known whether it is cause or effect - but a study in Finland comparing groups of neonates given vit D supplements as babies found the supplemented group was much less likely to develop Type 1 diabetes by teenage. So somehow the higher levels of vit D in a country where it is difficult to make vit D in the skin seemed protective. So does low vit D contribute to developing Type 1 diabetes - which is an a/i disorder?

Rugger profile image
Rugger in reply to PMRpro

Interesting. My vitamin D was checked 8 months after diagnosis of PMR and was 38nmol/L. I also had the DEXA scan then, which showed osteoporosis. (I'd been on pred and a PPI for 8 months by then.) I didn't start Risedronate until after taking the megadose of vitamin D and re-checking the level, which had gone way up to 150. I'm interested that it has fallen in the last year or so, in spite of the supplementation.

I estimate I take around 2000mg of calcium / day - half from diet and half from supplements.

Thankyou for posting this useful information peace lover.

Glad to hear your D test was adequate. I had mine tested privately was very low at 11 and I was feeling quite ill at the time. My consultant gave me a large dose of 50,000 units per week for 6 weeks and thereafter 1,000 a day. I just can't tell you what a difference it has made, more energy, aches and pains not so bad, feelings of helplessness gone, just overall a feeling of being well (ish)!!

I do hope that anyone reading this who is suffering extreme fatigue etc will check their levels, such a simple thing can make such a difference.

After reading that vitamin D is essential for absorption of calcium I have been taking 2000 units daily. I call it my happy pill because if I forget to take it for a few days I notice a change in my mood.....maybe not scientific, but experience convinces me.

cctraveler profile image
cctraveler in reply to GinnyMa

I have been taking Vit D supp for years (taking 5000iu/day). Since Vit D is a fat-soluble vitamin, the body cannot remove an excess, so it is possible to overdose. I have my level checked at least twice a year.

PMRpro profile image
PMRproAmbassador in reply to cctraveler

It IS possible to overdose - but for most people you would have to take very high amounts every day for a very long time! 5000 IU is a fair bit - so it is probably as well you check!

You may also like...