Since joining this group, it has made such a difference knowing that I am not the only person who has this long drawn out problem, which we expected to be cured of.
I am not a moaner normally and get fed up with people who do, but, it’s a bit galling when you’re feeling s... and someone will say ‘ you’re looking very well’
Most people don’t know of the condition, even health workers in different disciplines seem to ignore it as they do atrial fibrillation. Heigh Ho! I straiten up and try not to look like an old biddy. The young optometrist made my day when after doing one or two of his tests said ‘ I have to ask you something, are you really ninety? I thought they’d got the date wrong’. Although I had my walking pole I almost ran back to the car park!