It helps: Since joining this group, it has made... - PMRGCAuk

PMRGCAuk
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It helps

Mipsie
Mipsie

Since joining this group, it has made such a difference knowing that I am not the only person who has this long drawn out problem, which we expected to be cured of.

I am not a moaner normally and get fed up with people who do, but, it’s a bit galling when you’re feeling s... and someone will say ‘ you’re looking very well’

Most people don’t know of the condition, even health workers in different disciplines seem to ignore it as they do atrial fibrillation. Heigh Ho! I straiten up and try not to look like an old biddy. The young optometrist made my day when after doing one or two of his tests said ‘ I have to ask you something, are you really ninety? I thought they’d got the date wrong’. Although I had my walking pole I almost ran back to the car park!

20 Replies
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If this site has taught me anything it is that age is definitely just a number and often a state of mind. Thanks for leading the way. 🌸

Lovely story, wonderful attitude. You are just what we need here!

PMRpro
PMRproAmbassador

Love it!

Hidden
Hidden

That’s Brilliant Mipsie!

Sometimes it’s best to just answer ‘Fine’ when people ask how you are, because we all look well, so it must be a side effect of the Pred 😂

I usually say ‘Not so very sparkling today’ ⭐️ when I’m asked!

Take Care, so glad you’ve found us & can enjoy a bit of banter, have a laugh as well as get sound advice on any problem or queries!

Best Wishes

Mrs N 💅🏼

My son and family off on holiday today with brother in law from Sweden and his wife. I went there last night as I will be dog sitting.

Charlotta asked ‘how are you’ and I thought for once would tell it how it is ‘Not too bad considering I have PMR, I don’t suppose you know what it is’, on the contrary she knew a lot about it, well she is called Lotta !!! Then realised she is a research chemist. So, I didn’t even mind when she said I looked very well.

Apparently it is a well recognised disease in Sweden.

Back to the Viking connection??

PMRpro
PMRproAmbassador
in reply to Marymon

The highest incidence of PMR is in Scandinavia...

Marymon
Marymon
in reply to PMRpro

There we are then, it was a relief to get this response as we all know it’s usually not worth the effort trying to explain it.

Suedeshayes
Suedeshayes
in reply to PMRpro

Do we know why? Are there any studies? Sue

PMRpro
PMRproAmbassador
in reply to Suedeshayes

They assume it is a genetic thing that predisposes people to then develop PMR or GCA - there are loads of factors that are probably involved in developing them which all pile up and then finally one triggers the immune system to go haywire. Whatever they are - and no-one can say this is, this isn't - having a Scandinavian heritage seems to make it more likely. This applies to Scandinavians living outside that region - but there is also some thought low vit D levels may also have a role to play in autoimmune disorders. It isn't a genetic disease in the sense cystic fibrosis or Huntington's disease are so not "attached" to a specific gene or genes.

Suedeshayes
Suedeshayes
in reply to PMRpro

Interesting, thanks. Sue

Telian
Telian
in reply to Marymon

There you go Marymon, that must have made you feel happy! You'll be running round the fields with the dog now but don't over do it!

Marymon
Marymon
in reply to Telian

She and I have reached the age when it’s not so much a run as gentle ramble,

Telian
Telian
in reply to Marymon

It's still good enough....

You're an inspiration Mipsie!

Oh you lovely lady.

What a lovely compliment Mipsie. X

That's great Mipsie! Keep that thought and run it back through your mind every day. I'm sure it'll make you smile. ☺️

You are a treasure Mipsie!!

What an inspiration you are Mipsie. Both my parents lived into their 90s, so I'm hoping! I might even be rid of PMR by then - I'm 70 now!

How wonderful Mipsie! Good on you! X

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