It helps

[Mipsie]

Since joining this group, it has made such a difference knowing that I am not the only person who has this long drawn out problem, which we expected to be cured of.

I am not a moaner normally and get fed up with people who do, but, it’s a bit galling when you’re feeling s... and someone will say ‘ you’re looking very well’

Most people don’t know of the condition, even health workers in different disciplines seem to ignore it as they do atrial fibrillation. Heigh Ho! I straiten up and try not to look like an old biddy. The young optometrist made my day when after doing one or two of his tests said ‘ I have to ask you something, are you really ninety? I thought they’d got the date wrong’. Although I had my walking pole I almost ran back to the car park!

[SheffieldJane]

If this site has taught me anything it is that age is definitely just a number and often a state of mind. Thanks for leading the way. 🌸

[scats]

Lovely story, wonderful attitude. You are just what we need here!

[PMRpro Ambassador]

Love it!

[Hidden]

That’s Brilliant Mipsie!

Sometimes it’s best to just answer ‘Fine’ when people ask how you are, because we all look well, so it must be a side effect of the Pred 😂

I usually say ‘Not so very sparkling today’ ⭐️ when I’m asked!

Take Care, so glad you’ve found us & can enjoy a bit of banter, have a laugh as well as get sound advice on any problem or queries!

Best Wishes

Mrs N 💅🏼

[Marymon]

My son and family off on holiday today with brother in law from Sweden and his wife. I went there last night as I will be dog sitting.

Charlotta asked ‘how are you’ and I thought for once would tell it how it is ‘Not too bad considering I have PMR, I don’t suppose you know what it is’, on the contrary she knew a lot about it, well she is called Lotta !!! Then realised she is a research chemist. So, I didn’t even mind when she said I looked very well.

Apparently it is a well recognised disease in Sweden.

Back to the Viking connection??

[PMRpro Ambassador in reply to Marymon]

The highest incidence of PMR is in Scandinavia...

[Marymon in reply to PMRpro]

There we are then, it was a relief to get this response as we all know it’s usually not worth the effort trying to explain it.

[Suedeshayes in reply to PMRpro]

Do we know why? Are there any studies? Sue

[PMRpro Ambassador in reply to Suedeshayes]

They assume it is a genetic thing that predisposes people to then develop PMR or GCA - there are loads of factors that are probably involved in developing them which all pile up and then finally one triggers the immune system to go haywire. Whatever they are - and no-one can say this is, this isn't - having a Scandinavian heritage seems to make it more likely. This applies to Scandinavians living outside that region - but there is also some thought low vit D levels may also have a role to play in autoimmune disorders. It isn't a genetic disease in the sense cystic fibrosis or Huntington's disease are so not "attached" to a specific gene or genes.

[Suedeshayes in reply to PMRpro]

Interesting, thanks. Sue

[Telian in reply to Marymon]

There you go Marymon, that must have made you feel happy! You'll be running round the fields with the dog now but don't over do it!

[Marymon in reply to Telian]

She and I have reached the age when it’s not so much a run as gentle ramble,

[Telian in reply to Marymon]

It's still good enough....

[Telian]

You're an inspiration Mipsie!

[Marymon]

Oh you lovely lady.

[Cheshy72]

What a lovely compliment Mipsie. X

[Footfairy-1]

That's great Mipsie! Keep that thought and run it back through your mind every day. I'm sure it'll make you smile. ☺️

[DianeA1]

You are a treasure Mipsie!!

[Rugger]

What an inspiration you are Mipsie. Both my parents lived into their 90s, so I'm hoping! I might even be rid of PMR by then - I'm 70 now!

[Jackoh]

How wonderful Mipsie! Good on you! X